DD has been crying for two days

[JakB]

Solidly... And I mean, solidly. Even when eating/drinking etc... Took her to the docs this morning and he couldn't find anything amiss (ears fine). However, in retrospect, I think maybe he thought, 'she's autistic so she's just doing her autistic thing' (dunno about you but many a professional I come across presumes that all autistic children 'tantrum' constantly). I explained that this is very un-dd, that it is a proper pain cry. No other indications to suggest what's wrong and, of course, she can't tell us. Taking her to casualty tomorrow and going to demand tests etc. DH thinks she may have swallowed something? Heeelllllpppp. Has anybody come across this? It's as if she can't get comfortable, doesn't want to be hugged, tossing and turning, can't get to sleep. Pain relief has no effect. Only asleep because of mega melatonin dose and up in the night crying.
Jimjams- haven't done the washing machine yet honey but will do I promise

[Davros]

You should have been there at our opthamology appt! Holding up a card from a distance and trying to get DS to say what it is!!! Actually they were very nice and managed to test him reaonably well but it was quite funny!

[Jimjams]

Just caught up with this- so pleased it's all better. ROFL @ "has she pointed to the area in her mouth where the pain is". They're still not doing any autism training in med school them

[JakB]

Thanks for all your support! She's upset now but inbetween stressy messy times the old dd (smiling, making dolphin noises and sideways dancin')

[Merlot]

Cant believe I missed this thread! - what an absolutely awful time you've been having JakB. You must have been tearing your hair out over dd . So glad that you have got to the bottom of it all now. It is just so awful watching your child in pain and feeling so bl**dy useless.

[soapbox]

JakB - so glad she is better - have been following your thread.

The poor poor thing - she must have been really in pain

Poor you too - how awfully stressful!

[heartinthecountry]

So glad it is sorted JakB. Though it must have been horribly painful for your dd I expect you are a little relieved that there was a real 'reason' for her crying. And thank god for ABA and all those detailed notes hey?

[JaysMum]

awww....just so glad all is well.

[beccaboo]

Hurrah! So glad to hear this. Hopefully she'll be on the up and up now.

[motherinferior]

Oooooh, glad she's better!

[maddiemo]

Glad it went so well.

Well done JakB dd{smile]

[chonky]

Oh JakB, I'm so glad she's home Glad things are getting back to 'normal' - we've missed you!

[JakB]

Hurrah! Home and dd is calm- at last. Hospital were fantastic- she got her own room and went first on the list. Got a special spray for her mouth and we're pureeing everything for her and she's already happier.

Funniest quotes...
Doctor 'I've been reading her notes. Does she have a "little bit" of autism?' (!)

And 'Has she pointed to the area in her mouth where the pain is?' (!!!!!)

Anyway, so relieved. They said that whatever the foreign body is had worked its way out but they have cleared away the scar tissue etc and checked her teeth at the same time.

Thanks for all your support. Hopefully, life can return to normal (whatever that is!)

Sorry I've not had chance to support anybody else X

[katierocket]

ah - that's awful, poor dd. At least you've found out what it is now.

[lunavix]

Oh poor little dd

[Blossomhill]

Oh honey, how awful Poor little mite. Loads of hugs Blossomhill xxx

p.s. don't tell anyone you've seen me I just had to post on this one...

[JaysMum]

Thinking of you and little JakB jnr....hope all goes well....keep us posted.

[maddiemo]

Ouch, poor poor little dd

I am so glad for you that you now know what caused her distress. I do hope it goes well with GA and hospital.

Oh, I really feel for all of you.

[motherinferior]

Oh sweetie, just spotted this (and I am so sorry about the funeral too). At least it's spotted but how VILE. Hugs. xxxxx

[ScummyMummy]

Oh Jakb. Poor little dd. Hope they can get her mouth sorted out asap. Silly ent people- how can they have failed to spot it?

[JakB]

Well, we have got to the bottom of it. DD's therapist and I trawled through her notes the past few weeks and worked out that the crying started the day she started trying to eat the fireplace (!). So we thought, it's got to be her mouth. I looked in her mouth, not just teeth and gums but tipped her back, and sure enough there's something lodged in the roof of her mouth and the area all around is inflamed. So painful. So, back to hospital AGAIN. Docs at the children's hospital very sheepish that they didn't spot it. Up to ENT, saw three chaps there-general anesthetic tomorrow to get it out. Poor little chick. Been in agony and not been able to tell anybody. So relieved to have found the source of the problem. At hospital 7.30 tomorrow- will let you know how it all goes. JakBXXXX
ps Going to have to be so much more vigilant from now on- don't really know what it is, could be grit or anything. DD eats everything.

[ThomCat]

You poor things.

[heartinthecountry]

Huge amounts of sympathy JakB - I would be at the end of my tether I think... no advice, just hugs.

[maddiemo]

Sorry she is still so distressed, hope therapy can bring her back on track.