My DD had a late diagnosis of ASD at 15 and although that came as no real surprise, I'm really struggling to come to terms with how much her life has changed since 'the wheels came off' a year ago and she stopped being able to attend school. I keep looking back to how much she was able to do when she was younger and how much happier she was. Nowadays her sensory difficulties are off the chart and she struggles with OCD and social anxiety among other things. We can't live a normal life as everything is restricted by what DD is able to tolerate. What breaks my heart the most is how nearly all of her friendships have fallen away, including those who she had known and met up with frequently for years (some since a baby). Even one that DD thought was rock solid. She's really sad about it. It appears that all of her peers have moved forward in their lives which are filled with going out, boyfriends, school, part-time jobs etc and DD has been left behind. She finds it hard to know what to say and to find common ground now. I just can't believe the difference in how her life was and how it is now. It seemed she was headed the same way as her peers and has now taken a completely different path. It feels like a shock to find myself fighting for an EHCP, PIP, getting therapy etc. The difficulties were always there but are now so evident. Most of all, I just feel sad for my gorgeous daughter who is struggling so much with just the every day things of life.
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Need help coming to terms with everything
16 replies
SpookySpoon22 · 15/02/2024 08:42
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