I have Hashimotos autoimmune thyroid disease, currently on 100mcg/day thyroxine. TSH was 1.6 in May this year so all seemed good.
We've had a pill failure and unplanned pregnancy. I got a private scan the day after testing positive to date the pregnancy - 6 weeks pg (this was 2 weeks ago).
We spent a week considering whether to keep the pregnancy or not, but have now made the decision to go ahead, so last Friday I trundled along to the GP to say I was 7 weeks pregnant but have autoimmune underactive thyroid so need some urgent attention to get the thyroxine levels right.
Now, there is a plethora of information on the web - NICE guidelines, British Thyroid Foundation, Thyroid.org, British Thyroid Association, various endocrinology journals which ALL CONCUR that the correct procedure is:
-To immediately increase the thyroxine by 25-50mcg/day
-Test TSH and FT4
-Refer to specialist
-Retest TSH & FT4 every 4 weeks in 1st trimester and then in 2nd & 3rd trimesters to keep TSH under 2, and FT4 in the upper half of the reference range.
It is frequently emphasised that in the 1st trimester it is crucial to keep the thyroid in check, and failure to do so is associated with increased fetal loss and problems in the neurological development of the baby.
So WHY did the GP simply authorise the blood test (but refused to actually do it, so I booked the next available bloods appointment which was then Tuesday this week), but say to see the midwife and get a referral to consultant? Saw midwife this week and told I'm not going to get to see a consultant this trimester, should take blood results back to GP (who doesn't want to deal with them due to the pregnancy, argh).
Finally managed to get my blood results today (so now 8 weeks, wasted a week since first saw GP!) and they are:
TSH 5.7 (0.5-5.5) (ridiculously high ref range here, everywhere else cuts off at 4.5, we are v out of date)
FT4 15.1 (10-24.5)
AND A GP HAS SEEN THESE AND SAID "SATISFACTORY, NO ACTION NEEDED" !! I am spitting mad. TSH of 5.7 is not ok normally, let alone in fucking pregnancy! I am asleep all the time and feel like shit and so so cold too and really worried about the pregnancy.
Will be booking an urgent appointment tomorrow, but what can I do??? I have done thyroid battle repeatedly, they are utterly useless at dealing with it and really reticent to prescribe/increase dosage. If they don't want to what can I do? Is there some specific NHS GP instruction sheet I can wave???
Thanks if you got this far!
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I am really cross - hypothyroidism, pregnancy, useless GPs, help!
10 replies
spilttheteaagain · 19/11/2015 19:00
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