My Ds (7) has had development and language problems noticeable from a very young age. Due to our concerns with his language and the fact that we have a family history of autism, he was monitored by a paediatrician from quite a young age and the formal assessment for autism diagnosis was started when he was 5.
However, since around the age of 5, he has developed really well, much better than anyone expected. The language has dramatically improved, along with his behaviour, and academically he is only about a year behind the class average for his age. His paediatrician, speech therapist and one of his teachers have all told me that he does not bear the trademarks of autism, ie. he is affectionate, imaginative, shows emotion and humour. He changed paediatricians around age 6 and the new paediatrician, who had not seen him when he was presenting with major concerns, immediately dismissed any need for further assessment and at the time we were very happy with this as we didn't want him 'labelled' unnecessarily.
As parents, although we are truly happy that he has made positive steps in his development, still have some concerns for him. His speech, although he has a good range of words, is often muddled and difficult to understand. He also gets extremely fixed on certain interests to the point of obsession and it is very difficult to sway him off these subjects. He will talk constantly about his favourite subject, even to random strangers. He doesn't have the realisation that other people do not share his interests and he also has no realisation that other people perceive him as weird or strange.
He also appears young and babyish compared to other boys his age, other children talk to him condescendingly, as though he is very 'dim'.
He is a very sociable little boy and would love to have a large group of friends although his social skills are very lacking, largely due to the fact his conversational language skills are very poor and because he struggles to understand what the other children are talking about.
The other main area of concern is his diet which is limited to the extreme, (ie, the same sandwiches for breakfast, lunch and dinner).
I need help as to where to turn next...the paediatrician has said that he is fine and doesn't need a diagnosis and that he definitely won't be diagnosed with autism as he doesn't fit the criteria. The speech therapist has discharged him because she has seen him through the essential basics and there is not enough funding for further help. We have tried going to social groups for children with language problems but the other children there attended special needs schools and their needs were much more severe than my DS so he didn't really fit in there. I want to get him as much help as possible because he is starting to get anxious and depressed the more he struggles with other children socially and the more aware he is of being different to them. Advice please.
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If he's not autistic then what is he...? (bit long, sorry)
10 replies
LittleBonnie · 19/02/2014 22:18
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