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Miscarriage/pregnancy loss

Surgical management during COVID-19

40 replies

terrified2020 · 12/04/2020 19:29

Hi all, firstly sorry to everyone who is posting on this board - it's awful to be in this position.

So, this was my first pregnancy and unfortunately I found out yesterday that the baby no longer has a HB. In a nutshell, I've had bleeding on and off throughout this which triggered several visits to my EPU. Yesterday (Saturday) I was 9w5 and had just had a successful scan at the EPU on the Tuesday. Unfortunately I had an extremely heavy bleed on Friday, and with the EPU being closed for the BH, we went for a private scan which confirmed no HB.

However, they said they also potentially saw a partial molar pregnancy, so I had to go immediately into A&E. They took bloods and conducted an internal exam (cervix closed) but because I wasn't bleeding lots at the time, they said I had to wait until Tuesday when EPU will be open and they can scan again/confirm themselves.

Anyway, I am extremely worried and scared that because of COVID I will not be offered surgical management (D&C) which is what I want. I have read horror stories about the suffering people go through when miscarrying at home, and I am terrified.

I know that if a partial molar is confirmed I think there might be some exceptions because of this being a pre-cancerous condition, but I'm just so worried about not being able to have a D&C. I just want this over with.

Can anyone confirm that they've still been offered surgical management during this time? I appreciate all the Trusts will be different, but it would ease my mind a little to know that it is still a potential option.

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terrified2020 · 12/04/2020 19:40

I've just read the RCOG guidelines //here www.rcog.org.uk/globalassets/documents/guidelines/2020-04-03-guidance-for-rationalising-early-pregnancy-services-in-the-evolving-coronavirus-covid-19-pandemic.pdf and it says that for a MMC the options are medical or MVA (essentially same as D&C), so just praying that I'm offered the surgical option...

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SkyBlue20 · 12/04/2020 19:57

Afraid I can’t offer any advice but I’m in a similar situation (MMC found at 12 weeks) and also hoping for a D&C - I have an appointment on Thursday so will hopefully find out more then. I’m so sorry for your loss and hope you get the management you want xx

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terrified2020 · 12/04/2020 20:07

Thanks Sky - I've also been doing some research on BPAS clinics and it seems like they might be able to pick up NHS cases although telephone consultation needed.

I'm not sure whether their COVID restrictions (10w or less have to have medical management, i.e. pills) apply to miscarriages, but as you're already over that point, and I would be by Tuesday, then I'm hoping that's an option I can explore if the NHS can't do it themselves.

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Elouera · 12/04/2020 20:31

Sorry for your loss and that you are in this situation. They may want to do medical management so a proper autopsy/histology of the products can be done, regardless of the info you read about MMC. Unfortunately, this isn't a 'normal' MMC. There is also less chance of perforating the uterus with medical management. (this is very rare though BTW, but still a risk). I don't know 100%, but BPAS may not offer this for a molar pregnancy- due to the need to have further testing done.

I was in a similar position with my 1st pregnancy. I was 11 weeks though and mine wasn't molar. I just assumed I'd have D&C. Due to the perforation risk and the fact I have a few small fibroids, the consultant recommended medical management. I personally suspect it was also to be able to perform the autopsy. It was the last thing I'd considered and was really worried about pain.

It wasn't as bad as I thought at all. Yes, achy and painful at times, but all I needed was paracetamol, although codeine was available too. Worse part was my face got red, and very hot, also nausea and diarrhoea. Its not a reaction, just a common side effect which does pass quickly.

Take a list of questions you want to ask on Tuesday as its easy to forget at the time. Best of luck and keep us updated xxx

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tryingtimes2020 · 15/04/2020 07:11

Hi OP here, these accounts are throwaways and I forgot my other one. An update for those who might come after.

Well, two pieces of good news - I rang EPU first thing on Tuesday, and although I was petrified they'd think I was 'crying wolf' with the amount of times I've been already re. bleeds, within half an hour they rang me back with a slot that morning.

First, I was seen and they confirmed that there was no longer a HB, but they did not think there were any signs of a molar pregnancy. They understood why someone scanning me for the first time might think that, but they were pretty confident from my old scans that it was instead just the areas of bleeding (hematoma) they'd previously identified breaking down.

Second, I was scheduled for my preference of surgical management under GA the next day (i.e. today). This basically means that the tissues will be examined in any case, so if there was any chance of it being molar, that will be found via pathology.

I don't believe that I was offered the surgical management because of the possibility of partial molar - they said it is classed as emergency surgery, so my Trust at least is still offering it as an option for those who are worried it might not be available during this time.

The sonographer did try to say at first that she'd like me to wait a week and come back, but I was adamant there was no way I was doing that. When the midwife came in, she also said that the doctor had mentioned about my preference for surgical when I came in on Saturday, and although they always advise expectant management as a first option per NICE guidelines, they respect whatever choice the person wants to make.

They said there were some minimum criteria I had to meet (certain size of fetal pole, having an internal exam, confirmation by two sonographers) which had all already been done just during the scan, so straight away she was on the phone to book me in. I was so glad I'd been clear with the doctor when I came into A&E - I don't think they would have tried to dissuade me, but it had clearly gotten across to them that I just can't visualise coping with the other methods.

Everyone was so respectful and sympathetic - I just kept thanking them a million times for seeing me and facilitating my wishes. The past 24h have just been nervously waiting, hoping that everything will 'stay in there'. It's been awful as during the night I had some terrible stabbing pains and thought that was it; I've only slept about 3h on and off. My husband has been amazing, I couldn't've done it without him.

I'll try and update again when I feel up to it after the surgery, but hopefully everything will go smoothly today, and I'll be back home tonight with this behind me.

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FabulouslyElegantTits · 15/04/2020 07:46

Good luck today OP 🌸

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Alonelonelyloner · 15/04/2020 08:01

Much love to you today OP and thanks for coming back to update.

Miscarriage can be incredibly painful and anything which informs, reassures, listens and shares is important.

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SkyBlue20 · 15/04/2020 08:50

Good luck OP and thank you for the update. you’ll be back home recuperating in no time. Thinking of you 💕

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SkyBlue20 · 15/04/2020 17:28

Thinking of you OP, hope today went well xx

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tryingtimes20 · 16/04/2020 07:42

Hi all OP here, slight name change again because my computer decided to reboot by itself yesterday, so I lost the window with the previous username!

Fabulously, Alone & Sky - thank you so much for the kind wishes, that's so lovely of you. I saw them before I left for the hospital yesterday and they really made me feel a lot better.

Sky - I know you've got your appointment today. I'll be thinking of you too; if you feel able, please come back and let us know how things go.

OK, I will try and be as detailed as possible about what happened, so if you are squeamish about blood (although there is nothing really graphic IMHO) then maybe skip certain bits. I know I was combing through others' experiences on this board before yesterday, so hopefully this can help others that come after too.

I was admitted into hospital at 1100 after being instructed to not eat anything after 0800 or drink anything after 1100. I attended by myself; my husband was not allowed to accompany me although I believe this would have been possible outside of the current situation. The hospital has been eerily quiet the past few occasions I've been going for scans, and that just seemed to be more so. I was quickly booked in at the Day Unit, and shown to my bed/cubicle.

After 30 minutes later, the doctor that I had seen on Saturday came. He took some notes from me again and explained that he was going to administer some tablets (I believe these were misoprostol) to 'prime' my cervix for the surgery - basically to help it dilate (open) and make it easier later on to remove everything. This is one half of the drug that is administered for people electing to undergo medical management. He warned that I might experience some cramps/bleeding.

I will honestly say that this was probably the worst part of the experience as I found it extremely undignified lying there having to have four pills shoved (painfully!) up in me so they could be next to my cervix. I think because of a bit of shock, just being a bit sensitive and also by myself, I found myself crying a little, but quickly got over this. The nurse who was chaperoning was very kind and brought me some tissues.

To be clear, this was the worst part (for me!) and it was over in about 60s, so...! They then essentially left me alone (with nurses popping in and checking every so often). Then came the long wait - other people were admitted onto the Unit (all ladies). There was one poor soul who I think had just undergone a partial mastectomy, so although I didn't see her I could hear the conversations she was having with the nurse and my heart went out to her.

I kept myself busy doing some puzzles, reading and texting my husband and the time went by. When it came to 1300, a nurse came by and said I could have some water to drink until 1500. I took this to mean that I wouldn't be going anywhere until at least after 1500 (TIP: if you are allowed to drink again after the time you were told to stop, unless you are told explicitly, then you can presume you will NOT be admitted to surgery until at least 2h after you cease this activity to ensure everything has cleared). Although inside I did think 'oh no', I was very dehydrated, so was just glad to have some liquid at that point.

Time continued to pass - I'd had the pills in me for about three hours now, and had only had a few very small cramps and I don't believe any bleeding during this time, but from about 1500 things did start to get a little uncomfortable. To be clear, this was nothing terrible at all and just like moderate period pains - if I had been at home, I could easily have handled this with a HWB and OTC painkillers, but I had to tough it out mentally which was a little rough not knowing when I'd be seen. I also had a terrible fear that they were going to come and say things had been postponed until tomorrow but I tried to remain positive.

At around 1600ish, the nurse came round to say they would be calling up to surgery within the next hour to find out what was going on. There were two other ladies in the room with me now - one who had come back from surgery and was out of it, and the other who was waiting - and the waiting one was being a bit strident asking when she'd be seen (TIP: as far as you can, be polite with your interactions with the nurses. Not only are they doing a tough job, but if you're rude it won't earn you any favours with them, and often times they don't know any more than you!). The lady got a bit of a snippy answer that she might have to stay in o/n which sent a chill through me, but I just tried to stay calm.

At around 1630 my 'guardian angel' appeared. Someone came onto the Unit and I heard them ask for my name, and I knew things would be OK. It was the anaesthetist come to run through the pre-checks; he assured me I would be seen that day which obviously made me feel a lot better and gave me a bit of a boost to help with the cramps.

About an hour later, some of the people from the surgery team came to prepare me. I put on the gown/thrombosis stockings etc. I also thought I should go to the toilet as I hadn't been since I was first booked onto the Unit, although I was quite scared as I had bled a little by this time. When I did go, there was barely anything on the pad, but I felt something come out into the water and there were quite a lot of clots etc - I didn't look closely and just quickly flushed. I was on a bit of an adrenaline rush at this point, so the cramps etc went away quite a lot and I was just feeling very glad that I was so close to being seen.

I was then wheeled up to the OT on the trolley, which was unusual as I thought I'd be walking! Because of corona, they explained I'd go straight into the OT and be sedated in there, vs. having the anaesthetic in the little separate room, which I said was totally fine. Being the sort of person I am, I enjoyed seeing the OT. The people I had with me were so courteous, polite and friendly. I was never left alone at any point. They put the cannula in my hand (teeny tiny bit of pain, but at that point they could have said they were going to hit me on the head with a hammer and I would've accepted) and attached me to all the monitoring machines etc.

The consultant who was doing the surgeon had a bit of an emergency just before they were meant to come over so I had to stay on the OT bed for a little while, but I was with two people who I had a nice conversation with about all sorts of things! I didn't feel scared, and was just ready to get on with it. Then it was announced the consultant was here, so everyone started to go about their roles. At this point I started to feel a little anxious so just closed my eyes and did some deep breathing. The next thing the anaesthetist was there, and joked as to whether I was asleep already.

They put an oxygen mask over my face and explained they were going to give me the sedative and my cannula might feel a bit painful/cold. I remember saying that it felt a bit cold and then I was gone. The next thing I woke up, still in the OT, and I was crying. I felt so embarrassed! I didn't really understand why I was crying, but I seemed to remember a very vague bad dream. My legs/arms were also shaking a lot. Again, I was never alone - a lady who'd been assisting the anaethetist was right there, got me tissue, and explained everything I was going through was a totally normal reaction to the GA. I asked whether everything had gone OK, and they reassured me it had.

After they were satisfied I was alright, they wheeled me back down to the Day Unit. I think this must have been at around 2000 by this point. The shaking/crying stopped very quickly, and I felt fine - I was in no pain. I kept thanking the team and saying how grateful I was when I said goodbye. When I arrived back at the Unit, the nurse said that there'd been a bit of a screw up with shifts, and so I would need to be moved to another Ward for recovery. At that point they could have put me in a shoebox, so I said it was no problem at all. They did one observation before I left - checked my blood pressure, HB, the bleeding (I just had a pad resting between my legs) and all was fine - and gave me some water/biscuits.

I was wheeled onto a different Ward where I offered more to drink and a sandwich. When I was moved from the trolley onto the bed there was quite a bit of red blood on the pad and another pad I had underneath me, but I still felt fine. I also had to urinate into one of the cardboard kidney tray things - it was just red blood mixed with urine, no clots or anything. I was so hungry - I had to ask for more sandwiches (which I got, haha). They did two sets more of obs, and I asked for some painkillers as I started to get some more mild cramps (again all within the realms of period pain). I was given some weird tasting liquid (morphine? paracetamol?) and immediately before I was discharged three pills which I think were various paracetamol medications.

At around 2200 they said I could leave so my husband picked me up outside. I felt very good, in no pain. I didn't take any more pain relief last night, and just used a HWB for some niggles. This morning I feel great - there has been a small amount of bleeding overnight, so now I'll just continue to monitor things until this hopefully stops over the past 1-2 weeks.

So, summary. I would highly recommend this option to anyone who wants to have a quick resolution to a very upsetting and unpleasant time. The waiting after the administration of the pills and the parts towards the end of that time was a tiny bit hard, but I wouldn't even hesitate a second to do this again if I (I hope not) ever need to choose from the options someone in this position has. I know we are in a particularly challenging time atm, but I felt that all of the medical professionals I saw were polite, friendly and very competent.

Also, a final tip - I was given a big incontinence nappy to wear instead of pads when I was moved onto the final Ward. I actually found these much better than pads because you 1) don't have to worry about any accidents out the sides of pads on your pants as you just throw the whole thing away when you're done, and 2) you could have some big gushes at the beginning before things settle down which I think a pad might struggle to hold, but YMMV.

I really hope this helps anyone who is thinking about whether an ERPC might be right for them. For me, it was exactly the right choice. I plan to focus on my recovery now, and when it's right, my husband and I can start to try again.

Wishing all of you ladies the absolute best on your personal journies.

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Elouera · 16/04/2020 08:17

Thanks for the update and I'm glad you were able to have you preferred choice. Take it easy and have some time to heal Flowers

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SkyBlue20 · 16/04/2020 10:09

Thank you for the update, OP, it’s so informative. I’m glad you’re doing ok 💕

I’m at the hospital now - they tried to fob me off for another week but I cried and kicked up a fuss and now they’re going for medical management, surgical isn’t available due to CV19 unless I’ve tried medical two or three times and that hasn’t worked. Just waiting for all the consent forms and whatnot and then they’ll go through everything with me. A bit disappointed but it was expected. I’m terrified though - really haven’t heard nice things about the medical management. Just hoping it works first time and all of this can be over, I’ve had weeks of waiting. Also, it’s my birthday next week and I would rather not be having to go through another medical management over that, too!

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SkyBlue20 · 16/04/2020 10:10

Also meant to say, I hope to see you on the TTC boards when we’re both ready, OP. Best of luck to you with everything 💕

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tryingtimes20 · 16/04/2020 10:29

Hi Sky, I'm so so sorry to hear they haven't offered you surgical management :( It really seems to be luck of the draw atm re. what Trusts are offering which isn't fair at all.

I know there are lots of ladies on here that have been through MM (@Elouera who's already posted on this thread has) and I'm sure they can give you some support and reassurance. I'm presuming you'll get given the tablets today so that you can start as soon as you feel ready...? I'll be thinking of you - please let us know how things go, come here and have a vent or whatever you need.

Also, just to say if you need immediate reassurance or someone to talk to straight away, the Miscarriage Association are great - and they are open (as opposed to Tommy's which appears to be permanently closed atm because of COVID) to take calls. I rang them on the Monday when when I was just feeling really low, and the lady I spoke to was wonderful - she just listened and reassured me. You can ring them about anything - they even have at OOH service up to 10pm.

Hope to hear from you again if it's want you want, and an early Happy Birthday for next week!

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Elouera · 16/04/2020 11:29

@SkyBlue20- sending thoughts your way today, and hope you can get home soon. Take it easy and ask any questions you might have Flowers

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SkyBlue20 · 16/04/2020 14:34

Thanks both. I'm home now and booked in to go get the first round of tablets on Saturday morning, then a second round on Monday, when they'll admit me and keep me in for the day in the hope everything happens there. I quite like that, I'll feel much more like I'm in safe hands rather than having to second guess myself at home. I just hope everything goes as planned on Monday and it will all be over soon. xx

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tryingtimes20 · 17/04/2020 19:46

Hi Sky, I'll be thinking of you tomorrow and over the next couple of days. Glad that you're booked in to have the second round next week in a monitored setting; as you've said, it will give you a lot more piece of mind. Take care of yourself xx

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tryingtimes20 · 17/04/2020 19:53

Peace even...! xx

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SkyBlue20 · 17/04/2020 20:46

Thank you @tryingtimes2020 💕 Hope you’re doing ok after everything, physically at least xx

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tryingtimes20 · 20/04/2020 06:11

@SkyBlue20 How are you? Just to say I hope everything went OK on Saturday, and that everything goes alright today - as you've said, it will all be over soon. Rest up and take it easy afterwards Flowers

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SkyBlue20 · 20/04/2020 08:49

Thanks @tryingtimes20. I’ve just got to the hospital now - feeling pretty nervous and it was awful saying goodbye to my husband in the carpark. But it is what it is, just need to get it done now. Partly worried it’s not all going to happen today as it’s been so stubborn so far so fingers crossed! Hope you’re doing ok xx

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tryingtimes20 · 20/04/2020 09:26

I know exactly how you feel - you are in good hands now, and I'm sure everything will be fine today. Hopefully you can stay in touch with your husband throughout? I was texting mine loads during the morning/afternoon whilst I was waiting. I will be sending you positive vibes today; hoping things go smoothly and are over for you quickly.

For me, I'm really trying to focus on the future and be positive - looking forward to the bleeding stopping completely, and then want to try again as soon as I'm fully better. Everything I've read says there is nothing scientifically detrimental to doing things ASAP (beside from maybe being a little unsure around dates) and potentially some benefits to doing things sooner, so that's something 'good' to look forward to.

Not to be crude, but my husband and I haven't been intimate since I found out I was pregnant (because of being scared around the bleeding etc) which was about 2 months ago, so I'm excited, although a little cautious around possible pain etc.

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SkyBlue20 · 20/04/2020 10:24

We’re exactly the same, me husband and I were both a bit nervous to do anything after we found out we were pregnant (early Feb) so it’s been a while. We also want to try again as soon as we can so hopefully we’ll both be back on the pregnancy boards soon! Though I am scared about the chances of going through all of this again.

Just had my tablets and now we wait. Been texting my husband and mum all morning, think they’re both devastated they can’t be here with me. Right now I’m ok about it but give it a few hours and I’m sure I’ll be longing for them!

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tryingtimes20 · 20/04/2020 12:16

Hope you're still alright - it took a few hours for me with the tablets to feel anything 'happening'. You're doing exactly the right thing by being in the hospital, although I know how tough it is being there by yourself. I'm so glad you've got mum and husband as virtual support; please make sure you lean on them to baby yourself and rest up once all this is behind you.

I hear you re. the scaredness - I think I've lost the innocence of that first time (although tbh I always felt concerned and worried from about 6w which was when I started bleeding) but just to reassure you that the odds are still exactly the same of carrying a pregnancy to term - you are not at any sort of increased risk because of this happening, and most women will have a healthy baby after an MC.

Here's one article with the good news about trying sooner vs. later after a loss, and confirmation from the NHS. There's plenty more articles you can find which back this up too. I hope this helps you a little xx

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SkyBlue20 · 20/04/2020 13:00

Thank you! I’m like you, know that the odds are the same and this miscarriage has no bearing on future pregnancies but I was anxious right the way through this one, I kept just feeling it was going to be a MMC, which it was, and know the next one will be even more anxiety-inducing after all of this. But there we go, it is what it is.

Had quite bad pain and nausea but the tablets for that have kicked in now so the pain is manageable at the moment. Don’t think anything has started in terms of passing anything yet. It’s just a lot of waiting around, isn’t it?! Really wish I could have just had the surgery but the NHS have to do what they feel is best in the current circumstances, I get that.

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