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Children's health

8 week old - silent reflux. Started on infant gaviscon

121 replies

purpleviolet1 · 10/05/2017 13:36

Ds will be 8 weeks tomorrow and is a good weight of over 10lbs now. He was born at 37+5.

He is formula fed - cow and gait comfort (since 4 weeks) as we initially thought he had colic. He has had the following symptoms:

  • distressed during feeding
  • approx 1-1.5 hours after feeding he cries and cries. Very rigid body and very difficult to settle.
  • gulping noises up until next feed followed by shrieking
  • wheezing, clearing throat, grunting noises during sleep
  • waking up mid nap clearly in discomfort. Not able to settle for more than 15-20 mins at a time
  • sometimes bringing up milk , other times we have seen it in his mouth and then he has swallowed it
  • burps regularly and passes LOTS of wind
  • lots of hiccups
  • congested nose (all the symptoms listed seemed to have started/ got worse after he had a cold)


On a side note he has very good head control and is very alert. Numerous people and HCP have commented on this since birth.

It appears to be more silent reflux than normal reflux. GP prescribed infant gaviscon yesterday and said to see how we get on.

So far the crying episodes are very slightly less. Don't think this medication is going to cut it but I understand it can take time so will give it until Monday unless there is further change. Only way he is settling is on his front on my chest if I'm lying down. He doesn't appear to be getting into a deep sleep at all.

If your LO had silent reflux do the above symptoms sound similar? What medications worked and how long until you saw an improvement? Any other tips?

We have got the wedge to raise mattress and keeping him upright after feeds (he is mostly in my arms now constantly anyway).
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purpleviolet1 · 29/08/2017 14:39

Had 2 weeks of hell on the neocate - symptoms ramped up even more and the whole situation was unmanageable. However we are on day 21 today and I think we have turned the corner. The reflux has settled down and he is happy for more than half the time now Smile

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purpleviolet1 · 09/08/2017 22:16

Update : symptoms returned and GP had confirmed that babies can build a tolerance to nutramigen 6-12 weeks after starting it. We have moved on to neocate now. Day 1 complete.

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purpleviolet1 · 13/06/2017 10:30

Could you try cooled boiled water in between feeds to prevent constipation?

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HLBug · 13/06/2017 06:47

Aww I'm glad things are starting to get easier for you. DD has her first set of injections today, bleugh. My son had a horrible fever after getting his first set so I'm preparing myself for the worst Confused
We're still having some problems with carobel- reduced the amount per bottle last week and constipation got better, then upped it again and now constipation is back again, so it must be linked. Sigh. She was so unsettled again on the lower amount though. I'll ask doctor today with I see him for her injections...although I'm not really sure what else there is left to try.

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purpleviolet1 · 12/06/2017 20:02

Update: omeprazole is helping, increased dose from 5mg to 10mg (minimum dose for his weight was 4.2mg and highest dose 18mg).

Still hearing a lot of gulping and some
Crying , so experimenting with adding in carobel thickener. Things have overall improved considerably but for us there is both the CMPI and silent reflux. The distressed periods are less in frequency and less duration also.

Nearly 13 weeks old now!

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purpleviolet1 · 05/06/2017 22:34

Aw long may it continue...

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HLBug · 05/06/2017 21:07

Yes i think so. She has funny spells though. Skin definitely much better this week though. Ugh. Full of worry!

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purpleviolet1 · 05/06/2017 20:03

Is your LO more settled now apart from The constipation ?

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purpleviolet1 · 05/06/2017 20:03

Oh no Hlbug not good. Not sure if you are interested but there is this product from dulwich health called oxytech which is great for constipation. Safe for children.

dulwichhealth.co.uk/product/oxytech-180-capsules/

We've only just started the omeprazole this evening. Was on ranitidine before. I've ordered some carobel because the gaviscon was constipating ds too and I thought I read carobel didn't do that!

There is a difference but still having distressing episodes. Fingers crossed for the omeprazole....

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HLBug · 05/06/2017 18:39

Hi purple, is the nutramigen / Omeprazole combination working for you? Hope you're managing ok. We've now added carobel to DD's Neocate and it's definitely helping reduce the amount of possetting / vomit. Unfortunately this morning she passed some hard pellet stools so it's making her a bit constipated instead - can't win!! I'm going to reduce the amount of carobel for a few days and hope that makes a difference. Things generally a bit stressful here with DS (3) who was at hospital again today due to his chronic constipation - we've got some serious laxatives to plough into him this week to try and flush him out. The aim is literally to get the poo flowing out of him Confused

Thankfully DH has realised that I can't deal with a refluxy newborn plus a newly toilet trained toddler with poo issues by myself all week so he's taken some time off work to help. Ugh. Another fun week ahead...!!

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purpleviolet1 · 05/06/2017 17:44

Update: been to docs and he has prescribed Omeprazole instead of ranitidine. He suggested giving up on the gaviscon as he doesn't think it helps. He gave us the nutramigen on prescription.

Follow up in 4 weeks.

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purpleviolet1 · 05/06/2017 00:23

Hlbug how are you?

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purpleviolet1 · 31/05/2017 15:24

Been approx 48 hours since we've been on the Nutramigen. Definite difference. Still crying straight after feeds, usually until he burps, and then crying an hour or so after but seems to be because he needs a burp. Sometimes it comes up quickly and other times takes longer, but after that he is ok. At other times he Is unsettled but not hysterical , we can hear gulping and this does prevent him From being completely content or nod off if he is tired. Early days yet ofcourse...

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purpleviolet1 · 29/05/2017 14:59

Oh gosh HL... hope the next 2 hours fly by for you! How many days since you've been on neocate now?

Thanks for all your advice. We had a nutrimagen only bottle at last feed, With infacol, the bigger teat, gaviscon, a drop of vanilla essence and gripe water Blush ranitidine was also due then! He seemed to settle quickly after but that may have been from exhaustion as he cried hysterically for exactly an hour, twice this morning. His lip was quivering and everything ! It seemed to be a sore tummy. He didn't really burp or pass wind.

I get so anxious thinking that this could go on for months and how will I get through each day 😔

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HLBug · 29/05/2017 14:00

purple I made it as it says on the tin - they changed the composition recently to include some probiotics that are killed off if they are added to hot water. Is he in pain still after a feed or just being sicky?

Hope you're both doing ok. GP keeps telling me it's trial and error which is very frustrating! DD has had an awful morning which has really gotten me down as I thought Neocate would settle her. We were both on our third outfit change by 11am Confused and I can't get her to sleep for anything longer than 20 mins at a time. I'm on my own with her and DS (3) all day today and we're stuck inside due to rubbish weather and the fact I still can't drive after having c section. Roll on 5pm when DH gets home... neither child is doing very well at 'sharing' mummy today.

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purpleviolet1 · 29/05/2017 11:56

Sorry hlbug how were you making up the nutramigen? Were you following advice on the tin (boiling water and adding to bottle, allowing it to cool to room temp and then adding formula?) or were you just boiling the kettle and making feed up as per WHO guidelines of water and formula needing to mix at a temp of 70c at least?

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purpleviolet1 · 29/05/2017 09:08

Also with the milk being so thin I feel the reflux is considerably worse straight after a feed. I've got some gaviscon so I added that this morning. Do you think it's a good idea to do this during the transition stage? Obviously we hope that once he is fully on nutramigen the reflux will settle...

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purpleviolet1 · 29/05/2017 09:05

Oh no wriggley Sad hang on in there. It's so horrible.

Hlbug - I made the middle of night feed up with 4oz nutramigen and 1oz comfort and he drank it. However he didn't take more than 2.5oz at the morning feed. Do you think I should try adding vanilla essence to see if that helps?

I've noticed the burps are taking a little longer to come up.

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WrigleyMummy · 29/05/2017 06:51

....oh my gosh even worse "sink" instead of sync! 😂 ... all sense has totally left me years ago! Cause - parenthood!

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WrigleyMummy · 29/05/2017 06:49

Venue referred should read yes we've been referred....predictive text and sleep deprivation are a bad mix!

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WrigleyMummy · 29/05/2017 06:48

HLbug- yes venue referred just waiting for a date...it was only Thursday though so assume with bank hol it will be a bit delayed.... GP suspected CMPA over silent reflux so for a prescription for Aptamil pepti 1...seemed to clear up baby's a stuffy nose for a day but was probably more just coincidence as it came back again yday....

Bad night had ...she's not pooped since Friday night when she started the new milk...really cranky in the night straining so she's deff constipated... not slept at all but from 4.30 she drink a full bottle...(doesn't usually finish all her milk lately) and has just fell asleep on her own in her bouncer ...bought he down to living room at 4 as my son decided that was a great time to get up for the day! Sad .... I'll be phoning come this Thursday abyway I life I've heard nothing... hoping today we might see some changes... if not I'm not really sure what to think....

She really does struggle to drink...it's like her suck and swallow are totally out of sink....if she gets a good rythem going we try not to burp her until completely necessary as once we stop to burp her she looses it completely and the 2nd half of her bottles can be a nightmare ...choking and crying... so drained! Fingers crossed the paediatrician can help!

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HLBug · 28/05/2017 23:07

Wrigley from my experience I'd say signs of improvements after first few days? It may take longer though. If you've not seen any / much improvement after a week or two I'd personally be going back to the GP to either try a different milk, or partner the milk with ranitidine or something. Like I said above, the Pepti does have lactose in it, unlike nutramigen or neocate etc. Has your GP confirmed a CMPA diagnosis?

For DS we were treated via the pead dieticians who didn't do any specific testing, but helped us reintroduce milk via the milk ladder when he turned 1. He had issues with fish and bananas too, so they did do skin prick tests for those though. Have you been referred?

Purple are you on full feeds of nutramigen yet? Fingers crossed you'll see some improvements once you are. Personally I'd try and get going with those asap as if it is a CMPA then you want to stop the Comfort formula to see if it makes any difference or not. Then hopefully you'll know more by the time you're back at GP on Friday.

My DD has also been VERY sleepy recently, and especially yesterday. On Thursday night she slept 11pm to 8am!!! I had to keep waking up to poke her to check she was ok!! I put it down to the very hot weather and the fact she'd knackered herself silly be crying so much the days previous.

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purpleviolet1 · 28/05/2017 13:26

Thanks hlbug... you have been really helpful.

Wriggley that's not so good..

For anyone referring to this thread later, and for my own record.

Yesterday
6.30pm - first feed. 3oz nutramigen and 3oz current formula (cow and gate comfort)

Unsettled as usual until 10pm

10.30pm - 3oz nutramigen and 3oz current formula

Settled for night at 11.30pm

Woke for feed at 4.45am - 3oz nutramigen and 3oz current formula
Settled quickly although little grizzly/ fidgeting whilst sleeping

Woke crying around 8am, yawning. Offered feed at 8.30am - 3oz nutramigen and 3oz current formula.

Settled for nap at 9.15am (took only 7 mins!)

Didn't wake until midday! Little grumpy. Feed offered at 12.20pm 3oz nutramigen and 3oz current formula

By 1.05pm after some grizzling, settled back to sleep.

I can't believe he is sleeping so much?? Perhaps some weird transition thing...

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WrigleyMummy · 28/05/2017 12:55

HLbug....how long before we should see improvement (if any) on pepti 1?....

Was convinced the stuffy/runny nose had got better 1 day in but it was back again this morn with a vengeance ...also feeds are still really tense and a struggle....she just can't drink well after first oz or so.. pull away from bottle... no poops since Friday night about 11pm either so tad concerned now....

Also any advice on what happens at paediatrician referral?? Does she have tests for this ?! X

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HLBug · 28/05/2017 12:47

Second baby - the first one had CMPA issues too so, unfortunately, I'm a dab hand! You might find he's ok with the different taste as he's still so young. Hopefully once you're on full bottles of Nutramigen you'll see a difference in a few days. Good luck Smile

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