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AIBU?

To want more than one inhaler prescribed at a time

65 replies

satsooma · 19/03/2016 09:42

I have asthma. I've used the same inhalers for decades. Every three months I order my repeat prescription. That is 3 preventer inhalers and 1 or 2 relievers, if they have run out. It seems a waste of everyone's time (mine, the receptionist's, the doctor's, the pharmacist's) to be ordering these every few weeks.

I use the preventer twice a day. I use the reliever maybe a couple of times a month, so I don't carry it around in my pocket (how many outfits even have pockets anyway). I can have serious asthma attacks though, so I keep inhalers at home, in my office, in my gym bag.

My doctor won't prescribe more than one inhaler at a time. It seems to be a cost saving measure, to reduce waste for medicines that aren't used. But I use these medicines every day and will use them for the rest of my life, so they are not saving money, just creating more paperwork. I attach a note with every prescription request asking for more (they wont take orders over the phone). Every time I get just one inhaler from the pharmacy.

I get through exactly 1 preventer inhaler a month. It is dangerous for me to have just 1 preventer in the house, in case I run out before I remember to reorder. It is even more dangerous to have just 1 reliever inhaler. It means I might not have an inhaler on me when I need it.

OP posts:
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incywincybitofa · 19/03/2016 10:58

Sorry I cross posted with your update

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Naty1 · 19/03/2016 11:38

I agree the assumption that you can get to gp/chemist to pick up or that you will remember. Plus 2+ working days to order. A real hassle. Especially if on several meds with different renewals or go away, possibly suddenly. Feel more ill from exercise/cold/dust/allergy.
Plus the chance of human error them not doing the prescription from the system.

I would honestly keep one on me though. As i find i can suddenly feel wheezy... Though i dont take any preventer.
Since moving out of my parents, where my mum smoked i have hardly needed any ventolin at all. 1-2 uses a year. I also switched from a feather duvet and pillow.

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ConfuciousSayWhat · 19/03/2016 11:47

I get 3 relievers and 3 presenters prescribed at a time for my dc, the Dr has no issue with doing that. We gave the argument they need a reliever at home, school and at their dad's and the preventer needs to be at home, dad's and grandparents. All the Dr asked is each time we submit a repeat we note how many we want, as they run out at different rates

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Floppityflop · 19/03/2016 11:51

I get two relievers and two preventers on two scripts, but only the preventer is on repeat. They are really stingy with the relievers even though they cost £20 less per inhaler. I buy them from Lloyds online if I'm travelling.

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LavenderRain · 19/03/2016 12:01

Hi OP
DH gets 4 blue inhalers on each prescription. He gets about 2-3 prescription a year
The practice nurse once told him he should only have one inhaler per script but DH told her that the GP had prescribed that amount so it was nothing to do with her nosey bint

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MoonriseKingdom · 19/03/2016 12:07

GPs have to prescribe 1 month at a time. It actually creates a lot more work for GPs because every script needs a signature so in a big practice that is many many scripts signed daily for repeats. It also causes a lot more work for receptionists dealing with requests for repeats. It is to try and cut down on waste and GPs don't have much choice.

I personally think for asthma you should certainly always have two relievers. Preventer use is generally more predictable (although I completely sympathise with your frustration) but you never know when your asthma may flare up and running out of salbutamol in the middle of the night would be a awful.

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Floppityflop · 19/03/2016 12:10

It would be really useful if you could tell how much was left in the inhaler. Surely someone coul invent something?!

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SpecialSnowflake · 19/03/2016 12:24

I'm struggling with this too, 2yo DS's reliever is running v low and I can't pick up his next prescription til Monday. I usually have a spare from Hospital trips, but we're down to one at the moment.

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JsOtherHalf · 19/03/2016 12:48

Our GP has 2 brown inhalers and 1 blue for 9 year old DS on repeat prescription.

School now demand 2 blue inhalers; one in the classroom, and one in the office.

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madamginger · 19/03/2016 12:54

Ventolin are dirt cheap, they cost about £1.30 each!
My DH gets 2 at a time, his asthma is very unstable and I always make sure I have a couple hidden away as he often forgets to tell me he is running out Hmm

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BettyBusStop · 19/03/2016 13:07

I can completely understand the wastage issue, but letting me have on extra preventer as a one off (which will be used) isn't going to break the bank. I'm fairly sure the time spent on issuing prescriptions comes to a good chunk of cash.

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Katisha · 19/03/2016 13:18

Same problem. Has anyone got them over the counter from a reliable source recently?

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bilbodog · 19/03/2016 14:06

Our surgery has recently done this to my husband with his epilepsy medication and he ran out over a weekend and then had a horrendous seizure. His consultant wrote to the dr and asked for him to be prescribed as previously and it has been sort ed now. Have you actually asked the dr rather than reception as I am sure it can be changed for something like asthma.

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Sidge · 19/03/2016 14:36

If you are getting through a blue inhaler in a couple of months then your asthma isn't well controlled.

I totally understand wanting a few around the place and I often issue 2 at a time, eg one for school and one at home, but if you're getting through 2 every few months then I would question whether you're really as well controlled as they seem to think you are. And you certainly shouldn't be having attacks.

As an asthma nurse I get very frustrated by prescribing limitations imposed on us by above, they don't give us much wiggle room to allow common sense. However I won't prescribe lots of preventers on repeat (some of them cost up to 75 quid) and if someone is getting through their relievers it is flagged up to me by the prescription clerks so I can call them and maybe get them in to review. It's a balance between common sense and prescribing authority limitations which don't always match clinical necessity, hence the need for regular review.

LavenderRain you said "DH gets 4 blue inhalers on each prescription. He gets about 2-3 prescription a year. The practice nurse once told him he should only have one inhaler per script but DH told her that the GP had prescribed that amount so it was nothing to do with her nosey bint" - this would really concern me and I would want to know why my asthma patient was getting through 8-12 blue inhalers a year - that would demonstrate an incredibly high level of use and would ring massive alarm bells for me. The GP may well have prescribed 4 inhalers once but that doesn't mean it's right. I would be really fucked off if you thought I was a nosey bint and nothing to do with me; I'm actually the respiratory nurse specialist at my practice and train the GP registrars in asthma management Hmm

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emwithme · 19/03/2016 14:41

I had this issue - all I wanted was three relievers - one for home, one for the car, one for "spare". I would then order ONE new one, when one ran out. They couldn't prescribe three at once (I had used my spare and forgot to re-order, and both the others ran out at the same time). So I ordered one every month for three months, and now am OK. I tend to get through 3 - 4 relievers a year, so now I'm on top of things, I'm happy with it.

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LavenderRain · 19/03/2016 18:23

sidge apologies, I am sure you are not a nosey bint!
But this nurse has never seen DH before (she was removing stitches from his back) she knows nothing about him or his asthma and he has regular reviews with his GP
she only mentioned his prescription as he had it in his hand to give the receptionist so the nurse took it off him.
Right or wrong the GP has always prescribed 4 at a time, DH has never questioned this

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ProcrastinatorGeneral · 19/03/2016 18:42

My medication has been changed for cost reasons. I was on the perfectly adequate seretide and am now on fostair which is not controlling my asthma as well, but is cheaper so 'will do' :(

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madamginger · 19/03/2016 19:41

Procrastinator ask your gp if they will give you sirdupla instead. It's the same as seretide but a cheaper version.
My DH has swapped to fostair too from qvar but he prefers it.

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ProcrastinatorGeneral · 19/03/2016 19:44

I'm five months off my annual review. I'm going to ask for an overhaul. Thanks for the headsup madamginger.

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memorial · 20/03/2016 07:48

GP here. It's not actually a cost issue but a safety one. A year ago a damming report on asthma deaths noted excess reliever use as an identifier for poor control and risk of death.
Of course in the current climate it was all the GP's fault. We have to be able to defend and justify every script and decision we make in this increasingly anti GP litigious culture.
Most decent GP will have made steps to reduce and review reliever use.
Damned if we do damned if we don't.

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memorial · 20/03/2016 07:50
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topcat2014 · 20/03/2016 08:14

I have about four on the go at once - although must admit I never think abou the dates. They run out when they stop 'puffing'.
Keep one in the car, the office, bedroom, kitchen drawer.
TBH I assumed any sufferer would do the same.
The thought of just having one - and needing to remember where it is - is enough to bring on an attack.

Still remember watching the film 'Hand that rocks the cradle' where the nanny sticks pins in all the inhalers..

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topcat2014 · 20/03/2016 08:18

I did change to a better reliever, though, and need the preventer much less - generally before gym etc.

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MistyMeena · 20/03/2016 08:38

You can buy salbutamol inhalers over the counter in Asda pharmacies. About £8 and you have to have about a half hour interrogation though.

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BettyBusStop · 20/03/2016 09:09

Memorial, it's not the reliever that's the problem, it's being allowed more than one preventer. Two (just the once) would give me a bit more wriggle room in getting my next inhaler.

Even the op says she only uses a reliever a couple of times a month, although I appreciate the risks of poorly controlled asthma that's not what we're talking about.

All we want is to not have a gap between a preventer running out and getting the next one. And to be able to have two relievers, one to live at home and one for my bag.

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