How do I convince my GP to let me have a hysterectomy?

[Crumpetsforthequeen]

I'm 30, have 2dc and had my tubes tied during last c-section with ds9 months, I have ehlers danlos syndrome (eds) and the most horendous periods.

I've always had bad, heavy, painful periods as a side effect from my EDS but as I've got older they are just ruining my body and life (dramatic I know) now I bleed for 10-14 days and it's so heavy I have to wear both a tampon and a pad but I soak through both within 30 minutes so I can't go anywhere for longer than that amount of time so I'm housebound, I feel disgusting and dirty even tho I shower very often and I get debilitating migraines for 4-5 days which in turn sets off my other condition, trigeminal neuralgia. I'm so run down by the end of it I spend the next 2 weeks trying to get my health up ready for it to happen all over again and don't even get me started on the cramps and joint pain. I'm miserable. My mental health is suffering so badly I can't continue like this anymore.

I've been to my GP multiple times to try to convince her to schedule me for a full hysterectomy, I'm fully aware of all that goes with it as it's something I decided I wanted since before I was pregnant with my son, another pregnancy would destroy my body hence the tied tubes but I need my periods and all that hell gone so this isn't a rash, hormonal decision. DH fully supports me and he can see how much I'm suffering, we've done a good 2 years of research and we are fully aware of complications and side effects but we both agree it's for the best.

However my GP has said I'm too young, I'll regret it and I've already had my tubes tied so what's the point in having a hysterectomy? I said I'm not doing this for contraception I'm doing this because I am becoming extremely unwell and depressed.

To which her aggressive snapping reply was well I don't know what you want me to do about it then. (your job maybe? Just a suggestion) And put me on tranexamic acid but it's only lessened my flow by about 5% maybe? And its done nothing for anything else, I'm already on so many different types of meds for different things I don't want to keep introducing new stuff to 'see what happens' as its messing with my regular stuff and my body feels so delicate already one more new drug and it'll od itself.

Thank you for reading this far and I apologise for how long this post is but I've been a mumsnetter for almost 8 years now and you ladies are the best at getting shit done! How do I convince this womb loving GP to let me evict my baby maker?

Ps I can't see anyone else as its 'surgery bullshit policy'

[QuestionMarkNow]

I would tell her to refer you to see a consultant as the medication hasn’t worked.
I would also change GP.
And would ask to have your iron levels checked.that much bleeding for that will will have an impact.

FWIW I am finding The best way to get what I want (in this case referral as your GP can’t do anything else other than medication) is to come up with a list off symptoms from the NHS website. It makes it easier for them as all the boxes are ticked and there is no argument as to why you are asking for A or. B

[AttilaTheMeerkat]

Do not be fobbed off!!!.

Having been diagnosed with endometriosis myself I went into my GP surgery late last year requesting a referral to a gynae (because of ongoing heavy bleeding which was also causing me to become anaemic). Even though I challenged him repeated this was batted off and off I was sent for a blood test. When the results of this came back as "normal" a week later they further dismissed me and basically told me to try and phone up at 8.00 each morning to try for an appointment. It was at this point that I decided to call the local Nuffield and see a gynae there, I would have walked over plate glass to get there if necessary because I felt that desperate. Within a couple of weeks I was booked in for ablation surgery and I have had no problems re bleeding since.

[Oblomov20]

I'd still insist on being referred, for starters.
And I'd see another GP in rtf practice. I'd tell her, that I don't feel I'm being listened to. Just insist at every stage.
Tell her, that you are 'puzzled by her objection' and resistance.

Insist. Again.

[PrincessHoneysuckle]

Keep pushing for a referral.I used to work in a gp practice and the patients who persisted usually got their own way in the end.I hope you get it.

[Spidey66]

It's not really up to your GP whether you have the op, however at the very least they should refer you to gynae. This really needs further investigation. It maybe there maybe other issues causing your difficulties that they can successfully treat.

I've had the op, and normally I'd say 30 is very young to have it. But given your health issues and the fact you already had children I can understand why.

Good luck x

[HELLO12345678912]

I was so interested in these posts as I’ve been suffering with this progesterone intolerance all my life and it’s been horrendous. I would love to ask you about your hysterectomy if you don’t mind as I am planning on having one privately and if you recommend a particular consultant? I’m living in London. I wondered if you felt it was worth doing and had made your quality of life better. Would love to chat as it’s so rare to find someone that can help. Thanks so much Fiona

[HELLO12345678912]

Any great hysterectomy surgeons out there ladies? London ideally?

[VanGoghsDog]

I’ve been suffering with this progesterone intolerance all my life and it’s been horrendous.

I have progesterone intolerance. What makes you think a hysterectomy would help it? What affects do you get from it?

[Whoopsmahoot]

Go private and get a referral for an ablation- will cut your flow by 95%. In and out in a day. Fabulous, worked for me.

[Holothane]

You have my sympathy you really do, I’ve only really stopped bleeding after the coil was put in January still have bad pain days though.