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AIBU?

to not know whether to try and find out if DD has Aspergers or is just a bit eccentric?

80 replies

Fortful · 22/01/2016 11:49

I really don't want to cause offence, and am putting this here rather than in SN so I get a broad range of opinions.

So DD2 has just turned 14. Doing well at school, plays a sport (individual), is generally pretty calm, few teenage outbursts, loves her dog (more than her big sister I suspect!).

DD finds the social aspect of school hard, not only at lunch and break, but finding people to work with in class - the other girls often annoy her by being silly, or say unkind things to her. She has been bullied. She isn't into her appearance - at all. She looks fine, just no make up, minimal hair brushing, standard uniform (doesn't roll her skirt or blazer sleeves!). She just isn't interested in typical teen stuff like boys, bands, parties, instagram. DD1 was more typical in this way - had a gang of friends at school, lots of sleepevers, social media etc.

She is also quite shy. She will chat with people she knows well, but it can be somewhat one-sided, she doesn't remember to ask other people questions about themselves. She hates speaking on the phone, and talking to people in shops etc. To me it looks like she is just acutely self conscious. I guess other people would say she is socially awkward.

She has a few things that she is really 'into'. Nerdy things, but they make her happy. She has a couple of people she sees out of school that are also in to these things, so she meets up with them infrequently. She doesn't seem to feel the need to go and see friends. Once a fortnight she might, otherwise she is happy at home.

She is clumsy, quite often very unaware of what is going on around her, finds it hard to think under pressure, or remember verbal instructions (though she is very bright - top sets at school - all girls school btw, her choice). Her hearing and sight are fine.

She did see a school counsellor because she felt unhappy at school, and she does get anxious about the future - because she is bright she sees how hard it is for young people and worries about debt, university, affording somewhere to live. She is quite a serious person. This anxiety isn't constant at a high level, but she is pretty introspective and ruminates.

I have heard her peers describe her as 'weird'. Her older sister has also called her that. One teacher asked if she had a diagnosis of anything. Other teachers say either she is lovely and contributes well, or is quiet, depending on the subject.

So, where does socially awkward end, and being on the spectrum start? I really don't know if she has anything diagnosable, or whether she is just a shy and serious teen. I know from a friend who does admin in a teen mental health team that trying to get a diagnosis takes ages, and you have to be very high need to get seen, so is it worth trying even? If she has Aspergers, would having that confirmed make a difference? She knows she is different from her peers anyway, and might see a diagnosis as constraining what she is capable of rather than explaining her differences.

OP posts:
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briss · 22/01/2016 12:52

So what signs present in autism? Or is it so subtle that only a professional can know? Surely if someone is empathetic, social, has interests and is happy with themselves then they are probably not autistic?

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5Foot5 · 22/01/2016 12:52

MrsGentlyBenevelont Your post could apply to me exactly except that would be nearer 40 years ago. Also like you once I got to University I fitted in much better and found more people I had things in common with so my social life developed.

I honestly didn't read anything in the OP that would have made me think this was a girl who needed a label.

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AntiquityRises · 22/01/2016 12:57

Although, hypocritically, given all I've said, we haven't pursued a diagnosis for ds1 who sounds similar to your dd in anxiety and processing verbal information, at 11 he's only just hit being able to remember a 3 step instruction despite being very intelligent. Plus he does have social issues and special interests. Basically, since we told him he has autistic traits things have been easier for him. I wasn't planning on saying anything but at 9 he'd had a couple of years of being the "weird kid" and he was self-hating and angry at himself and wanting to know why he was different. He's much better now, especially as it means he's been open to working on his social deficits (can't initiate or sustain conversation, doesn't recognise when people are friendly or open to friendship so feels isolated, and feels persecuted by innocent teasing). And he's found people with the same interests so he can monologue at them instead of me. Life is still an effort for him though, he keeps a mental flipcard of everyone he knows so he can access it when interacting with them and then he knows how he should act with them.

I'm not sure I believe he'd get a diagnosis, probably would've been easier when he was 2 and lining up cars and knew the make and model of every single car, read auto trader and a lot of his speech came from Top Gear and had (and still has) zero imaginative play.

Argh, there's more. And it does have an effect on his life, but he's not as rigid as ds2 who is diagnosed, and doesn't have the same amount of sensory difficulties.

Yeah, so I'm a massive hypocrite.

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fanjoforthemammaries7850 · 22/01/2016 12:59

i really wish people would stop using the word "label" instead of "diagnosis"

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AntiquityRises · 22/01/2016 12:59

A diagnosis is not a label

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AntiquityRises · 22/01/2016 13:00

Cross post!

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briss · 22/01/2016 13:01

A diagnosis can become a label.

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girlinacoma · 22/01/2016 13:03

You have just described our daughter (now aged 19) to an absolute 'T'.

She had to see a Psychiatrist for PTSD when she was 15/16 and I also wondered whether she may be on the spectrum but the Psychiatrist didn't think that there was any evidence of this at all.

She is very very bright academically and outwardly confident and highly opinionated although not very 'people smart'. Both myself and DH are classic introverts and I suspect she is the same.

Going to Uni has been the making of her though and she has found her 'people'. Things are still not perfect for her from a social point of view but she's doing brilliantly and is very happy.

When my DD was your age - I worried a lot about her future, relationships etc etc but when I read your description of your own daughter I felt a fondness for mine and remembered how crazy and wonderful she really is. Smile

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blankmind · 22/01/2016 13:04

briss

We've already dissed the empathy claptrap and now you come out with

'normal' and 'label'

Goady much, or are you genuinely so unaware?

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AntiquityRises · 22/01/2016 13:05

A diagnosis can become a label.

What does that even mean!?

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AntiquityRises · 22/01/2016 13:09

And in reference to ds1. We're keeping an eye on things, but he's a geeky maths whizz and fits a certain stereotype which may mean that he's not really disadvantaged by his issues, which we are working on anyway.

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Fitzers · 22/01/2016 13:09

Sounds a bit like my husband (I know it's not the same though as he is male). He is often socially anxious, can be withdrawn and introverted but he doesn't have aspergers. He is successful on a professional basis. On a personal level he's absolutely lovely once you get to know him and affectionate and warm (I would say that wouldn't I) but doesn't have a lot of friends and most people would think him very reserved and standoffish I think on first meeting. It's just his personality type although I think he would have benefitted from help when younger to deal with the social anxiety.

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ouryve · 22/01/2016 13:10

How does a diagnosis become a label, briss?

And why would "autistic" be a worse label than "naughty" or "weird", if it were a label?

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lostInTheWash · 22/01/2016 13:11

MrsDeVere list is a very good one.

Diagnosis can be helpful even if only to self esteem - I know that first hand.

However you can also face prejudiced and ignorance around diagnosis - so it is a cost/benefit analysis IMO with the list being a very good place to start to think it all through and areas to research about so you have the information needed to help make the best choice.

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NynaevesSister · 22/01/2016 13:11

Your post was like a checklist for dyspraxia. As someone else said early on I would look at this.

In the long run, if she has dyspraxia, occupational therapy now will make a huge difference for her later especially at university.

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briss · 22/01/2016 13:13

Just because you've dissed it doesn't make it so. We are discussing teen girls who have this type of personality. I have some experience with this. I'm sorry I am not an expert and use phrases that annoy you but you cannot minimise my own experience. My opinion is that the OP s dd is not on the spectrum (as others have said). But I am no expert as you can see! the OP needs to decide if a diagnosis would be helpful for their family.

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yongnian · 22/01/2016 13:14

YANBU to not know whether to. But YABU not to find out, if you think it's a possibility.
Yes it can take a while to get a DX. Not a reason not to get one.
Diagnostic panels have no interest in diagnosing stuff that is not there.
Diagnosis can only be a good thing in terms of self-awareness and from my experience, far less constraining than wondering (over time) 'why' everyone else seems to 'get it' and you don't. And the masking of that, and the secondary strain on your mental health (again over time).
Google Tony Attwood on ASD in girls, he is very very good.
And ask yourself this...if you suspected she had a broken leg, would you hesitate to take it further?
Oh and do pop over to the SN boards, we may be smaller in number but generally have been/are going through the whole gamut.
Good luck.

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Allofaflumble · 22/01/2016 13:14

I grew up with undiagnosed Aspergers Syndrome and only really found out last year at 60! How I wish that it had been recognised but those were very different times.

I was extremely gullible and easy prey for male attention as I truly never recognised that people were not always honest.

As I never fitted in with the girls, I thought having a boyfriend would make me normal and that made me prey.

l wanted to share that with you so you can look out for your daughter if she is on the spectrum.

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vickibee · 22/01/2016 13:15

we saw our GP about our son last week and we have been referred for an assessment - 6-7 months wait though, you just know when your child has an issue. I got the impression my GP thought I was being over the top but go and get a referral

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lostInTheWash · 22/01/2016 13:17

quick check list with dyspraxia.

I was diagnosed with both dyslexia and dyspraxia and got extra time in exams - so worth looking into at 14 as she probably has many years of exams a head of her. Plus at secondary she should still be able to access some school support - well you'd hope so. There would be support at Universities and colleges as well.

Would a meeting with her school help clarify - what they think and what support they might be able to offer?

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yongnian · 22/01/2016 13:21

briss I am in no way dismissing your personal experience.
But please, please don't attempt to diagnose the OPs DD as not being on the spectrum 'from your opinion'
It took 2.5 years, about 10 different NHS professionals, and a long and thorough assessment process in our case...but hey, guess I could have asked a random stranger online and got an answer in minutes, saved us all the bother, hey?!

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Zinni · 22/01/2016 13:30

I was just like this at school! I don't have ASD or anything. I just didn't fit in.

I suggest helping her develop social confidence, by making friends outside of school. Join some clubs in line with her interests. I didn't fit in at school but helped out with animals at local riding stables and went to drama group, so I made friends there.

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givemushypeasachance · 22/01/2016 13:39

She sounds very like me. I've always considered that there's a range of personality types and behaviours, and if formal diagnosed aspergers/autism is at one end then well there will be plenty of people who sit next to that but not quite over the line. I think the question is whether a person seems to need further external support and intervention to be able to get on in life, or whether self-evaluation, recognising areas where you find things more difficult and challenging yourself if they are holding you back is a strategy that works for them.

You don't have to try to completely change your personality - I'm still a major introvert, I live by myself with my cats, I've never had any sort of romantic relationship and I'm okay with that - but I acknowledge that my natural inclinations would negatively impact on things like my work and relationships with family and friends. So I try to check my own behaviour where it impacts on other people - for example not just talking about my current burning interests all the time and actively trying to engage in some of the pointless chit-chat that lubricates social interactions. Colleagues at work still joke about "oh wow, look at you making small talk!" when I've been chatting on the phone with someone and manage to respond to the "how are things?" type questions and engage with people who I don't know well, without just blanking them like I used to. Baby steps! Grin

So yeah - whether you look into formal assessment or not, I think it could be worth supporting your DD to try to develop her own social interraction skills. There are social "rules" you can learn and then you just have to follow them - you don't have to become a social butterfly overnight, but things like taking turns in conversations and not being a bore about your own interests is necessary for engaging with people and not coming over like a jerk. Then there are other areas you could explore with her like mindfulness and CBT for anxiety, addressing her confidence in social situations like shops and on the phone - those are pretty common fears for teenagers. Could she look into volunteering or something else that would force her to go out there and interact with people? Even stuff like helping in a charity shop or going out on local litter picks would mean she's encountering new people in a different situation, and it's just a case of repeated exposure until it loses that fear of the unknown.

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Badlittlesis · 22/01/2016 13:41

Firmly on the fence here, and I do think it really does depend on how your daughter will react.

I was diagnosed with dyslexia when I was 12/13 and it was such a HUGE relief. I knew I was learning the spelling I knew I was doing my best and then it would be gone or I'd think I'd written a word the right way only to go back 30 minutes later and not have a clue what I'd been trying to spell. I can remember thinking I was going mad. Once dyslexia was explained, it was Yes, it's not just me. . . .

So if your daughter is unhappy, maybe a diagnosis will help.

On the other hand if you go through the process and she isn't diagnosed, will she feel more self conscious?

Sorry I'm being of no help here. . .

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MrsJayy · 22/01/2016 13:43

My dd got Dx of developmental co ordination disorder at 7 and what you said about your Dd is what dd was like at14, down to the nerdy. If you think she needs an assesment for something it might be helpful to speak to your Gp

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