to take my baby to hospital tonight

[monkeyandlion2012]

He'd had breathing problems since birth ( chest retractions/grunting/blue spells and nose flareing. ) and today he's been sleeping lots and poor feeding on top of his usual problems..the hospital says to take him up he's blue no blue speeds today fortunately so aibu

[PacificDogwod]

Yy record him on your phone when he's bad.

Hope you have a good night with him.

[NicknameUsed]

Haven't you posted on here about this before? He definitely needs to be seen by ENT. I can't believe they are making you wait this long.

I am not a medic, but I don't understand how a barium swallow can diagnose a floppy larynx. Isn't a barium swallow used as a diagnostic tool for digestive problems?

From my personal experience airway issues need to be looked at via an endoscopy.

[pizzanchips]

Record him. To hospital tonight. And contact PALS (patient advice and liaison service) and do a number on them about taking this seriously, also see if you can get someone to advocate on your behalf if this is still not seriously investigated urgently

[RoryGilmore]

You know what, yougotitdude if I'd had mumsnet when DS was ill I may have been more likely to push harder for my DS when we were in a similar situation.

It's an on going problem, her baby isn't currently blue, and she's seeking advice after repeatedly being turned away.

Rtft

[HemseyWhemsyWooChoo]

Look, if you feel something isn't right, stand your ground. Even if you have to call an ambulance every time it happens. I had to do this a few months ago with my daughter. She has been in and out of hospital since birth with a variety of complications. I stood my ground because she wasn't feeding very well and had had a cold for several weeks, low blood sugars... anyway, I spent a week in hospital trying to get them to listen to me (I felt like they were just humouring me at first) until they finally put a tube down to feed her. The next day she ate her lunch! She was so exhausted from having no food that she was unable to muster the energy to eat as well as fight her chest infection.
Anyhow, what I'm trying to say is, it is hard and sometimes you feel like you're banging your head against a brick wall but you know your baby and what is right and not right. Be firm and persist. xxxxx

[sunnyshowers]

In babies the swallow and breathing can get mixed up. So if they swallow they forget to breath fykwim.
That's why the test will rule in or out a problem. My baby did this. However I would go to a&e immediatly

[kitchenunit]

Yougotitdude you're a cunt. Can you read?

Take him to the hospital. If in doubt, ALWAYS take them in.

[HopelesslydevotedtoGu]

Do go to hospital

Make a video on your smartphone whenever his breathing gets bad, then you can show it to the doctor if he has improved by the time you get to hospital. Also count how many breaths per minute.

Ask the hospital drs for clear criteria about when to call 999/ take him to A&E yourself if his breathing is affected in future e.g. how many breaths per minute, signs he is struggling to breathe that you can look for.

[weeblueberry]

My baby has turned blue.

I know what i'll do- i'll post on Mumsnet!

Said no sensible parent ever.

Call an ambulance, ffs. hmm

Rtft. She confirmed he hasn't gone blue...?

[marthastew]

You need to go to hospital.

For when you get back - DD has difficulty breathing from time to time. We have been told that she needs to get to A&E when her oxygen saturation is 93% or below. I have bought a paediatric oximeter which was around £20 on Amazon to help me make the decision about when we need to go to hospital. It also helps being able to say to drs, "well her oxygen levels are XX%".

www.amazon.co.uk/Contec-Blue-Fingertip-Pulse-Oximeter/dp/B0055UZWXU/ref=sr_1_1_a_it?ie=UTF8&qid=1466021395&sr=8-1&keywords=paediatric%20oximeter&tag=mumsnet&ascsubtag=mnforum-21

[lolalament]

Ideally, if you use a pulse oximeter you need to learn how to manually check a radial pulse. The oximeter will show the pulse rate as well as spo2 level, and if you can compare the pulse showing with a manual reading then you can be sure it's right.

Pulse oximetry can read incorrectly if fingers are wet, cold, too small and loads of other reasons so you can't rely on a number just because it's shown.

[yougotitdude]

I take it back. That was rather twattish of me. Sorry OP. Hope everything is a-okay.

[Shakirasma]

What investigations has your child had OP? If hes not already had one I suggest you push for a chest X-ray.

[NicknameUsed]

Chest x-rays don't show up airway problems Shakirasma DD's chest x-ray was clear, but it didn't show up the blockage in her airway.

[monkeyandlion2012]

So this is how tonight went toke him in taxi spoke to triage nurse he was put on see within hr box. Doctor called us in done the same stuff BTW his oxygen was 98% she said he seems fine now and said because he's been doing this for a while they're not that concernd. To the poster who thought he went blue fair enough if he did. I've got problems with my writing.

[monkeyandlion2012]

Also doctor was with him for a mere 10 mins we weren't even in there for an hr

[NicknameUsed]

I agree that you need to film your son when he is struggling to breathe. I can't believe you keep getting fobbed off all the time.

[Cleo1303]

Hi Monkey, I think you are now back home?

I hope he has a better night. Take care of yourself and your baby and let us know how is tomorrow

[meddie]

OP if you are not happy with him and he keeps doing it then push for further investigations.
The fact that he has been doing this since birth is concerning, because there is obviously an issue somewhere. Normal healthy babies do not have difficulty breathing and nostril flaring.
Unfortunately the doctors in a&e are usually relatively Junior and adult trained, unless they specifically asked a paediatrician to see him.
I second videoing these episodes and looking for anything that could possibly trigger them, do they occur after feeds?

[monkeyandlion2012]

Nickname what we're your dc signs. DS often gags on his milk and has reflux that meds aren't helping. And a noise almost like cracking sound familiar?

[RoryGilmore]

Has he ever had an xray or other scan?

[monkeyandlion2012]

Full list of tests
Baruim swallow
Chest xray x2
Brain scan
Ecg x2
Alot of blood tests including blood gases which were normal

[Marsquared]

We got our own o2 monitor for home in the end when we had this. Got it second hand for not too much. Best money I ever spent. When I was worried j put it on and if his sats were below 90% off we went to a and e. I

[SueTrinder]

OK, to be fair to the doctors they will look for the most obvious causes of the symptoms first and if they don't find anything the choice is 'wait and see' or 'look again for something rarer'. It can take time to determine a serious but rare condition.

So you need to be persistent and generate evidence. Get your scientist hat on. Keep a diary of symptoms, film or photograph him when he does something distressing. Keep your discharge notes when you've taken him into hospital and produce them whenever you see a medial professional (FWIW I have discovered the discharge notes we get are sometimes more detailed than the discharge notes that are sent to the GP). Keep a list of all medication that his is given (this should be on the discharge notes).

Can you get someone else to come in with you to take notes and/or act as your champion? You do need to push push push at the HCP and make sure everyone knows exactly why you are worried so they do something about it. And that can be easier as a tag team than as a single tired parent.

[Northernlurker]

Do you know why they haven't done an echo? It's a scan of the heart.