I have been lurking on here for a while and think its about time I joined in!!
Now where to start!! DD is 3.1yrs old but is probably at around 18-24mths level at the moment. She has mildish hypotonia, Reflux, DD was severely failure to thrive at one point because of this, thankfully that has now been resolved since her Reflux has been properly treated but she still has feeding difficuties, although she will have anything in her mouth, she will only swallow fluids and purees, any lumps/funny texture she will gag on. She took her first steps at 18 months but it took her a LONG time to master walking, she is still quite unsteady and walks with a wide gait and struggles with kerbs and steps. She does struggle with her fine motor skills although she has made a lot of improvement of late. She has very little speech, probably around 20 words at the moment and most seem to start with B ie Ball, Bus!! Receptive language came very late, it is only the last year that she has started to follow instructions and understand what we say. She is very socialable, loves playing with other children, she is very cheeky and is very independent despite her lack of speech.
She has had numerous tests which has all been negative apart from the barium swallow which showed severe reflux. We are under a geneticist, who hasn't really come up with a lot, she does want to test DD for Prader willi syndrome next time she has any blood tests, but she said that she would be very surprised if DD has it, but that she cannot ignore the feeding difficulties and FTT that DD had as a baby and now has practically doubled in weight even though she needed to IYKWIM. DD's development peadiatrician suggested that her problems could be down to her feeding difficulties as a baby as she may not have been getting enough nutrition to develop properly and she certainly has made tremendous progress since her FTT has been resolved.
DD currently attends a special needs nursery 3 days a week and our local preschool group for the other 2 days, but I am considering sending her to the SN nursery full time in September.
Anyway, I could go on typing for days and I don't want to bore you all just yet!!, Looking forward to getting to know you all!!
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61 replies
delllie · 19/02/2005 14:17
OP posts:
Socci ·
19/02/2005 17:54
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