I've just come back from the JCP. This was the handover meeting from my very nice advisor to the commercial firm which will be 'providing' me with the Mandatory Work Activity Programme.
As of yesterday, all ESA recipients with a "12-month prognosis" are required to take part in MWA.
Translation: Everyone whom ATOS has determined too sick to work for a year has to do work-related activity, which is imposed by a private contractor. The contractor has the power to sanction (stop) benefit payments. I will, therefore, be going to meetings with people who have no medical knowledge and limited experience of training, who are being paid to push me into faux work. I will have to tell them all about my humiliating, distressing symptoms because they are the reason I cannot do a normal job. If they tell me to do something, at a certain time, which I can't do - they will stop my benefit. When this stops, my housing benefit will stop too.
I asked my advisor: What happens if someone's supposed to go to an activity and they have a seizure or something? She said they'll be sanctioned. It's the rules.
As an example of how rigid the rules are, she told me about a claimant she saw the other day, who has special needs. The claimant had not understood when they had to sign on. Their money had been stopped because they didn't turn up. Advisor said she had to explain about 15 times, due to claimant's SN. She then had to re-start the claim; the claimant didn't understand why and was very upset. The sanctioned money was gone for ever: my advisor said she no longer has any discretion. They system took this claimant's money away and there's no ability to override it.
As an aside, I picked up some leaflets about the new rules; receptionist asked me if I needed to claim an ancillary benefit, and tried to tell me I couldn't have the leaflets if I wasn't making a claim!
Imagine how the claimant with SN would have got along with that ... :( 