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FINAL DIAGNOSIS FOR BONKERZ DS.................................

(79 Posts)
bonkerz Thu 21-Aug-08 16:42:26

DS has AUTISTIC SPECTRUM DISORDER!!!!!

ADOS test DS scored highly in all 3 areas, in 2 areas he scored double the cut off and in the thrid area he scored one point above the cut off.

Will come back later and update.

Tclanger Thu 21-Aug-08 16:46:54

Message withdrawn at poster's request.

twocutedarlings Thu 21-Aug-08 16:49:28

Well Done Bonkerz!!! grin

Im chuffed to bits for you!!

coppertop Thu 21-Aug-08 16:49:29

I'm glad you've finally been able to get an answer. xx

misscutandstick Thu 21-Aug-08 17:14:21

its great to hear you finally have an answer!

did you stand and shout loudly "HAH! I SOOOOO TOLD YOU SO! - IN YOUR FACE!" or did you manage to restrain yourself? grin

{{{hugs}}} XXX

jenk1 Thu 21-Aug-08 17:21:16

this must be a relief bonkerz, well done to you for never giving up, what a good mum you are smile

be kind to yourself because the dx is a bittersweet time.

jen
xx

bonkerz Thu 21-Aug-08 17:26:30

thanks guys. Right now i dont know how to feel. Hundreds of emotions.
I feel relieved he finally has the 'label' to get him the help, i feel heartbroken that its taken this long to get this DX, i feel pleased that i pushed and angry that i HAD to push.
On the drive home from the doctors i stopped at the off license and am half way through a bottle of jacobs creek!! Tears are flowing easily but im OK.

Do i tell DS and if so WHAT do i tell him? All this time we have been going to see the doctors i have been telling him its to find out why he gets angry....what do i say now? Does anyone know of any child friendly books or web sites i can look at with him?

OH and thankyou so much guys for seeing me through one of the hardest things ive had to deal with....without MN support and all you amazing ladies telling me i was not to blame and not imagining it my son would not be in the position he is in now and be closer to the help he so desparately needs.

THANK YOU

twocutedarlings Thu 21-Aug-08 17:38:32

www.nas.org.uk/nas/jsp/polopoly.jsp?d=425

There are these books on the NAS site, im not sure if any of them are any good, but thought this might help.

We are yet to cross the hurdle, i think i will wait until she herself realises that she is differant.

jenk1 Thu 21-Aug-08 17:42:42

i cant remember how old your ds is bonkerz but my ds was 10 when we told him, a few weeks after his dx, and we used the red book about AS on the link that twocutedarlings has posted.

HTH

bonkerz Thu 21-Aug-08 17:44:43

see DS is 8 and knows he has a problem with getting angry. Im not sure how much he actually understands though TBH, I think he knows he is different but cannot honestly say he actually cares about it too much IYKWIM

misscutandstick Thu 21-Aug-08 18:25:17

we told DS1 when he was about 10 too, we explained because he was getting so frustrated and angry about stuff that didnt come easily to him. We also explained that it was also a good reason to try harder, not an excuse not to do something. sad we also had to give the same talk to DS2 when it was discovered he had dyslexia - actually he was quite pleased, he thought he was somehow 'thick' or 'useless' because certain things didnt come easily to him either. sorry to digress.

{{{hugs}}} for tonight and the next few weeks while things settle in your head. Congrats again on getting this far. Well done you, for fighting his corner for him. XXX

siblingrivalry Thu 21-Aug-08 19:23:24

I am so relieved for you, Bonkerz, and for your ds. Now you can start to move forward. Best wishes for you both x

bubblagirl Thu 21-Aug-08 19:40:17

im so glad you fianlly know and will get appropiate help hope your ok it is so roller coaster even if you were expecting it xx

deeeja Thu 21-Aug-08 20:08:43

I am so pleased you can finally get some help for your ds now Bonkers, and he can get into a better school environment.
All the best,x.

daisy5678 Thu 21-Aug-08 20:09:15

Oh, it's such a mixed time!
I am so pleased for you, because it's what he is and the dx he needs, and it will open up more help. But also sad because I know how, when it comes down to it, the label of ASD opens up doors, BUT we don't want our sons to have this condition.

Hahahahaha to the LEA though - that's their Tribunal position screwed!

Would be really interested to see his ADOS scores/ comments/ outcomes after what you said he was like in the appointment.

It is the right result. Really pleased for you and for B and how this will open up the right school for him.

grin for you. Enjoy the booze! You deserve it for keeping fighting for your boy. Like you say, it's sh1t that we have to, but look how well you've done for him. xx

SpookyMadMummy Thu 21-Aug-08 20:17:10

Phew. Its such a relief to know isn't it?
You can finally start to live with ASD instead of living with a child with unidentified problems.
I remember getting the diagnosis for DD. It did not necessarily open any doors, but it did provide her caregivers a better picture of who she is.
My DD is 6 and as yet we have not told her she has ASD. I don't think her cognitive capacity can cope with it.
I hope you can get the support you need smile

bonkerz Thu 21-Aug-08 20:22:17

ados scores were (if i remember correctly)

module 1: 14
module 2: 22
module 3: 3

think the cut offs were 8 /11/3 so he met all 3 modules.

on the ADI-R he hit the first 2 very high and missed the last cut off by 1 point. does that make sense?

daisy5678 Thu 21-Aug-08 21:02:06

ADI score does, but not the ADOS cos the scoring on J's was only out of 22 overall, but I get the picture!

Really pleased for you.

Have you rung the LEA yet?! grin

ouryve Thu 21-Aug-08 21:35:36

Glad you finally got answers after all the uncertainty, Bonkerz.

bonkerz Thu 21-Aug-08 23:21:47

rang the LEA who were insistant that they wanted to see the report before making any decisions. I read it to her over phone and also read her the report from PRU which said they also noted lots of problems etc along the ASD lines and that shocked her a little cos PRU telling LEA DS is making friends/ok with routine etc! our chat ended with her saying we would probably get our school and she would get it back to panel ASAP!! Still reckon we will be at appeal in september UNLESS they offer the ASD unit up the road!

TotalChaos Thu 21-Aug-08 23:22:58

that must be a relief but also feel a bit shitty too. would you be happy with the ASD unit rather than priory?

bonkerz Fri 22-Aug-08 09:20:46

obviously pripry would be fantastic BUt i do think DS would be better in the unit and then he can have full access to the MS. Also means DD could go to the same school!

daisy5678 Fri 22-Aug-08 12:06:57

So which one are you asking for at Tribunal?

If the LEA are sensible, they'll agree to the mainstream as it's far cheaper for them and avoids the Tribunal. He could start in September then! How good would that be?!

bonkerz Fri 22-Aug-08 21:31:23

am asking for the priory school at tribunal BUT have made it clear to the LEA that if he can get into the unit /MS school i would prefer that! hopefully they will read the docs report and see it makes sense and go back to panel before the appeal.

flyingmum Mon 25-Aug-08 16:12:14

Congratulations bonkerz. Really pleased for you and mini Bonkerz. He's a lucky fellow to have such a wonderful mum.

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