I'm in my early 30s and have various health conditions. I'm classed as disabled, blue badge etc but have been working in a professional role up until a few months ago.
I've had to stop working because my disability has got much worse and I'm housebound 99% of the time, bedbound about 75% of the time.
We are really, severely struggling. My husband works a full time job but is on little more than minimum wage so gets about £300 a week. We've applied for housing benefits and been told we can't get more than £1 a week because of DHs income. I am not entitled to ESA because DH works over 16 hours and I took a year out from working to do a post graduate degree. I can't claim Jobseekers because I am unfit to work. We aren't entitled to tax credits as DHs income is too high (ha). I've applied for Pip and been turned down because the assessor told some extremely ludicrous lies and even though he saw me sobbing in my bed, I was deemed able to live normally.
Our outgoings are so much more than £300 a week and £20 child benefit. We have a DS in school and I honestly don't know how we are going to feed and clothe him, let alone us. We have no savings, we are in council accommodation (10 years ago I was made homeless by ex DH) and we both have debts.
I've seen citizens advice who have confirmed that because DH works 37 hours at just over minimum wage, we can't get any help.
I can no longer walk and NHS funding won't stretch to a wheelchair. I have to buy one and because my condition effects my arms, it has to be electric.
You hear about things like this happening to people but never really think it will happen to you. We've both worked all out working lives, we are nice people, we live to be kind to others. How can this have happened to me?
I feel so useless. I'm in constant pain, I can't move and the stress is making me literally want to die. How can some people seem to get so much help and yet others are left with nothing? I don't understand.
Is there anything at all we can do? I don't know how to go on. I'm disabled and sick and a waste of space in the governments eyes yet 6 months ago I was working for them. Life's a proper bitch.
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AIBU?
AIBU in feeling so fed up of it all?
84 replies
IntheBenefitTrap · 21/04/2017 16:25
OP posts:
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