To have had enough of caring for my disabled dd

[chickensaresafehere]

14 years & I'm tired.

Tired of being a constant carer,of it being all my world is.
Tired of thinking & worrying about the future. Hers & mine.

Tired of not being able to relax,of constantly being in fight/flight mode,so much so I've totally lost the ability to chill out. It's exhausting.

Tired of dreading school holidays.

Tired of having loads of services cut & respite taken away because of Covid.

Tired of not liking the person caring has made me into. I've lost who I am.

I know IABU. She is my world & I would do anything for her. So think before you judge me.

[catwomanhatwoman]

Please don't be hard on yourself, no judgement here whatsoever. You deserve a medal.

We were told our daughter could possibly need life long care but we were lucky, it made me really consider what ours and her life could look like every day indefinitely and that was difficult enough at the time. I can only imagine what the outlook must be like for you but you are well within your right to feel the way you do, you're nothing short of inspirational.

[Bobbybobbins]

Hope all the amazing carers on this thread are doing ok.

We have two disabled DS age 7 and 5 and it is utterly relentless. We have just got a disability social worker assigned after our second request (feel v lucky we got one this time tbh) and are trying to get some social care support. They both have EHCPs.

[x2boys]

@Bluntness100

I also hope you get some respite soon too op. No judgement from me either, my friends son is severely disabled, and although he’s now early twenties and living in full time care (the violence became too much) i honesty don’t know how his parents, and in particular his mother did it for twenty odd years, it was all consuming. And to be honest it still is for them. If they aren’t visiting they are face timing jist so he can hear their voices.

Hats off to you. 💐

Because she loves him and had no choice , like most of us with disabled children ,and even though he's now in 24 hour care,I bet there was a lot of soul searching before hand .

[LadyOfLittleLeisure]

@Bobbybobbins

Hope all the amazing carers on this thread are doing ok.

We have two disabled DS age 7 and 5 and it is utterly relentless. We have just got a disability social worker assigned after our second request (feel v lucky we got one this time tbh) and are trying to get some social care support. They both have EHCPs.

We're almost exactly same - except my boys are 6 and 5. I really think the disability social care is going to be a game changer for us.

[chickensaresafehere]

@YouokHun Dd is back at school & I'm back at work,so the routine is making things less overwhelming. I have a call scheduled with dd's SW this week about where they are with short break foster carers. I have a good relationship with the SW & she is understanding of my situation but has a massive workload.