Sorry I know it's not an AIBU, the health boards are quiet and I'm desperate 
I've had this for well over a year now and suffer on a daily basis. My diagnosis is acute myofascial TMD, and I also have a 'disc issue' on one side, whatever that means.
I've tried:
Silicone dental guard perscribed by dentist
Voltarol
Ibuprofen
And I'm currently on a prescription for baclofen
I was due to have physiotherapy and acupuncture through Guys hospital but since coronavirus all non essential appointments were cancelled and I've no idea when they'll be able to see me or if I'll be seen this year at all.
Does anybody have any experience of this condition and is able to share what helped bring some relief? I'm getting desperate, the chronic pain is relentless.
My face hurts, my ears, my temples, I have constant tension headaches at the base of my skull, sporadic tinnitus and vertigo.
AIBU?
Does anybody here suffer from TMD (also known as TMJD)
Fxckingpain · 26/06/2020 21:12
OP here, just resurrecting this thread in the hope that the replies help somebody.
Sadly there has been no improvement for me but I'll update my journey so far.
Surgery ruled out on the basis I can open my mouth and it doesn't lock shut.
Physio referral came through but was useless. The first few appointments were over the phone and I didn't find it helpful at all. When I was finally seen in person they didn't touch me at all (covid!) So I was never able to ascertain whether I was doing the exercises right.
Still waiting for targeted acupuncture via the NHS.
I'm weaning off baclofen (muscle relaxant) as the hospital said I shouldn't have been kept on if for so long, it stopped helping after a couple of months anyway.
Consultant at Guys has promised me I'm a candidate for botox but I'm not able to have that until next year now as I'm pregnant.
An interesting development though.. I have been able to link the worst flare ups to my cycle / where I'm at hormonally.
It was always at its worst in the lead up to my period (I have a bad PMS week generally) and then during. The consultant said she had several other patients who noted the same and she's actually had to make a couple of referrals to gynae (yep, a dentist referring to gynae.. how odd) 
I had a couple of weeks where my symptoms were manageable but then I fell pregnant and it all came back with a vengeance. I'm assuming the change in hormones contributed.
My current regime is using 10% ibuprofen gel and 2 x paracetamol first thing in the morning to try and get ahead of the pain before it gets too bad, sometimes it helps but mostly it doesn't.
I can no longer take ibuprofen or aspirin as it gives me such severe stomach pain I've probably done some damage to my stomach lining after taking it for such a long time.
I hope everybody else here is doing ok and managing as best they can 
Hi @HermionePotter123 OP here.
Not great unfortunately, little to no change WRT the pain. I posted an update just before your post 
I haven't heard of a michigan splint or nti device but I'll be going to look those up now! Sorry to hear you're going through the same. It's the pits.
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