Dreading tomorrow feel the hospital are lying to me

[nattygk]

Ok here is my story. I was in hospital on and off in November 2016. Due to various illnesses not getting better and my gp referring me for investigations. I was finally diagnosed with a splenic artery aneurysm. In November. Due to my gp saying that my symptoms were not consistent with gastroenteritis. I feel that the doctors and nurses in A&E totally failed me and im concerned that there errors will cost someone there life. I know there only human but 4 times is beyond the joke. I feel I have no trust in the NHS as I've seen how people are treated by them. I'm not saying that all NHS trusts are the same. But I feel I've had the total piss taking out of me and if it hadn't been for my own GP I'd of never knew about this im only 35 and im feeling so ill due to this I've lost over 2st when im eating healthy and im exercising under the guidance of my gp i don't smoke or drink alcohol all my checks done by gp are always remarkable so I just don't understand why I feel so ill

[MusicIsMedicine]

Too many people here doing the Op's thinking for her and completely invalidating her appalling experiences and how profoundly they have affected her. There doesn't need to have a burning reason for a thread, it can simply be a place to share experiences - keep posting OP, I totally identify especially around grief. Modern medicine wants to diagnose every human feeling as a disorder and medicate it, completely ridiculous. A good book is Bad Pharma by Ben Goldacre and Pharmageddon about the rise of mental health drugs killing people.

[doggle]

I still have no idea what this thread was supposed to be about. You were dreading 'tomorrow' (you posted last Friday, so 'tomorrow' was Saturday.) There is no comment on what was supposed to be happening last Saturday, what did happen last Saturday, whether it was as bad as you thought it was going to be, or indeed anything other than a belief that somehow you were misdiagnosed or mistreated (whether any of those facts are true is not clear - it's not possible to tell from any of your posts).

I'm not sure that posting on this thread is going to be good for your ongoing anxiety or mental health. It seems to be a backwards step and keeping you within that fearful place, whereas you have already said that you are now under the care of a single consultant that can look after both of your ongoing health concerns.

What do you need from the thread, natty? If it is a discussion on how terrible the NHS are, to build your anxiety further, I think it would be a mistake to continue - if it is support for your ongoing health issues, you might want to start a new thread in this section that is a bit clearer? (Maybe with the diagnosis in the title?) There is also great help to be found on the mental health boards, or even bereavement if you are still suffering from debilitating panic attacks or ptsd like reactions to your father's death?

Are you able to work out what it is you need from the thread? Or was it a more general chit chat, and the 'dreading tomorrow' was more of an existential feeling rather than related to a specific event? I'm still confused about what you feel the hospital are lying to you about?

[nattygk]

I'm getting seen in outpatients in February for the results of my ct angiogram results I'm getting kept a eye on which gives me some reassurance I've saught help in making a complaint about the way I was treated in relation to the visit to A&E in November as I my collapse was due to aneurysm my gallstones rarely bother me but I'm seeing a hepatobiliary consultant as they can treat both rather than me seeing 2 different consultants so I'm glad the 4th time I was addmitted the register was so nice and did believe me as my partner found me collapsed in the shower and phoned for a ambulance this was the 4th time and was grateful for that

[FeralBeryl]

I'm sorry you had that experience Natty.
But AED staff would not have known that, or even particularly have had the means to deal with it (they would have had to ring the mental health crisis team if you see that bad)

See them as firewo/men.
They are literally there to put out the fire. The extinguishing the remaining smoulders, finding the cause of the fire, looking at contributory factors etc all comes later. It can be so frustrating, I appreciate that.
If you go in with awful pain and they quite fairly deduce that it is due to something like gallstones. They settle your pain and if they're able, send you home to be reviewed by another department as an outpatient.
What happened in your case?

[gazingatthestars]

Op I also got treated badly to the point where I would have chest pains from anxiety from the thought of having to go back to a and e...I never had any mental health problems before at all. it's horrible - it's steassful enough being ill without the added burden of not being treated properly on top.
You have a diagnosis now so it won't be as bad as you think.
Is there someone supportive you can take with you?

[nattygk]

Because I was simply treated badly by A&e I have terrible anxiety and I've had very bad experiences with hospitals. To the point were I've had to walk out of the building because I had a flash back from when my dad died they were going to have me sectioned when all I needed was reassurance I was so upset to learn that I was being made out to be mental due to my dad dying right in front of me it was 6 years ago. But they fail so many people it's no wonder people dread going there even if a ambulance has bought you in

[Blossomdeary]

You don't have to sue them - that just depletes scarce resources, but you can make a formal complaint via the hospital PALS department. If a diagnosis was missed then it will be looked into and the doctors will be called to account - it will help them to learn for another patient, so is worth doing.

I have waited 9 weeks between a consultant appointment where I was told I needed a nuclear scan and that referral arriving at the imaging department - brilliant!

[gazingatthestars]

Chardonnay yes I agree - you have to find yourself one consultant who gets your case and will lead the charge and truly get to the bottom of things.

[FeralBeryl]

Firstly, yes, they do get it wrong sometimes.
Medicine is not an exact science. Conditions present differently to how they are expected to, new conditions are being discovered every day, medics have to investigate and discard diagnoses hundreds of times over with some patients.
Unfortunately this takes time.

Splenic aneurysms would not normally cause any difficulties, you said yourself that it was picked up on a test for gallstones (which are horrible and can give you awful problems including the raised inflammatory markers etc)
I think the aneurysm has been a bit of a red herring here.
Did the GP mention that surgery isn't usually done until the reach a certain diameter.
What have your actual issues been?
Referral times? Or being sent home in pain? It's not awfully clear - apologies if I'm missing them.

[ChardonnayKnickertonSmythe]

an appointment

[ChardonnayKnickertonSmythe]

NHS is a great institution but they are not infallible.

Many diseases have complex symptoms and drs will also go (as they are taught) with what is the most likely outcome in each instance - not both looking at thr true cause.

I agree with this statement. You are being sent away and have to persist if you think something isn't right. The "one complaint per appointment" system many surgeries practice doesn't help when symptoms are complex.

Eventually you might get appointment to see a consultant and then things really pick up.

[gazingatthestars]

And user - drs were WRONG in my case - about as arrogant and stupid as you are coming across.

[gazingatthestars]

Bog off user - I've just had 6 months of hell - with negligence on behalf of NHS causing a mental breakdown. My symptoms were consistently and repeatedly ignore and not taken seriously. Until you've been through it you can't know how rubbish it is. Here's hoping you never get anything rare or none cookie cutter.

[wallowinwater]

You might want to look either into Pals in your area or a health complains service HCAS to support you to make a complaint or get some resolution.www.seap.org.uk/services/nhs-complaints-advocacy/

[user1484317265]

They should listen and respect the patient a bit more rather than making quick judgements basically

You should listen to and respect the drs a bit more rather than making shit up and undervaluing the great job they do.

[user1484317265]

Many diseases have complex symptoms and drs will also go (as they are taught) with what is the most likely outcome in each instance - not both looking at thr true cause

Yes, thats nhs dr's, just too lazy to bother actually trying to diagnose anyone.

Fucks sake.

[gazingatthestars]

They should listen and respect the patient a bit more rather than making quick judgements basically

[gazingatthestars]

Erm no - don't agree at all. Many diseases have complex symptoms and drs will also go (as they are taught) with what is the most likely outcome in each instance - not both looking at thr true cause.
I'd agree about complex being complex except I have found myself rejected ignored, ridiculed abc wrongly sent home so many times - because drs haven't listened. OUr problem has been we've had to see a new dr each time - even on admission to hodpital you will see a diff dr each ward round and of course a diff gp each time.

[user1484317265]

if you don't fit the cookie cutter easy duagnosis of a common disease you are left to do repeated visits and/or get labelled anxious

No, if you don't fit the diagnosis of a disease, it can be very difficult to diagnose. Doctors aren't magicians, they can't just look at you and know what is wrong. We don't have infallible tests for everything, and sometimes it takes time and effort to work things out.
How about being grateful you have access to drs and medicine in the first place instead of complaining it took time to work out what is wrong with you? If you have a complex case it is just that: complicated.

[gazingatthestars]

Another person failed by the NHS here too - if you don't fit the cookie cutter easy duagnosis of a common disease you are left to do repeated visits and/or get labelled anxious. It's set up totally wrong for complex illnesses - short primary a and e or gp visits where you see a different dr each time. Lots of negligence too. I've also lost all faith.

[ExplodedCloud]

The first answer went off on the topic of pushing a claim which is probably what gave the idea you might sue rather than anything you wrote.

[doggle]

Why are you dreading 'tomorrow'?

[user1484317265]

The evidence i have is that my general practitioner told me about the aneurysm. Yes it was picked on a ultrasound scan that I had to have on my gallbladder as I have gallstones

What do you think this is evidence OF though? Imaging for something else revealed an asymptomatic aneurysm, this was referred back to your GP to tell you about, and your GP referred you to the correct department to look at it further.
That all sounds exactly right. What are you accusing A&E of though?

[nattygk]

The evidence i have is that my general practitioner told me about the aneurysm. Yes it was picked on a ultrasound scan that I had to have on my gallbladder as I have gallstones. No were in my post said that I intended to sue the nhs. Why would I what would it achieve. Also the many people who are having problems understanding my post. I have severe dyslexia and a learning difficulties.would I sue the nhs for that no I wouldn't cause it was only diagnosed when I was a child. And also not every illness disease or condition is visible by looking at a person

[user1484317265]

And if A&E had found evidence of a SAA or any other specific problem, they would have told you so, and referred you forward.

Again, what makes you think that they knew but just couldn't be arsed to do anything about it? Why would they, what would be the point?