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Anyone have child with sensory sensitivities pls talk to me?!

80 replies

Purplerainbow2 · 12/03/2016 18:14

9 yr old ds1 has ASD (hf) with sensory sensitivities. The sensory issues have got worse with age. These last couple months has been hell. January he missed a lot of school saying clothes were irritating him. Mainly shoes, bought lots of shoes. Settled for a pair. School were good say he could wear what he wanted to get him in. Attendance board were involved ..... Sorry trying not to make this really long.... Anyway beg of feb I thought we were over the worse. Going to school every day. Then last week of term in February he was harder to get in. Then half term hit and he wouldn't leave the house for anything. Stayed in pjs and I was stuck in with him and ds2. Then managed to get a pair of joggers and only wearing them, slipper socks and a vest. He wouldn't go anywhere even in the car. School gave me a bit of work to do at home. Esbas have been round twice. This week gone for few days he has been coming with me to get ds2 from school (even tho we should walk) but in the car and he will sit in car whilst I get ds2.

Had meeting yesterday with school and esbas (school have done my head in but that's another thread I have on here!!) they have said on Monday tell him ASD co or donator will meet us at home and walk to school with us and that I'm going to work in foundation stage (their thinking he might feel safer/more willing to go if he knows I'm there) so he's all up for Monday, reckons he's going which is great but I know he won't. He is wearing the same clothes. I suggested we went to sports direct to get a size bigger trainer (as his slipper socks obv too thick to wear in trainer he has) he was up for that. We were sps go after dinner. He comes to the table starts yanking on his vest, crying saying it's irritating his armpits. Goes upstairs crying. Then decides he will come to shops.... Tries on various tops crying, shouting, ripping them off, saying they are irritating the crease of inside the elbow. I'm at my wits end. 4 weeks he's barely left the house. This means I can only leave the house when dh is home. I can't cope with it anymore it's so stressful. He was sps go to Camhs apt Friday but had same issues, spoke to her on pone instead. Next apt is after Easter!! Everyone keeps saying to me you've got to get him out of this cycle. I know!!!!! But I can't!! Has anyone been though this??

Tia sorry to rant

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PolterGoose · 17/03/2016 07:18

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Purplerainbow2 · 17/03/2016 08:16

He doesn't want to be HE he wants to go to school. That's what's making it so hard. He has no work from school anymore. They say it's giving him the choice of being at school and that it isn't a choice. The head emailed me back last night and said 'maybe I should make a referral for flexible home tutor' or something along those lines. No doubt it will take Months even if she does

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PolterGoose · 17/03/2016 08:26

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PolterGoose · 17/03/2016 08:27

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Purplerainbow2 · 17/03/2016 08:49

I have read a lot about PDA over the last year and a half, as I said earlier I mentioned it to the paediatrician (waste of time) so I do understand what it is. This doesn't help me to help him though.

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