White eye in photos

[CoinOperatedGirl]

So I was going through some digital photos of ds2 to print tonight and noticed in a couple of these he has a white pupil. Iv'e seen the retinoblastoma pictures before and obviously I'm now cacking it.

What do I do? Should I take him to an opticians tomorrow? Or maybe ooh dr? Will these just refer me back to my own gp?

I feel sick

I've had a look and this says optician or GP. If you know a good optician I'd ring tomorrow explaining what you've seen and ask to be fitted in. I think he'd get a more thorough check with more appropriate equipment with an optician as opposed to a GP. If by any chance you're somewhere like Bristol which has an Eye Hospital then I'd ring there.

Good luck, I have my fingers crossed for you.

I don't have an optician tbh, we live near enough to get to moorfields (google is my friend) which has an eye a&e dept. Would it be appropriate to go there? even if we don't live near? Sorry I haven't got a clue, not even sure if it constitutes accident or emergency, I'm thinking more eye + sharp stick scenario.

Thanks for replying.

Yes definitely ring them in the morning, that's great having access to them.

might as well go straight to Moorfields if you have the access. They are not going to mind in the slightest if it turns out to be a false alarm. If it isn't a false alarm (and fingers crossed for you that it is) then the earlier they get to it the better.

Take the photos with you as well to show them.

Well dp and the ooh Dr have persuaded me to wait till Monday and to see my Gp and maybe optician if Gp advises. I do live quite far away from Moorfields but I do feel a bit patronised and not listenend to.

My dp seems to be trying to minimise my worries, but I have pointed him in certain internet directions, but he focuses on the things that say it might be nothing.

I in reality am so fucking scared,I think I went along with dp because I don't actually want to know if it is something. I don't want to push it and get a bad result, because I'm terrified.

I can't put my head in the sand though, I do it wrt my own health, but I can't for my dc's. I want to be doing something but until Monday it isn't going to happen.

Well, I can't actually see the point of seeing the GP if all he's going to do is refer you on to an optician if he thinks there might be something there - unless he's going to refer you to a hospital ophthalmologist rather than just a high street optician, in which case there is a point.

Do what your gut instinct is telling you to do - and keep doing it until someone tells you categorically that it isn't a retinoblastoma.

Not at all the same thing but my niece was in and out of GP surgeries and hospital for 3m before my sis eventually took her to UCH in London, where she was diagnosed with a cerebellar brain tumour - she'd been told it was teething, tonsilitis, ear infection, non-specific virus etc. for those 3m before the symptoms became severe enough that they were taken seriously. She's fine now, btw - had an op to remove the tumour, has to be checked every year but 3y on still going well.

Well hopefully the Gp will do a red shift test,and then refer me on to a specialist in this area. If he fobs me off or refuses to refer me etc, I will be straight to Moorfields.

I do have faith in my Gp though, he will let me know if it's something to truly worry about.

My gut instinct is telling me to go raaaaaaaargh and freak the fuck out. My gut instinct isn't always accurate.

I wanted to go to Moorfields but Dp wanted to phone ooh or nhs direct. Which I knew wouldn;t actually be much help.

Tbh dependant on how much the anxiety takes me tomorrow, I may drag all of my clan up there. At least there we have a chance of getting an answer.

Well I phoned moorfields and they just said go to to gp so I'm .

I had the same scare seeing a picture of my daughter when she was 3 months old. Took her to the GP who checked her eyes and re-assured me that it was fine. GPs can check for this and if they had the slightest bit of "not sure", would refer you.

hi

you dont need to be registered with an optician - just phone a few explaining you need an emergancy appoimtment. the gp can have a quick check but for a thorough examination youll need an optician, they have the right equipment to see into the back of the eye. if they suspect any problem at all they can refer you straight to an eye hospital, if its urgent they will ring and get you straight in.

try not to panic and get into an optician. some open on sundays - why not ring a few today?

COP - FWIW, I have "feaked out" a number of times with DS and he even when to hospital in an abulance for a cold . Not once have I been made to feel silly. I would go to Moorfield and have him checked out now. You will not feel happy until you have and if you leave it and it is something it will not make you feel any better.

My DH is just like your DP always trying to reassure me and make me feel better but, i always think, 'what does he know?' he isn't medically trained!

If you are worried, go!

Good luck. And keep us posted

Thanks for replies. Well I phoned the Gp who I managed to speak to, he said "oh yes, he needs to be seen, bring him in on Thursday" aaaaaghhh!!. So I phoned the local opticians who are going to have a look at him at 5pm today, phew.

No way on earth I was going to wait until thursday, Dp is a very reassuring type, but thats not very helpful when your concerns are actually valid.

I am so glad that the optician can see him this afternoon.

CoinOperatedGirl, I'm glad you're not wasting your time at the GPs. Optician= good, but remember an optician is not a specialist. Whatever the optician says, I'd still drive to Moorfields!
Good luck xx

Dp has just phoned from the opticians and apparently his red reflex is good and his eyes look clear , but he is referring him to the eye clinic for I think the dilation thingy.

He said he doesn't think there is anything to worry about but obviously it's better to err on the side of caution. Think my heartrate about halved during the phonecall. I will still worry though, but surely nothing obvious is good? Someone tell me its good .

Glad you got some reassurance - it's terrifying when you think there is something wrong.

Oh Thank God for that !