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Relationships

My Mum is dying and I am not sure what to do.....

33 replies

Geoff0409 · 24/07/2014 13:15

We have found out 2 days ago that my Mum is dying. She is 57 years old.

She had cervical cancer 2 years ago and had drastic treatments such as Chemotherapy, Radiation and the radioactive implant that you can have. She was remarkable through it all, and after months and months started to seem a bit better. The tumour that she had did severe damage to her kidneys and kidney function.

She was due to go into hospital just over 2 weeks ago to have some tubes changed that help her kidneys. She wasn't well enough to get in the car and couldn't breathe properly, so my Brother was there and called an ambulance.

When Mum went in they said there was fluid on her lungs, and they thought an infection had got in and built and backed up fluid. When they started to drain the fluid her lung wouldn't reinflate, so that is when the tests and scans started. The fluid had shown cancer cells in it.

When they have done the scans, there are lumps on both of her lungs and also on her liver. Because of many, many issues, no treatment can be offered. The Doctor was extremely kind and my Mum even said thank you to him and shook his hand. She was the strongest out of all of us (Mum, Me, Dad and Brother). They have no idea how long she has left. My Wife made a very good point that it is actually better that we don't know exactly when, as we don't have part of our focus on a date in the future. We are just taking each day as it comes.

A Macmillan Nurse spoke to Mum yesterday, and said something along the lines of "when we come to see people, they usually have a certain amount of time left, and yours is one of the shorter ones". At that point Mum cut her off and asked her to come back another time.

Mum has never drunk or smoked and this all seems so bitterly cruel.

So far the worse thing I have had to do is tell my Nan. We are very close and my Mum is her only child. Although we knew Mum was very ill, confirming it to her was the hardest thing I have ever had to do, and I wouldn't wish it on anyone. My Dad is not so good at the actual talking about it, and I hope to ease the pressure on him regarding it.

Mum and Dad wanted to put a big extension on their house, and me and my wife and children were going to move in. The Doctor asked my Mum if she would prefer to die at home or in a hospice and she said "I would like to go into a Hospice. My Grandchildren are going to move in, and I don't want them to grow up in a house that I died in". This broke my heart. She also said to my Dad yesterday "I'm not going to see my Babies grow up". This is very, very hard to take.

What worrries me more than anything is how my daughter is going to react once Mum is gone. My daughter is very close to her (my Son is too, but he is younger and I don't think will understand until later on), and while they know that their Grandmother is in Hospital, both my Daughter and Son are blissfully unware of what is happening. My Daughter is 7 and my Son is 3. I do not want them to know anything at all until afterwards.

I just don't know what to do. Up and down like a yoyo of emotions. Seeing Mum's physical health deteriorate is one thing, but seeing the mental torture it must be causing her is absolutely horrific.

Sorry for the long post, just sometimes helps a little to get it off my chest.

OP posts:
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wallypops · 25/07/2014 05:48

My mum died of cancer when I was 7 and while I knew in my heart of hearts she was dying everyone denied it which was the worst betrayal. Also it meant I never got to say goodbye. We have also never talked about it as a family. Because it has always remained too raw. Do tell your kids as soon as possible. I've never quite got past the lies. After she dies talk about it and get your dad to too. It is the best recovery process possible. I've since lost a sibling and that was easier to deal with because we talked about it.

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Stuffofawesome · 25/07/2014 09:40

I know it is hard to think about practicalities in amongst the emotional storm but you mum may wish to consider sorting Lasting Power of Attorney for both health/welfare and finances. Without these your Dad or whoever is appointed will not have any legal rights to advocate for your mum (doctors will take into account family wishes but they are not legally required to follow them).

Glad your children will get to see your mum. Get the hospice referral asap and they can start supporting you and the children. Thinking of you.

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hell2theno · 25/07/2014 16:44

OP, I was thinking about you today. I hope the visit this afternoon with your mum and kids has gone ok. Are you any closer to getting her out of the hospital and into the hands of Macmillan?

I'm sorry to hear about your meltdown last night but don't feel bad. This is the hardest thing you will ever have to do and it is a rollercoaster of emotions. For the week my mum was in hospital I think I went into shock. I cried a couple of times, but mostly I felt frozen.

If you can get her home and into a nice routine with Macmillan it will take the edge of things a bit. The whole "visiting time" thing at the hospital was terrible. My lasting regret is that we didn't get her home. When I think of the hours she spent in that bed facing death alone with us locked outside I feel absolutely torn apart with grief.

Thinking of you Flowers

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Geoff0409 · 25/07/2014 17:53

Hello everyone,

Yes we saw Mum this afternoon. The kids were fine there and weren't alarmed by the hospital or ward or anything. My Dad walked out for a few minutes when we got there and I lifted the kids over the bed to give her a kiss. He found it super tough. My Wife and I tried our best to keep things normal and Mum was asking about school and the trip they had to the dentist this morning. After about half an hour Mum said why don't we go off home as the kids must be a bit bored a tired. My daughter said she wanted to stay but Mum said to head off. They gave her another kiss and we left. My daughter is still a little under the weather

Mum hasn't eaten much in the last couple of days, and the Doctor mentioned it that she needs high protein and fat as she will lose weight rapidly otherwise. I asked Mum if the physio's had been, but she said she had asked them not to do anything today. I can't help but feel for her whole resignation to the situation. I also cannot imagine the distress it must be causing her, and it was utterly heartbreaking knowing she won't see the kids much more.

Complete and utter helplessness is the only way I can describe it.

OP posts:
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FoxInTheDesert · 25/07/2014 17:54

Dear OP, I lost my mom last year, she was the same age as your mom is now. It was sudden and unexpected, I didn't have time to say goodbye, so the only advice I can give you is please, please spend time with her. As much as you can. Tell her you love her, what a wonderful mom and grandma she is, do the things she likes to do, ask her about her childhood... Just be there with her, and be there for her.

The time you have left with her is so precious. You don't know how precious it really is until the day you don't have the opportunity anymore.

Wishing you lots of strength and your family too.

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Sister77 · 25/07/2014 18:35

I'm so sorry for you all. Thinking of you and sending strength xxx

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whatisforteamum · 25/07/2014 19:41

OP im so pleased your mum wanted to see the kids.My mum didnt eat much when she was first told that her cancer was incurable.she too seemed understandably resigned to what was happening to her.However once she had time to take it all in her "fighting spirit" emerged.Obvoiusly as i said things went alot better than predicted for Mum but we didnt know that at the time.You too are suffering from "anticipatory grief" as we start to grieve when we get such news about our loved ones.I can remember shopping and wandering about in a daze.You feel like shouting out my Mums seriously ill when people are trivial or just enjoying their carefree lives.Keep posting on here and eat well yourself and rest as much as you can as this journey is a real rollercoaster (that no one wants to be on !!)

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WheresMrMonkey · 25/07/2014 21:30

Thoughts are with you x

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