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Child mental health

ASD is the new ADHD

149 replies

Mick4Jue · 01/07/2015 13:39

I have just joined (I am Grandma to 8 week old 1st grandchild)
I was the 1st person in England to be awarded DLA and Care Allowance for my son..who was 13 at the time...and he is still getting DLA now at 33 years old.!
It took 18 months of (embarrassing) honesty..insisting the DWP spend time at my home watching him..school reports..home diaries...doctors reports et al.
When his DLA came up for review last year it was 'rubber stamped' and awarded for a further three years because the DWP regard a diagnosis of ADHD as unquestionable.!

It seems to me that we are still lucky enough to be bringing up children with ADHD...and yes it is very challenging.
I have answers to lots of your questions about behaviour because of my experience and my regrets for not standing my ground and insisting he was nothing more than an individual.

It seems possible to me that the DWP have renamed ADHD to ASD(Autistic Spectrum Disorder) in order to test you to the limits to allow you to be awarded what is rightfully yours. Indeed..his award notice stated he had ASD...which I vehemently denied and insisted they got his diagnosis right and amended his records to show ADHD.

There is much to be discussed on this issue..and maybe I could offer some words of wisdom and some ways to deal with behaviour issues..not just with the child...but also those who will at times be responsible for him (i.e Schools)

Talk to me please.....

OP posts:
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minewouldbeyoug · 01/07/2015 19:39

But the diagnostic interview for ADHD in adults or 'DIVA' is based on DSM criteria.

It's the standard assessment tool for adult ADHD in the UK. I'm really not sure why you seem so pissed off.

Do what you want, it really is no-one else's business and certainly not mine. I'm telling you the advice given by one of the very few adult ADHD specialist services in the UK.

Do with it what you will.

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zzzzz · 01/07/2015 19:41

This reply has been deleted

Message withdrawn at poster's request.

Jasonandyawegunorts · 01/07/2015 19:41

But the diagnostic interview for ADHD in adults or 'DIVA' is based on DSM criteria.

Which has nothing to do with me.

Do what you want, it really is no-one else's business and certainly not mine.

And yet you have this need to reply to me?

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Jasonandyawegunorts · 01/07/2015 19:44

why is it based on dsm?

Becuase it comes from the Netherlands.

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Jasonandyawegunorts · 01/07/2015 19:49

ICD-10 is also used to diagnose Adults here from what i've just looked up.

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DancingDinosaur · 01/07/2015 19:55

If your son has been getting dla for 20 years, but dla was introduced 23 years ago, how could he have been the first one to get it?

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Jasonandyawegunorts · 01/07/2015 19:57

Time travel

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minewouldbeyoug · 01/07/2015 20:03

The DIVA I'd an effective tool in diagnosing ADHD in adults as it covers many areas over the domains of both inattention and hyperactivity - impulsivity which also looks at current and childhood behaviour.

It is fully endorsed and used in many countries and is fully supported as a diagnostic tool by UKAAN (UK adult ADHD network) which has some of the UKs foremost adult ADHD expert Psychiatrists on its executive committee.

Until Russell Barkley (probably the world -wide expert based in the USA) finalises his own complete assessment tool as opposed to just the Barkley self - assessment tools, the DIVA is the standardised and effective tool.

I'll bow out now Jason as you seem very upset by the advice given by ADHD specialised services and the DVLA and I don't think continuing to argue back and forth will be useful for you and is derailing the thread.

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Jasonandyawegunorts · 01/07/2015 20:04

Derialing the thread, Didja read the thread?

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DancingDinosaur · 01/07/2015 20:07

Ahh, time travel, I didn't think of that. Very sneaky.

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StarlightMcKenzee · 01/07/2015 20:07

The DVLA say ask your doctor if you are unsure whether your ADHD affects your driving.

It doesn't issue guidance to doctors to tell their patients to inform them of their ADHD.

I think this is a significant point and I would expect professionals to understand that and consider the ethics involved here.

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Jasonandyawegunorts · 01/07/2015 20:08

Yes, her child was diagnosed in 1992, but she Travelled to 1995 to make a claim.

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HagOtheNorth · 01/07/2015 20:08

'Derialing the thread, Didja read the thread?'

Grin

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Jasonandyawegunorts · 01/07/2015 20:11

We cower in our shelters
With our hands over our ears
Lloyd-Webber's awful stuff runs for years
And years and years

An earthquake hits the theater
But the operetta lingers
Then the piano lid comes down
and Breaks all Of His Fingers

It's a miracle

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PolterGoose · 01/07/2015 20:12

This reply has been deleted

Message withdrawn at poster's request.

PolterGoose · 01/07/2015 20:14

This reply has been deleted

Message withdrawn at poster's request.

Jasonandyawegunorts · 01/07/2015 20:15

The thread is so weird

the Op is Absolute rubbish
The next post points this out
The response given doesn't make any sense
Neither do the next few rants
Then we get inaccurate advice about handing out leaflets
Then i add lyrics to the thread and give a little mention to bob hoskins.

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JazzerciseThis · 01/07/2015 20:21

This reply has been deleted

Message withdrawn at poster's request.

youarekiddingme · 01/07/2015 21:13

The Ebla form if you declare ADHD or ASD is very wishy washy and asks solely about mental health episodes in last 12 months and seizures.
Surely if someone with ADHD or ASD wasn't fit to drive ....... they'd fail the test?!

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youarekiddingme · 01/07/2015 21:16

I do have to say though that although icd 10 is the medical criteria used in the UK as we are a who member state - a lot of Camhs are using dsm v now. That's what DS was dx under and that's why he has an ASC dx.

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Jasonandyawegunorts · 01/07/2015 21:16

Exactly youare that's why the whole thing is sillly. It's saying a diagnoses makes you a worse driver.

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youarekiddingme · 01/07/2015 21:19

I'd almost be as bold to say it makes a better driver. Following rules and being stringent on sped limits can only be a good thing right?

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Stealthpolarbear · 01/07/2015 21:46

Icd 11 is the international classification of diseases, used internationally. As far as I'm aware ivd10 is used primarily in acute settings and dsm is used in mh services. Much more detailed and useful.

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Stealthpolarbear · 01/07/2015 21:47

Arch icd10. 11 is coming.

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minewouldbeyoug · 01/07/2015 22:01

I know I said I'd bow out but I'm really concerned that people are doubting adult ADHD services advise informing the DVLA.

There are numerous studies on the correlation between ADHD and car accidents - that's why the DVLA consider it a declarable condition.

If I tried to link them all I'd be here all day but just Google it. One of the most recent studies (published last year) was using a huge cohort in Sweden and concluded that people with ADHD were up to 50% more likely to have serious car accidents than non - sufferers. And medication for ADHD dramatically reduces that risk (it's on webmd if you'd like to read it).

Even Russell Barkley considers ADHD to be a huge risk factor in driving - though he could be considered biased as his brother with ADHD died in an RTA but he has been involved in research around the effects of ADHD on driving.

ADHD is attention deficit hyperactivity disorder. Why would symptoms of inattention or hyperactivity (impulsivity, recklessness, an reduced ability to inhibit impulses) have no potential impact on driving?. Some people with ADHD will be brilliant, attentive and safe drivers - the statistics show many are not.

The research is why the DVLA consider it to be a reportable condition and why specialised adult ADHD services give the advice to inform the DVLA and give out leaflets. If the person decides not to its up to them and they may well never have an accident but if they do and ADHD is discovered by the insurance company and hasn't been declared their insurance could be invalid.

We don't give that advice to piss people off - just saying this is the research and these are the facts. We advise you to declare it. If you don't want to, we've told you the risk is your insurance could be invalid and you may be fined for not declaring it if involved in an accident.

It would be unethical NOT to tell people that their driving may be impaired by ADHD and to inform the DVLA.

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