Here some suggested organisations that offer expert advice on SN.
Will one of you kind people give me a slap and tell me, in the name of all that's holey moley,to stay off the MMR topics...(31 Posts)
...before i blow up like a balloon and burst in a disappointing pop of stupidity and hopelessness.
I am never going to persuade anyone and it wouldn't make any difference if I did.
I now what happened to my fella. Why do I keep responding to people I don't know who seem to think I am attention seeking fantasist.
it isn't even that I care and get upset. It is just annoying.
fair enough consider yourself slapped
can i jump on your bandwagon? DS5 regressed at the same time that he should have had his MMR... but because he is such a sickly little thing, i never bothered got round to it. But i am certain that there is something in it because theres no way im going to risk making him worse (autistic but relatively 'sociable') by giving it to him now!
I saw the thread in active conversations. Heart sank. Thought - nope I'm not looking. The misinformation on those threads is always depressing. Have you been told you just didn't notice that your child wasn't developing normally? (Because obviously as the mother of a child with SN you're too thick biased to notice anything about your own child).
Something I find comforting is to look at ds3 (who I think came within a hairs breadth of following an autistic developmental pathway - and thank god we took the approach we did- 2 non-verbal kiddies in one family would not be fun) then think 'do I really care what a bunch of fuckers people on a website think? They'd be running screaming from ds3 if he was autistic. What do they know & they'd never help practically in a million years.
I know what happened with ds1. I know what could have happened (but didn't) with ds3. That's enough for me.
thank you ladies.
Strange to be so relieved at being slapped. Having a bit of a Mosely
no. Apparently I didn't notice. But any way it wouldn't have mattered apparently regession is the defining symptom of autism.
Have to laugh at one thing though. Apparently reading the jabs website and believing it is being a sheep.
Presumeably all those who read the Govt websites and pamphlets are radical free thinkers
Pagwatch and jimjams: I know that this may not help but it has made a huge difference to our family.
Every time I start to think that I am a bad mother for not having the jabs one of your posts reminds me that I am not irresponsible.
Nearly 14 years ago, one of the children that I worked with (before I had children of my own) had a reaction to the MMR. His mother was persecuted relentlessly for trying to tell their story but the evidence was plain to see from home video and for anyone that knew the child before and after.
Please don't stay off the MMR threads. You may have made far more difference than you think.
But seriously you ARE entitled to recount what happened to ds and both you and JJ have helped an awful lot of people. I thought very carefully about what JJ said when I was deciding about ds - her informed contributions to the debate were very helpful (it was nice to have someone to discuss Cochrane with who was up to speed).
I stay off those threads as mine had theirs done before the link became apparent iynwim.
I think you should post (unless it causes you distress)
people need to be aware of the risks so that they can make a educated decision. if all the people whoose dc's have been affected keep quiet this won't be possible.
but I understand why you must feel that you are banging your head against a brick wall.
sadly imo proving the link will always be hard as the goverment will never admit it(imo) as it would cost them so much in compensation.
Thanks Cadmum and edam.
For anyone wanting to know more I'd just advise reading the hearing diaries It's from a biased source, but the reporting of what was actually said does seem pretty fair. There isn't an alternative as apparently the transcripts aren't available. I vaguely remember reading somewhere that they will be published after the close of the hearing (in about 2 years time apparently )
There's lots coming out of the hearing that has surprised me. I can't see what they're going to get the 3 of them on- although I'm sure they will.
The other bit of good news is that I was surprised by IMFAR (international meeting for autism research). Whatever the dept of health will have you believe research is going onto into the potential link between vaccines and autism including the MMR. This has by and large come about because this research is being funded by independent and parent led or parent set up bodies. Parents actually have increasing power - I heard it said several times during the conference 'we have to research this (this being various diverse things) because that's what parents want.' The potential links were talked about quite openly by some researchers there. Along with the other factors that might lead to a susceptibility. It was very encouraging indeed.
Why not save a paragraph, all done out in bullet points and simple facts, that covers most FAQ (Frequently Alledged Quertwaddle), that you can copy, rush into the thread with your eyes closed and a peg over your nose, paste and rush out again before it gets to you?
Then hide thread.
It could be like the MN philosophy - a para which explains it all when all around you los their marbles.
When I read that these vaccines contain ingredients such as embalming fluid, anti freeze, gelatin, not to mention the chick embryo in which the vaccines are cultured...well, it simplified the decision making process!
I think it is important that people considering MMR get to read all sides of the debate. Whilst I think that ds was showing signs of ASD before his jabs and there was no obvious regression I have heard some very convincing accounts to the contrary that have stopped me getting ds2 and dd3 done. Frankly I'm not taking any chances since we already have one autistic child. Our nurse was really cool when I explained this and said 'fair enough I'll stop sending the letters then'.
DS2 started to regress before he had his MMR. Some of his issues were plainly there from birth. DS2 was born sensory seeking and would not sleep in a quiet room and was so freaking hyperactive he was crawling on his belly at 20 weeks.
Stay away from those topics, though!!! If you want a headache, it's much more efficient to bang your head on the desk a few times. Your fingers will ache less and your keyboard will sustain less wear and tear (so long as you move it out of the way before the headbanging starts.)
The researchers in the field reckon about 7% of kids with autism were triggered by MMR, so not many. It's quite brand specific as well, so the numbers may have been larger a few years ago and fewer now.
Pagwatch - do you have my email address? We could perhaps have an interesting conversation offline about the brand your son received. One is well known to have been more problematic.
No I don't jimjam.
Could you CAM me and I will whizz you his brand
arn't you both on ttr. if so you can exchange emails on there(or chat)
no - I got the offer to join but sadly chose to put my head up my arse rather than comply with the joining thingy. No idea why as i did want to join...
I do that a lot with letters from the school, appts, invitations etc just at the mo'
I haven't got CAT (I've deleted my membership so many times, and each time you do you lose the CAT ability so I don't use it now).
I am on ttr.
pagwatch email me at email@example.com and I will send another invite
for a quick fix
if you both email me I can then pass on emails addresses.
You gotta keep saying this stuff so that we all know where we stand. I'm facing the fact the DD is now due MMR booster and DS is now due first shot. (Have a horrid feeling they are both obligatory here for school, but that's another matter). I am usually pro-vaccine (know someone who died of mumps with complications!) but I wish I knew the answer to this. Even if I decide to go ahead, I'm grateful to those of you who do speak out because we all need to know the full facts!! DD in fact did not regress, her development plateau'd (if that's a word) and many months later than the MMR, more like 2 to 2.5...but...
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