Ds2 is 6, in Y1 and has, we believe, Pathological Demand Avoidance Syndrome. This means that he can be a Jekyll and Hyde character; lovely, funny, charming and loving one minute, then the next will refuse to do anything asked of him no matter how simple, shout, run around, be violent, act erratically and basically be a whirling dervish. He also lives in a fantasy world of his own and has sensory issues and extreme anxiety.
All of this is known by the school, we have fortnightly meetings (Head, class teacher and myself) and I thought they understood.
I have been informed by his teacher that ds will not be allowed to go on the planned Teddy Bears' Picnic next week because his behaviour has been bad this week - arguing with staff, refusing to do what he is told, being excitable etc. None of which is new or surprising.
I am fuming! All of the 'professionals' involved with ds - EP, CAMHS, Specialist Teacher have all said again and again that punishments have to be immediate and the school just seem intent on disregarding everything they're told by them and by me.
They can't do this can they? I already go on school trips so I would go on this too if it was a case of Health and Safety, but his teacher has very firmly said that no it is a sanction but that she will mention my displeasure(!) to the Head.
I know that this isn't a big deal in the grand scheme and I've certainly fought worse with them, I thought that they were finally understanding but now I think they just want him to go away.
Here are some suggested organisations that offer expert advice on special needs.
SN children
School want to punish ds (PDA) next week for behaviour this week
Lambskin · 15/07/2011 17:11
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