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I can't get a 'Diagnosis' of Aspergers

(57 Posts)
Oblomov Thu 11-Nov-10 15:11:23

Private pyschologist said that when the ASDS questionnaire, "he did not even the criteria for borderline AS".

But she said his Theory of Mind tests by the other Dr and her tests, and our recollections of events, had shown Empathy was a real problem. Plus she lists : 'adult language', not wanting to please parents, poor peer friendships, echoing of teacher often in sarky voice, with sarky comments. I could go on.

But I am left with no diagnosis. But people say AS is Spikey. They say you can't have a diagnosis of 'Aspergers tendancies ' ( see, I have researched all the old MN threads !!)

she says he needs to "be treated as an 'AS child".

But where does that leave me ? As good as useless, or so it feels.

IndigoBell Thu 11-Nov-10 15:40:15

Has a child development pead assessed him? I didn't think a clinical psychologist could diagnose him.

Faaamily Thu 11-Nov-10 15:58:00

Only a Paed or a multi-disciplinary team can diagnose AS. A Psych cannot diagnose alone.
Go back to your GP, ask to be referred to a Paed and do not accept this wooly opinion.

DLIguy Thu 11-Nov-10 15:59:25

Have you wondered whether his ears are OK?

Is he sometimes constipated and other times incontinent?

Try the NAS help line 0845 070 4004 or web site www.autism.org

Oblomov Thu 11-Nov-10 16:03:35

Top Paed saw him. Privately. suggested it may be ODD. He referred us to his favourite pyschologist. Privately. Paed said she would diagnose him for us.

I have also been put back into the NHS system and have a Tier 3 assessment, initial appointment for Jan 2011.

But I was kind of hoping that I would get a diagnosis out of pyschologist. I know he doesn't tick many of the boxes. But the ones he does, he's severe. her words.

Oblomov Thu 11-Nov-10 16:06:09

He was assessed for hearing. not for lack of, i.e deafness, but oversensitivity. He is like me. Can hear a mobile vibrating, in kitchen, if we are out in the garden. They said not to worry. And becasue mine is very perseptive, I didn't worry.

DLIguy Thu 11-Nov-10 16:07:00

It seems common that ASD people also have Anxiety type conditions such as ODD.

IndigoBell Thu 11-Nov-10 16:09:55

Oblomov - Lucinda / DLIguy always asks random questions not related to the thread. Just ignore him.

Faaamily Thu 11-Nov-10 16:09:59

Oblomov, you've been done a great disservice. The Paed should not have referred you to a private Psych for a diagnosis. The Paed could diagnose. A medical doctor could diagnose. A multi-disciplinary team could diagnose. But a Psych abso;utely cannot diagnose ASD alone, private or NHS.

I would chase up the Jan appt and see if you can chivvy them along a bit. From bitter experience I have learnt that harassing, cajoling, crying, begging etc does (often) work. Ask to be informe of any cancellations at the evry least.

DLIguy Thu 11-Nov-10 16:18:38

IndigoBell. They are not RANDOM questions. They are appropriate questions asked to assist diagnosis.

Oblomov Thu 11-Nov-10 16:19:32

Faamily, I have already cried. said I would take any cancellation. Jan 4th was best they could do, they said.

So, what do I do. I paid £300 to see the Top Paed. I am paying £85 everytime i see pychologist. I did what I was told. Silly me.

daisysue2 Thu 11-Nov-10 16:25:20

We had our diagnosis from a Clinical Psychologist under a Psychiatrist. It's the psychologists who works though reams and reams of paper and reports, if the diagnosis isn't quite so clear cut. If it's obvious to diagnose then the paed can do it quite quickly by talking to parents and observing the child.

In my dds case there were reports going back four years, from development paed, SaLT, OT Teachers. Many said ASD others ADHD etc etc. She put all the reports together and interviewed, them all again. The report was very extensive going on for about 8/10 pages.

People I know who have diagnosis from Paed is where has been very clear and quite obvious, even I could have diagnosed it.

Your psychiatrist/Paed will probably use the report himself and make a diagnosis from it. I'm not saying that it should be this way but with waiting lists so long often parents aren't offered any alternative. I went to see quite a few private people but the costs were so high I gave up and just waited for the referal to come from CAMHS eventually.

Oblomov Thu 11-Nov-10 16:28:36

I feel like i've been ripped off. And mucked about.
I have just rung tier 3. they said a duty something-or-rather, would call me tomorrow.

WetAugust Thu 11-Nov-10 20:52:26

Faaamily

You're wrong.

A Psychiatrist can dx alone. I have 2 dx reports from Psychiatrists one NHS and one private.

A Clinical Pyschologist can dx alone too.

A competent Paed with faith in their own abilities can dx alone - but are seldom permitted to as the current vougue is to include every man and his passing dog in the process - which generally obscures the issue rather than helping reach a careful dx.

Oblomov

Did you ascertain this private Psych's qualifications? What experience dd they have of dx-ing Aspergers. Some Psych's knowledge is woefully inadequate on ASDs.

I wouldn't accept the dx if you don't agree and would ask for tertiary referral.

Also, really bad form for your Paed to suggest that you went private.

WetAugust Thu 11-Nov-10 20:56:45

Lucinda - ODD is not an anxiety disorder. You're thinking of OCD.

ODD is a favourite in Nottingham and also parts of London. Ring a bell Oblomov?

Sorry - didn't read all your post. You're doing the right thing with tertiary referral. Rip up today's dx - it's crap.

And this is important - don't tell the tertiary people about today. You don't need to. Don't even mention the dx you got today - not that it's a propoer dx anyway. What you want from the tertiary team is a dx that is not tainted by previous opinions. If you start showing them this Pysch's results their deliberations will be skewed.

DLIguy Thu 11-Nov-10 21:03:34

A common co-morbidity is ODD with Anxiety/depression.

To the OP, next time you see your GP ask her about co-morbidity with Aspergers syndrome.

WetAugust Thu 11-Nov-10 21:05:04

More Bollocks from Lucinda - above - IGNORE please.

DLIguy Thu 11-Nov-10 21:06:43

A common co-morbidity is ODD with anxiety / depression.

Google it for proof.

WetAugust Thu 11-Nov-10 21:14:26

LOOK LUCINDA - YOU STUPID* FUCKING MORON

ODD = Oppositional defiant disorder (ODD) is described by the Diagnostic and Statistical Manual of Mental Disorders (DSM) as an ongoing pattern of disobedient, hostile and defiant behavior toward authority figures which goes beyond the bounds of normal childhood behavior.

OCD = Obsessive Compulsive Disorder which is and anxirty-related condition.

I am starting to think you're doing this deliberately to wind people up.

Congratulations - You've suceeded.

For fuck's sake - how much longer do we have to tolerate you and your utterly crap advise.??

DLIguy Thu 11-Nov-10 21:21:47

A common CO-MORBIDITY with ODD is ANXIETY / DEPRESSION

If you Google Comorbidity and ODD you will see that Wet August is wrong.

WetAugust Thu 11-Nov-10 21:25:36

CRAP ALERT ^^^^ ABOVE - IGNORE LUCINDA

Actually I think you all are ignoring Lucinda.

It's just me that's falling for it.

BYE BYE MORON - YOU REALLY DO HAVE A BAD CASE OF ODD YOURSELF. grin AS WELL AS OCD AS YOU KEEP REPEATING YOURSELF.

Perhaps it's your anxiety grin

DLIguy Thu 11-Nov-10 21:27:12

Troll Alert Wet August is illiterate.

WetAugust Thu 11-Nov-10 21:28:44

CLASSIC - ROFLMAO

being illiterate is the least of my worries

ROFLMAO again. grin

fightingthezombies Thu 11-Nov-10 21:28:56

Arse

DLIguy Thu 11-Nov-10 21:36:17

Wet August you need to chill out.

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