I have 2 ds with ASD/ADHD. They are 11& 7.
My boys are extremely challenging. They were permanently excluded from mainstream school by Yr1.
They both attend independent Autistic Specific schools. They have access to every kind of therapy available to Autistic dc. OT, SALT, Drama therapy, lego therapy, play therapy, counselling etc.
My boys have very generous Personal Budgets to access playschemes/restpite. The reality is they are so difficult that the only playscheme that they can attend is £400 a week. So they go for 3 weeks per annum.
Ultimately, the boys are very likely to end up in residential schools. My older ds school is already really struggling to meet his needs & manage his behaviour.
When I try to explain my situation people always make suggestions that, i feel imply, I could do more to cope better.
Actually if you met me in RL I come across as really positive especially about my dc but the reality is they are horrendous. They are physically aggressive, anxious, rigid, unsociable, exhausting & ultimately they both have very miserable existences.
People say crap like, I bet you wouldn't change them? Of course i would!
I have no life, no career, few friends, no money, I'm exhausted, ageing & my health is suffering. My other dc miss out every day duevto the boys needs.
I never say what I feel as what's the point?
I shouldn't worry peoples/strangers reactions, but I do.
The majority of people are lucky enough to not have a clue what I'm on about but still say things like, 'Have you contacted charities' or 'Get SS to help'. Well meaning but not helpful solutions. The reality is there is very little help.or support for families like mine.
AIBU?
Please or to access all these features
Please
or
to access all these features
AIBU?
AIBU, it's not my fault or problem, if the reality of having ASD children, makes you feel uncomfortable? !
134 replies
PeppasNanna · 14/05/2016 16:19
OP posts:
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