I've written a thesis for DD's DLA application

[Friendlylightupbear]

Is that ok?! First one I've done. She's profoundly deaf, so the questions related to hearing, communication, keeping her safe, and development I've gone into extra pages and really elaborated. Is it better to keep things concise? I haven't sent it off yet so have time to change it. I've got a fair amount of supporting information too. Going to need a ring binder

[Friendlylightupbear]

Thank you all js that's brill thanks

I think it's ready to go, the only thing I'm worried about is the lack of supporting statements/evidence I feel like I have... I have a letter detailing her hearing loss and saying that she's profoundly deaf, and one supporting statement from her audiovestibular consultant, that is really strong and details all the things she will need extra help with etc, so that's great, but I've nothing else and i know a lot of people in our situation have a lot more (salt assessments, audiograms [the nature of dds hearing loss means we can't get a reliable audiogram]). I hope it'll be enough.

[JsOtherHalf]

Anything here help?

www.ndcs.org.uk/family_support/financial_support/disability_living_allowance_dla/making_a_dla_claim/index.html

[coffeemachine]

they said she needs help with communication (true) but it is not enough to warrant DLA (she was 3 and totally non verbal).

may be worth checking the Cerebra guide though.

I think a lot has to do with luck and who looks at your claim. If I look at my friends with ASD kids in DLA, I can tell you there is an awful lot of inconsistency. seems also that a lot if first claims are refused. if that happens, do not lose heart but persist and appeal. It is all a marathon, not a sprint.

[LouKout]

I wrote about 20 extra pages for dD and got HRC and HRM. She has very high needs though.

[Friendlylightupbear]

Thanks f1ip, that's really helpful.

Coffee that's awful did they give you any reason why you were rejected first time? I'm glad you got there in the end but bloody hell that must have been stressful i haven't used the cerebra guide, I've used the national deaf children's society guide, which has been really helpful.

[coffeemachine]

I write about 30 pages for DD's. she has autism and severe LDs and we were rejected. I dont think anybody else even skimmed through it. We got it eventually after reconsideration and appeal but it took 8 months.

We are due to renew soon and I plan bullet points.

have you used the Cerebra guide?

[Friendlylightupbear]

She's 14 months and she has BTE aids, but they don't seem to be making any difference to her hearing. She's severe-profound with ANSD, and she's under the cochlear implant assessment process. Thanks very much for the tips, I think we've covered most things that you have said, except for the road danger, as she's still only little, but I will mention is as something we will have to look to in the future as she gets more independent.