Calling all mum's of dcs with AS / HFA come and say Hi!

[SammyK]

Just thought would be nice to see how many of us there are and get to know each other a litle?

DS is 4, 5 in Oct, and as yet still not dx'd (waiting for EdPysch then will go to panel). He is very much an aspie, we have had verbal confirmation from Paediatrician that he is on the spectrum, and is very quirky and cute! He likes Doctor Who, Thomas, and WallE. He does not like toilets, loud noises or changes.

Anyone else about?

[HelensMelons]

Nyrrem, I know what you mean about grandparents and their inappropriate ideas. I think my mum got some insight when I told her what happened at summer scheme but dp's family ..... hrrrumphh! I offered my sil one of the leaflets I was given about adhd because it gives some ideas on how to manage, etc and she said "no thanks, you keep it .." Well, swearwords come to mind.

My ds2 (asd)is a different child without sleep bubbla - he is much less co-operative and hard work. Sleep definitely makes a big difference.

[Nyrrem]

How rude of you SIL! It's that kind of thing that makes me crazy. That, and at the other end of the spectrum, the enthusiasm to find a miracle cure. In the end I said "This is who he is, I'm trying to love, accept and respect for who he is." The relative in question almost went cross eyed with confusion. Perhaps if I hadn't been so angry I would have added some stuff about managing etc.....

[daisy5678]

Hi...

I have J, who is 7 and was dx'd ADHD at 5, and dx'd with autism and sensory processing difficulties at 6. He is academically bright but very delayed in terms of 'real-world' intelligence, psych describes him as being 'severely impaired functionally' and in terms of behaviour and social skills, is delayed/ severe, but he wants friends and social contact so that's a plus.

He's in mainstream school with a full-time 1:1 TA through a Statement which has taken years to perfect.

On the bad side, he's very violent, aggressive, angry, manipulative, rude etc. etc. at times. But on the plus side, he is very 'eccentric' and hilarious, often very affectionate, very creative, very caring and very very cute. I would do anything for him .

[NorksNappiesAndNowtElse]

Ello.

Tis Flamesparrow. DD is 6 and I am 100% certain she is not NT, she has many AS traits although is not as extreme as many iyswim. Comm Paed says AS is a language issue and therefore cannot be assessed until she is at least 7/8. He is a moron and I gave up taking her

Very pedantic, a few things she needs (her chair in the right position etc), loves HSM (all of them), Mickey Mouse and Care Bears. Her classmates have started picking on her for things like care bears

Very unsettled with changes, hates hand driers, certain texture clothes etc, and people she doesn't know well or who don't act how she expects.

Her differences with her peers are becoming more noticable. She has one friend in particular is fine with her outside of school, but steers clear of her at school. She is a very nice girl, but even I can see how DD would be embarrassing to her

[NorksNappiesAndNowtElse]

Oh my mum and sister support us (due to DSis and DD being a little matching pair!) and agrees with AS. DH knows she isn't "the same" but doesn't seem to want to label her so won't read up on it.

My dad and PIL are the type to think of it as just pandering to a picky child, so tend not to mention it.

[pinkchampagne]

Can I join in? I don't have a dx for DS yet but have his ADOS test a week today & I suspect he will be AS.

My DS will be 10 next month but is very immature compared to his peers & isn't at all independent. He appears lathargic & shows little enthusiasm for anything (never wants to go out etc) unless it is computer related. His latest obsession is Club Penguin & he carries his puffle around everywhere if he is not on the pc!
He still struggles to use a knife when eating & his handwriting is very poor (pretty much infant style.) He struggles to socialise, especially in large groups so parties & big social gatherings are a nightmare. He doesn't tend to get invited to many parties anymore. He wants to do what he wants to do if he does have a friend round, there is no give & take!

His language is ok, but still very immature & he will often come out with very random silly comments. He also is a very anxious child & has a big bee & wasp phobia which was so bad I couldn't get him out in the garden a few months back.

In school he struggles & his concentration is very poor. I dread getting the school report.

DS's difficulties were first noted when he was around 3 years old at nursery but we are still awaiting a dx. Dreading next Tuesday though, even though I have known in my heart of hearts for years, it is the having it all confirmed that I don't feel ready to cope with.

[debs40]

Thanks for starting this thread. It is really helpful to see how many people are out there dealing with similar issues.

My son is 6. He is undergoing assessment for social and communication difficulties, possibly AS.

He has sensory issues relating to clothes, smells and tastes. He will frequently gag when we go to cafes, supermarkets where there is a smell he dislikes.

He only eats about 3 or 4 different meals. Fortunately, he east plenty of what he likes!

He has routine issues about clothes - will only wear three pairs of pants (all identical) one type of socks, a couple of t-shirts and one type of trousers. When we find somewthing he likes, we buy several! All good advice from here.

He constantly licks his hands and fingers and chews things.

He likes to play with children but is finding social communication more difficult as he gets older and the differences become more apparent between him and his peers. For example, he is easily led and will lash out if teased. This caused problems at the end of last term.

He hates change. Not looking forward to how he will handle a new class next term

He is affectionate and loving to me and his dad. He's not too sure about his little brother

[pinkchampagne]

My DS chews things too, and he has issues with certain loud noises & smells. He will often put his fingers in his ears or his top over his nose!