After repeat returns to the GP and practice nurse about my DD's nosebleeds and snoring, and after repeat reassurance we are now facing a sinister outcome.
We weren't prepared to wait the 18 weeks referral given by GP to an ENT consultant so we went private.
The private Dr took one look in DD's mouth and said lymphoma.
The day after we were called to attend GOS that afternoon (yesterday) for consultation with Paed ENT consultant. Bloods and chest X-ray followed.
Last night we were called to come in for an MRI under GA which happened today and to be told she's having a biopsy on Monday.
So, an awful lot in a short amount of time and I'm terrified.
But...how do we involve other DD's 13 & 11?
Do we take them on this journey, giving them facts and information (selected obvs)
We're thinking of getting a hotel near the hospital for the nights (2) we'll be away for the biopsy.
Would this be too intense, upsetting or would them staying at home be worse?
Tia x
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Children's health
Likely Cancer diagnosis for my 4yr old DD, advice please for talking to older siblings
Littlefiendsusan · 11/08/2017 20:00
Sending you strength today 
MN is here, always.
I've always loved your username, as those were my favourite books as a small child. Your take on it has always made me smile.
Just read your Thread,
Hope everything goes well today
Sending Love
Thinking of you, hoping things go as well as possible today. You are so brave, and such a loving mother I am wishing you the shortest wait possible for the results. It is a horrible time.
When I was about 9, my Dad had cancer. My parents dealt with it brilliantly. They told my sister and me what was going on in a basic factual way, but they absolutely insisted that everything was fine and that it would all be OK. They told teachers so we'd have support at school if we needed it. But the reassurance, to be honest, was enough at that stage. As far as possible, they kept us outside of the hospital, and well away from the physical 'realities' of the surgery and treatment, which helped to keep us in a bit of a bubble about it all, without ever denying it was happening. My parents didn't know whether the treatment was going to be successful at the time, but they chose to present it in the most optimistic light to us. Hope this helps.
No experience just thinking of you and your family and wishing your daughter a speedy recovery
Thinking of you today and wishing you a good outcome.
From a mother who has been there.
Thinking of you today.
Can't even begin to imagine how you're all feeling. Hope the biopsy goes well and results are good.
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So sorry to hear this
I knew a family where the 3 year old DS was diagnosed with leukaemia. The parents decided not to tell his older brother, who was 8. He overheard snippets of conversation and ended up googling cancer on the internet secretly, getting himself into a real state. I think honesty is best.
Hoping all went okay with the biopsy today. The staff at GOSH should have play therapists or other experiences counsellors who could help explain things to your older daughters.
for your wee dd and for you
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