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DS2 - Opinions/advice please

30 replies

mankyscotslass · 30/08/2013 09:24

DS2 was born 5 weeks early, but was ok after an initial 3 days in SCBU.

He is now nearly 8, and things have niggled about him for a while.

He was slower to talk and has speech therapy, but was discharged from that by the time he was 4. He walked at 15 months so not really late. He cannot seem to walk anywhere, and has to be running/skipping jumping, hopping all the time.

He is bright and interested in everything, can tell you all about cars and computer games and remembers facts about football, even friends registration plates. He remembers events that happened to him from years ago. Confused

He thinks everyone is interested in whatever he has to say, and will interrupt conversation to tell people things totally unrelated to what they are talking about, despite being told it's not appropriate, and will often continue with what he is saying, as if he has to get the words out or burst. Often the only way to get him to stop is to drag him away. Blush
He struggles to make his sentences concise when talking, and its sometimes as though he struggles to get the words he has in his head out, so there are sometimes gaps in his speech as he thinks about what he wants to say next. He usually starts by saying "do you know", and then has to think about the response when the other persons says "no, tell me".

He is accident prone, and seems a bit uncoordinated, though his child minder does not think he is worse than a lot of others she has seen. PE is not his strong point, though his is very flexible. He is possibly slightly Hypermobile, but nowhere near as much as my DD. He is mostly left handed for writing, though is fairly ambidextrous, and depending on task will switch hands comfortably.

He is doing OK at school, but his handwriting is shockingly bad. The teachers have said his handwriting and inability to be concise are holding him back, as is the speed of his work. They are frustrated because they see so much potential in him. They say his vocabulary and understanding are very good for his age. He got a 2b for writing, 2A for reading, 2A for maths and a 3 for science in his year 2 SATS. His teacher told me that if he had better handwriting and pace he would have been a 3 across the board. School however are rubbish and because he is doing ok they wont investigate or do anything else with him, other than try to give him more writing practice.

Socially he has plenty of friends, but he gets upset very easily if someone doesn't share or says something "mean" to him. He cries to the point of hysterics when this happens, but calms down quickly and once calm seems to move on from the incident very quickly. He has a lovely sense of humour and is very tactile and affectionate, of the 3 kids he is the one who can drive me made but also reduce me to tears of laughter.

I'm at a bit of a loss, because each thing on its own is not a concern, but together the put a picture in my head that niggles. I have two other DC, and I just have an itch that something isn't quite "right".

Where do I go from here? School will be useless, judging by friends experiences, though they have recently changed SENCO. But I am not sure a doctors appointment is the way to go.

Sorry it's so long, but it's taken me ages to actually put what I am thinking on paper, and reading it has actually made me realize that there is probably something going on. I'm thinking Dyspraxia/Aspergers?

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senvet · 29/03/2015 19:07

Keep up the good work - it is not too early to be thinking about secondary. Round here we go round schools in Autumn of year 5 and then again in year 6 to confirm ideas and thoughts.

The clearer the picture you have by this Autumn, the easier it will be for you to assess the school's ability to meet dc's needs.

I can add to the stories of successful adults with ASD, My relatives are 1) living independently and volunteering at an autism - did a sky dive for her birthday 2) married earning paying taxes etc 3) just finishing carpentry at college.

They are all happy

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mankyscotslass · 29/03/2015 21:26

I have just emailed an outline of the c outcome of Fridays appointment to school. U know if they need the letter from the consultant to do anything but at least I have a paper trail of my communication with them to refer back to. I am pretty sure school will hate me. Grin

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mankyscotslass · 30/04/2015 07:45

I got the report from the Community Paediatrician this week - it's quite detailed, and difficult to read but the conclusion is informative.

It states he is a fit and healthy boy with a range of neurodevelopmental difficulties comprising of difficulties with social communication, motor coordination, attention/concentration and sensory processing. His main issues are impairments in communication, social interaction and flexibility. She goes on to say she feels DS will benefit from a full multi-disciplinary MAAT assessment. She concludes by saying "I strongly recommend school arrange a referral to Pupil Support for CLASS (Communication, Language and Austistic Spectrum Support). The Class team will provide useful recommendations and advise in addition to gathering information to support a MAAT referral. It is important school and parents are aware of the neurodevelopmental nature of Mankyboys issues"

School has been copied into the letter, so I am leaving it a few days and will contact them next week for a response. Given how they have stuck their head in the sand for years I am not hopeful, but we will see.

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mankyscotslass · 12/05/2015 13:58

School have sent off the referral that the Community Paed recommended!!

I am Shock

I read and signed it before it went off to the team.

Fingers crossed that they will agree to come into school to assess.

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notsomanky · 28/11/2015 14:46

Just an update - The CLASS team went into school in October, and I got a copy of their findings from school 2 weeks ago. I called the CLASS team to confirm some of their findings, and theytold me school had had the report within 4 days of the visit - but had not sent it to me for a month! Angry

They are referring him for a full MAAT assessment.

We have an appointment in December at the same clinic that wanted CLASS to go into school. So things are moving, though it is now unlikely we will have any definite answers before we need to apply for secondary school next October.

I emailed school confirming receipt of the report, and listing the action points the CLASS team have recommended be put in place. I asked school to confirm my understanding was correct. Have I had a response? NO!! Angry Angry

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