Dd 13 has developed joint pains and weakness after taking a drug for her acne. This has been going on since October last year and no medical reason for it has been identified. Last weekend she got considerably worse and can now barely mobilise at all even on her crutches. She has always been quite stoical about it but is now fed up and complaining of being in a lot of pain.
Paed reckons it may be psychosomatic because of the 'difficult home situation' ie Ds's disabilities. He has referred her to a psychologist - the waiting list is over a year.
Yesterday I phoned the paed again and he did phone back. He wants to admit her as an inpatient to do further tests, physio, get a second opinion and bypass the waiting list by getting her to see the ward mental health worker.
Now I am glad something is being done, but I feel quite upset about the thought of my little girl who has always been the ok one being in hospital. It is so sad to see her struggling and she is mostly very brave.
I think myself that it doesn't seem psychological but if it is I am doubtful about effective treatment being available. And if it isn't I am terrified about the possiblity of her having a long term disability even though I should be used to that and accepting.
I phoned the SENCO at school today to ask for some quite minor adjustments to be made for her and got a load of patronising stuff. SENCO: Have you told the paediatrican about her deterioration?
Me: Yes I have just told you that I have and what he planned to do about it.
SENCO: Bottom shuffling (which is what she is doing to get around the house at the moment) is bad for her psychologically.
Me (thinks): Maybe but is being stuck in one place any better? AArrggh.
All this on top of all this Ds is stressing about finishing course work and exams. I have been pretty unwell myself with whatever mystery illness I have and DH is being worse than no help at all.
Can I resign?
Sorry that was long.
Rant over (for now).
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Don't know if I need a rant or a moan or a honk but here goes.
36 replies
NoHaudinMaWheest · 23/04/2013 20:20
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PolterGoose ·
25/04/2013 21:54
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justaboutalittlefrazzled ·
26/04/2013 05:04
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