To be so relieved i could cry?

[redflag]

My husband has chronic lung decease, he is very ill. To the point where i have to do most things for him. He finally received his DLA decision today and was given hight rate care and mobility. It has been a complete struggle for us and we have been waiting for 6 months.


I am just so glad its all over with, it was completely soul destroying!

[BelleDeChocChipCookieMonster]

It's good that it will help you red. I know why they make people wait, I do think it's unfair though.

[piratecatClaus]

oh the relief for you, great news. xx

[redflag]

Well thats good then, at least it will help you out with travel.


God its a nightmare isn't it!

The thing is, i don't blame them, its all the people who abuse the system that have made it so hard for the genuine cases to be listened to,when you see people who "cant walk" break dancing on BGT makes you think, no wonder they are so militant when giving it to knew people.


I am just glad, he has an indefinite award too, so no need to drag the poor man off to any docs (they always have stares and he cant manage them!)

[BelleDeChocChipCookieMonster]

It does also mean that I qualify for a disabled persons bus pass and additional working tax credit though.

[BelleDeChocChipCookieMonster]

I don't think it's worth the stress for another £18.95 a week.

[ABitBatty]

The CAB will handle an appeal for you and arrange for someone to represent you at a tribunal.

[BelleDeChocChipCookieMonster]

Yes, they requested information from the consultant and my GP, this was after I sent them reports from them both when I sent in the initial application.

You should apply for carers allowance. I know that this must have put you off but sometimes you have to jump through these stupid hoops.

[redflag]

Zeno, i do and i am going to apply (they are sending me the forms, been told that will be backdated too) it all seems a bit much.

[redflag]

Really? You should still appeal, Did your doctor write to them for you?

[zeno]

Good news Red Flag - sorry it's been such a struggle to get there. Make sure you claim Carer's Allowance too if you do 35 hours or more of care for him in a week.

[BelleDeChocChipCookieMonster]

I've just called them. I'm getting low rate for care and nothing else. I have MS, it must appear that having burning feet and stumbling over because the muscles are weak means I can still walk without any help and that I don't need supervision . It's better then a 'sod off though.'

[redflag]

We had to appeal, then they had to admit they make a mistake and withdrew the refusal!

They really mess with peoples lives its not on!

I hope its all sorted for you soon Belle, demand to speak to the decision makers.

[BelleDeChocChipCookieMonster]

Well done, you must be so relieved. I'm still waiting for them to sort mine out, it's been 3 months now. I find it appauling that they make people wait like this. I've almost given up hope as I'm expecting a 'sod off' and having to appeal.

[redflag]

Onetoomany, They approach every case with suspicion, i said to them on the phone, "he has bloody lung decease, you cant fake that!!" i feel so sorry for every one who has to go through the stress of applying, its the last thing disabled people need to be doing!

[redflag]

JetLi, its a nightmare isn't it, i had begun to wish we had just never bothered applying after the first few weeks.

I remember they contacted the wrong doctor and said "we we just assumed it was not as bad as you made out!" i went on to explain we had never seen this doc at all!

They are useless. i cried myself to sleep so many times, and it started to make Dh think and say "oh what is the point anymore!" That was really hard to hear.

Good luck with your claim.

[Onetoomanycornettos]

Crying with happiness (and with the stress of it all) seems entirely appropriate, however it's extremely annoying that the system is so inefficient and stressful for you, when you are more than entitled to help.

[rodformyownback]

Wonderful news - sounds like you deserve some. Have a lovely Christmas!

[hairyfairylights]

Great news. Those particular forms are a blooming nightmare!

[redflag]

Thanks for the replays re DH lung condition, its his bronchiole tubes that are damaged really badly, not actually sure what can be done to help him, thankfully his heart is good and strong. xx

Its being backdated, so it started on the 1st June this year, its a lot of money now,bit shocked at how much to be honest.

Hello chippingin, It make me so cross when i hear of people scamming the system, makes me really mad!

[onmyfeet]

Oops, thought it didn't post, sorry!

[onmyfeet]

I am sorry your husband is ill, but glad that you have one less burden hanging over your head. Now you can enjoy your time together. Is a lung transplant a possibility?
Bless you both.

[onmyfeet]

I am sorry your husband is ill, but glad that you have one less burden hanging over your head. Now you can enjoy your time together. Is a lung transplant a possibility?
Bless you both.

[JetLi]

Well done redflag - hope they backdate it as well We have been struggling with attendance allowance so know some of what you've been through xx

[ChippingIn]

It makes me so angry that people like you have to fight for things like this - it's just not right! I want to take the public purse and spend it far more wisely than the govt does (and that's no matter who they are!).


I am really, really pleased for you that you now have it in place and can concentrate on other things.

Is there anything that can be done to help DH?

[redflag]

Thanks xxxx

Its just been such a struggle, they were almost purposely avoiding having to give it to us.

But its all over now, can just relax and not have to think of it again, They had so much medical info by the end of it all.

We can carry on with our lives now.

My poor husband is only 31 and has the same lung capacity as a 90 year old, he is so so ill poor thing, i pray every day he will live longer than predicted.