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Here are some suggested organisations that offer expert advice on special needs.

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Here are some suggested organisations that offer expert advice on special needs.

SN children

DS has been awarded DLA!!!!

32 replies

BeautifulLiar · 26/11/2015 12:47

I can't believe it. Feel like we don't "deserve" it as he's now 7 and we're so used to his needs that I just thought it was all kind of normal (he was only recently diagnosed with ASD, and is my first child and only boy, so I didn't really know what was going on).

I've enrolled him in swimming lessons which he's very excited about and also at Beavers which he doesn't yet know about! I'm also going to use the backdated lump sum on going on a Haven holiday. We couldn't afford these things before.

What does everyone else use their DLA for? :)

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BeautifulLiar · 03/12/2015 21:38

Thank you x

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happyjustobeme · 03/12/2015 14:12

We use DS' DLA to part fund his ABA.

Sirzy · 27/11/2015 17:53

I used some of the money for Merlin passes as we live near the Lego discovery centre. I am a single parent and Ds an only child so I only had to pay for his as I got a free carers one

BeautifulLiar · 27/11/2015 17:34

Thanks for answering, Herrena :) I really want to get a zoo pass but he's scared of most animals so would be pointless really! DH bought bikes and bike trailers back in June actually :) they're ace!

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HerrenaHarridan · 27/11/2015 17:11

I use my dds dla to help with the extra running costs of driving a van with a toilet so her toiletting needs are not so restiricting, I use it to pay towards sports, yoga and dance clubs to compliment her Physio.
I have used to buy bike trailers, buggies (city and off road) slings, scooters and bikes all to giver her as many transport options as possible.

I also use it pay for a zoo pass and to treat her and myself sometimes because our life is ducking hard sometimes.

When we got a back dated payment after appeal I treated her to a projector (we didn't have a TV at the time so all cartoons were on the laptop) and myself to a fancy hand blender /whisk thing

BeautifulLiar · 27/11/2015 16:57

Thank you Suze. I'm hoping to get him some therapy for his dog phobia but can't find anything

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Suze012 · 27/11/2015 16:56

We use it for my son to attend an early years centre in Bridge of Allan called 'speur Ghlan' they use a therapy called pivotal response therapy.

BeautifulLiar · 27/11/2015 13:57

I was going to say that earlier; it's recognition that they do have additional needs that's such a blessing :)

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Fourarmsv2 · 27/11/2015 13:37

DS1 had a similar condition - could have claimed for him but didn't.

Actually wasn't worried about money - for me it was the recognition surrounding the award. Hence complete disbelief that they awarded middle rate.

BeautifulLiar · 27/11/2015 12:41

Wow, feel quite lucky tbh. Could kick myself though, my hairdresser has been saying for years about a client of hers who claims DLA for her son with autism and I didn't believe her!

Sirzy DS is terrible with games, I've had to take some off him!

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Sirzy · 27/11/2015 12:31

He mainly likes looking at maps on it and then I have some educational apps and some calming type ones. He isn't interested in gaming yet!

Sounds like it is until he turns 16!

BeautifulLiar · 27/11/2015 11:04

He turned 7 in August, so yes it's until he's 16.5... but your DS is 9? Is there much difference?!

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Fourarmsv2 · 27/11/2015 10:58

Is he 6 now? Might be until he turns 16. DS2's condition may improve hence limited time.

BeautifulLiar · 27/11/2015 08:00

Sirzy - Ds used to like using my ipad before it broke. But I don't like the idea of him constantly playing games etc - or do you just get educational ones?

The letter says something about 28/02/2025... but surely it can't be for ten years?!

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Sirzy · 27/11/2015 06:50

The letter should say how long the award is for.

I have just used some of Ds DLA money I have been saving to buy him an iPad - Black Friday is great - because he uses mine so much and gets so much from it.

Fourarmsv2 · 27/11/2015 06:46

There's a bit in the letter saying when it expires. It was a reconsideration letter so they justified their reasons. The award letter will follow separately.

It's quite a useful document as it lists his issues.

BeautifulLiar · 27/11/2015 06:42

Same! Sorry how do you know it's for two years?

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Fourarmsv2 · 26/11/2015 22:03

Me either, considering last week it was a no! Was expecting an epic battle. Awarded for two years as well :)

BeautifulLiar · 26/11/2015 21:32

Congratulations fourarms :)

I couldn't believe the quick turnaround - I posted the form on November 6th and they sent the award letter on November 18th!

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Fourarmsv2 · 26/11/2015 21:09

I was about to post the same thing!

Applied on the 11th. Turned down with no reason given. Asked for reconsideration. Got MRC.

Absolutely shocked.

DS2 is 9. It was all continence based for us. Can buy him new mattresses as required now and pay for an EP assessment :) :) :)

BeautifulLiar · 26/11/2015 19:51

Thank you choc, good idea

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chocadd1ct · 26/11/2015 19:25

really depend. income, number of children, childcare costs etc.

you can have a play with the tax credit calculator and see if/how much the figures change.

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BeautifulLiar · 26/11/2015 18:28

Thank you. DH now earns about £27,000 ish so I'm not sure if ours would go up by that much?

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AliceInUnderpants · 26/11/2015 18:13

We get lrm and mrc for one and I'm sure the TC went up about £50 a week

BeautifulLiar · 26/11/2015 17:43

Ok i feel less guilty now Alice!

The car we have now was bought as a gift four years ago. We'd never be able to afford something on finance without this.

Do you mind telling me how much your TCs went up by? Or is it dependant on income? I did ring them and they said they will let me know what is happening

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