I have inherited problems from both sides of my family, causing dd & ds2's disabilities. When my daughter's first few problems were diagnosed (9 months-ish), i.e. Hypermobility Syndrome, GDD,partial deafness, and then speech delay at 2 1/2 & mild ASD at 3 1/2, I was told these probs would not occur in subsequent pregnancies. On that basis, I did not have tests during ds1's pregnancy. He's NT. so had ds2...more severe probs than anyone else in family, mobility impaired due to HMS being so bad. I have now found out that the form of HMS in my mum's family IS genetic, each child has 50% chance of being affected. Then my daughter has been dxd with epilepsy, like me, my cousin, my aunt & my nan (Dad's side of the family). We are being tested as they think?! there is a genetic link, and None of us have control over our Epilepsy, we all have daily seizures, Therefore at 27, I have chosen to either have no further children, or to go through EVERY possible test there is, and as I personally couldn't cope with a 3rd disabled child, for the first time ever, WOULD consider a 'termination', however, testing for the problems we have can take place at 16 & 22 weeks, not sure if I could terminate after that point! However, a person that I know, 20-odd years ago, was repeatedly raped & held prisoner, and blocked out everything that had happened to her, until couselling got her to realise that she was, in fact, 24 weeks pregnant. She had a VERY late 'termination', at 33 weeks, what would have been an NT baby, but was a DNR due to state of mother's mental health. SO there ARE some situations where a later 'termination' WOULD be necessary. HOWEVER I do feel that this should ONLY be in the most extremes of circumstances, i.e. in my situation, it just would not be acceptable to have a termination that late when tests can be performed and carried out much earlier than that, and the reason would be the strain on an already overstretched family.