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DS as a baby ... opinions on possible asd signs i can recall?

39 replies

mysonben · 10/09/2009 18:15

DS was: (birth to age 2 approx.)

  • a bad sleeper from birth, he had real difficulties to find sleep, we were lucky if he slept by 10pm. (Better now he has no daytime nap.)


-he was fascinated with the ceiling fan, and lights and buttons from phones, tv remotes,...he stared at them for ages.

-he was fussy when starting solids, took agessss to get used to lumpy foods, still is trouble at mealtime with chewing,...

-ds was very wary of strangers early on.

-terrified of loud noises and loud or highpitched voices.

-he would often hit his matress full force with his legs when awake (from around 9m). He kept that up for months.

-attention span for TV was so longggg, he was completely mesmerized by tv. Still is...

-cannot recall if ds ever pointed at things in his first year, but knows he wasn't pointing at age 18m, so we started teaching him, showing him how to point for things he wanted.

-ds took our hand and used our hand to point instead of his.

-ds took ages to learn to wave bye, and didn't copy us for nursery rhymes for instance. But he looked at us and giggled.

-from age 16 m, he'd gather shoes, tv remotes, dvds and cds, toys and would line them up or stack them, move one or two and place it back. He played like this for hours every day, but used some of his bigger toys like rocking horse appropriately.
A few months later he also used to kneel in front of his buggy and play with the straps for ages and started to play with doors open/close (still does)

-ds would need to be called many times or touched or he would not "hear" us , we laughed about his selective hearing att!

-ds did not understand/notice very simple sentences and instructions.

-lots and lots of unexplained tantrums, always overly emotional reactions across the whole range from sad to happy.

-his babbling was basic and limited, not many different sounds .

-ds mumbled "mama" but not meaningly addressed to me until near 18m.

-play always limited, especially pretend play, quickly became obssessed with cars and trains (he did flick their wheels too a fair bit), he played alone and never wanted us to entertain him.

  • DS was almost non-verbal at age 2 with only a few unclear words.

he did manage to copy SALT at feeding a teddy after being shown several times for his initial salt assessment at age 2, so salt ruled out asd on the ground that he managed to copy her and that he was giving some eye contact.

Sorry it's a long post...and well done if you've read this far.

If and when ds gets assessed by CAMHS, if they ask about him as a baby do you think the points above will be taken into consideration?
I seem under the impression that early development is important in a dx.
We're not even there yet, and i'm worried that they will just dismiss his issues and our concerns.
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LeonieSoSleepy · 13/09/2009 11:49

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mysonben · 13/09/2009 12:17

I was a bit worried when DD started to sleep in her cot in the big room she shares with DS, it was always at the back of my mind "what if DS went to put a blanket or a pillow over DD's face!!!"
He never did thankfully, but not long ago when i was trying to show a bit of pretend play to DD, i put her dolly down to sleep and DS came along and cover it up with a pillow whislt pushing hard on it!

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LeonieSoSleepy · 13/09/2009 18:43

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amberflower · 13/09/2009 20:23

mysonben we had no issues with DS until he actually went to school - and still got the mild ASD DX - so just goes to show that even with a 'textbook' easy baby/toddler/preschooler (which DS was) you can still end up with DX. I can't imagine they are going to dismiss your concerns.

The only real sensory/trait issues I can pinpoint with DS are fear of loud noises, which started from around 2, and definite auditory processing delay - preschool asked us to have his hearing checked when he was about 3.5 as he didn't always respond to instruction. But his expressive/receptive language is normal to above average according to the SALT tests...and as his mother I'd say that was about accurate compared to his peer group. He was later to point than some - 15 months - but I think that is within normal range? and once pointing he was always sharing interest and was very communicative and keen to share etc etc.

So my scenario is in many ways so very different to the experience of a lot of people posting here - never had sleeping/feeding/behavioural issues/language delay or anything that set alarm bells ringing, until he went to school and they highlighted concerns about withdrawn behaviour, poor fine motor skills etc. I have gone over and over and over his first four years in my mind trying to decide whether I am just in denial, but I really don't think I am.

Yet I do agree that DS displays autistic behaviours at school, because I've witnessed it (find it very hard to witness too) and he definitely does struggle with the whole socialising in the playground type thing. But outside of school - no issues whatsoever. He has me baffled!

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ouryve · 13/09/2009 21:51

My two are and have been so different in so many ways.

DS1 (diagnosed at 3.5 with autism with associated ADHD as well as associated sensory issues, ODD, and hyperlexia and some degree of dyspraxia) was (though I'm sure I've missed loads out)

-wired from birth. From day 1, he couldn't settle without noise. Even before he was born, I'd be kicked until I felt sick if he heard a rustling or crinkling noise!

-Was on the move very young, crawling round on his belly at 4.5m and pulling himself to standing at 7m.

-all the same, he didn't sit until he could stand (his big head just lolled over) and he started walking independently on his first b'day then stopped again a month later. He didn't start again until almost 16 months and then ran!

  • Had horrible nursing relationship with him. Despite efforts, never had a good latch and I constantly had cracked, bleeding nipples. Numerous nursing strokes when he'd bit me. Weaned abruptly at 18 months, yelling "no!" when I offered.


  • Not cuddly. Even hated baby massage.


  • obsessed at 9 months by the 2 digital clocks in the kitchen and couldn't eat if they weren't exactly synchronised.


  • couldn't get to sleep without being swaddled - we managed to ease him into grobags at 9 months when the weather got too cold for when he inevitably came unwrapped as he fidgeted.


  • speech seemingly on schedule, but didn't communicate needs, only labelled.


  • Echolalia and a lot of babbling.


  • Selective mutism - hardly any speech at all for his first 2 terms of nursery, even though he had a huge vocabulary at that point.


  • obsessions with anything shiny with buttons and with switches


  • fearless climber. Now scared of climbing on unsteady surface.


  • a love of wet messes.


  • but hated having dirty hands.


  • Number recognition at 14 months. Counting with me at same time, even though he couldn't say the numbers.


  • recognised logos from very early age


  • reading words by sight age 2


  • writing own name at 2.8


  • stacking blocks at 9m. By 1 year, everything he could get his hands on was lined up.


-Horrible, violent, hour long screaming tantrums starting around 18 months.

  • deeply hostile reaction to new baby brother age 2.5. Went from hard to handle and calm to having me in tears regularly.
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ouryve · 13/09/2009 22:19

DS2, 3.4 (diagnosed a year back with autism)

  • extremely placid baby. Passive, in fact.


  • tactile - always rubbing surfaces. still insists on rubbing my arms for comfort.


  • at first hated bare feet. Quickly grew intolerant of anything at all on his feet. Only started to tolerate shoes a year ago and then would take them off as soon as he was home


  • ripping all his clothes off by 2 years.


  • sensitive to loud noises


  • petrified to the point of hysterics by the opening of Razzledazzle with the big slide.


  • low muscle tone as small baby. took a long time to gain head control


  • motor delays. Not sitting till past 9m. Not walking till 20m.


  • refused to self feed until 18m. still doesn't use cutlery


  • on same note, no interest in mark making till 2y. Still doesn't care for it.


  • didn't play "properly" with toys. Just threw things around.


  • no imaginative or symbolic play at all until very recently


  • apart from occasional temporary explosions, which soon receded, limited language development. Gets what he wants by arm pulling. Has only recently begun to gesture.


  • horrible, horrible sleep patterns from about 1 year to 20m. Would wake around 1am for a feed and not get back to sleep till 4am, and then only if DH took him downstairs away from me (just in time for DS1 to bounce out of bed at 5ish).


Again, far from exhaustive, but it wasn't until about a year that we started to think we hadn't escaped after all and about 20m when we said enough was enough and contacted our HV for a referral.

Leonie, although we did the HV referral, we'd already raised our concerns to Owen's paediatrician that things weren't quite right, so she was very quick to act on the referral once it happened and set things in motion. We were receiving portage visits long before his diagnosis was finalised. It's probably worth you talking to DD1's paed at your next check up.

I know that with current knowledge, 18 months is about the prime time for predicting obvious signs via the CHAT, but research is being done on early red flags.
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ouryve · 13/09/2009 22:26

Forgot - getting DS2 onto solids was quite a shock. He wouldn't accept anything until almost 9m and then it had to have a rough texture, since he gagged on smooth stuff. Weaning involved an awful lot of crumbled rusks and weetabix to get him to accept stuff. Come 18 months, he began to reject almost anything except a few crunchy foods plus bananas, ready brek and weetabix (which he now hates).

(after a lot of persuasion to taste it, he wolfed down M&S rhubarb crumble for pud, tonight - I think I'm going to have to fill my freezer with it!)

DS1 by contrast has loved almost anything put in front of him (except avocado!) from the start. He stuffs food in his mouth. He has only just begun to find certain foods distateful, craving simple, fresh food with lots of fruit and veg.

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LeonieSoSleepy · 13/09/2009 22:53

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mysonben · 13/09/2009 23:30

Thank you for all your replies,as usual i see there can be a fair amount of variation between all the children. Nothing is set in stone when it comes to asd is it!

Amberflower, I know only too well what you mean when you say:
"Yet I do agree that DS displays autistic behaviours at school, because I've witnessed it (find it very hard to witness too) and he definitely does struggle with the whole socialising in the playground type thing. But outside of school - no issues whatsoever. He has me baffled!"

Not that my DS only display asd behaviours at nursery, but more like that these behaviours are much more obvious at nursery in his case i would say.
And the few times that i have been to help and watch him there, i have sometimes trouble understanding why is he acting this way? why does he do this? ...
Maybe it is that i'm just used to seeing DS's behaviours every day and that i don't notice much until he is around lots of NT children where it suddendly becomes quite obvious i yswim?

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ouryve · 13/09/2009 23:30

Go on. I may even reply ;)

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LeonieSoSleepy · 14/09/2009 07:59

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LeonieSoSleepy · 14/09/2009 12:30

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amberflower · 14/09/2009 14:47

mysonben - I am sure being around other NT children does exacerbate things. That said, it seems that my DS only behaves in this way in school! I watch him at his swimming lesson every week - absolutely 'normal', you would not pick out anything, listens to the teacher, keen to join in, etc, etc. Take him to Legoland or similar - fine; any other kind of group activity like a party - fine, other than tends to put hands over ears for singing of Happy Birthday . So for him it's not even a group thing as such - it is a school thing. I, too, find myself observing him at school thinking 'why are you doing this, you don't behave like this anywhere else'.

The only thing we do really notice - anywhere - is that DS talks quite loudly, and can sound quite 'innocent' and less streetwise than his peers, even though his speech itself is perfectly normal. Which I think is an Aspergers thing from what I read...although his social interactions are normal - doesn't talk 'at' people or obsess about his interests for example.

Leoniesosleepy - big hug to you - I find myself in tears regularly over the social and academic concerns we have with DS and I am so aware that they are mild in comparison with many others. I think any worries about your child just break your heart.

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LeonieSoSleepy · 15/09/2009 07:58

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