Alternative to daphne keen

[PearlyWhites]

Hi I want to take my dd for a private assessment , she shows features of hfa and is on an NHs asd pathway. However it is talking far too long for her to get a dx and we have lost faith in them due to loosing reports etc.
Ideally I would like to take my dd to see Daphne keen but her pa isn't the best at getting back to me. Can anyone recommend anyone else whose private opinion would be credible to the NHs?
Thanks.

[PearlyWhites]

No need to apologise tiene I hope your dx gets the correct dx and help as soon as possible.

[Tieni]

Thank you all

[KOKOagainandagain]

At tribunal the lea trainee EP tried to challenge the diagnosis. WTF? Rhino hides.

[KOKOagainandagain]

Believe me, they do

[KOKOagainandagain]

DS1 had assessment using disco with Margo and a diagnostic consult with Daphne Keen. The first comm paed ignored DK diagnosis and did not accept MS diagnosis. The second one accepted the diagnosis because it was made by both salt and dev paed. Tribunal ignored MS diagnosis but accepted DK diagnosis.

Both will cost as much - especially if Margo has to travel any distance or stay overnight.

[Tieni]

Please forgive me for the hijack, but there seems to be some very knowledgeable people on this thread.

We are right at the start of the assessment process (senco assigned, health visitor appointment to get referral to community paediatrician this week). I strongly suspect PDA in DS (3.4): reading the description was truly a 'lightbulb moment' as it describes him exactly.

We will be assessed within Birmingham, hence for those with knowledge of Margo Sharp do you have any idea if she can diagnose / recognises PDA? Could I ask for a referral specifically to her (nhs)? Would we actually be able to get a referral to her as although DS had delayed speech he has now more than caught up? My main concern at the moment is making sure we get a referral to someone good, who will listen and who recognises PDA. Apologies if I have any terms wrong: I'm still learning how this all works (and am minding these boards a mine of information).

Thanks in advance and sorry again for the hijack

[PearlyWhites]

Keep did margo read reports from ed psych or peadatrician?

[babiki]

Thank you.

[KOKOagainandagain]

Margo will travel. She is not cheap. When she assessed DS1 she did the assessment one day, stayed overnight and then interviewed parents the next day. Her details are on IE's blog.

[babiki]

Does Margo Sharp travel? Could you tell me how much rougly she is and how to contact her please?

She sounds perfect for my friend's little boy with severe speech disorder and possible ASD.

[zumbaleena]

Margo sharp is a big name

[Theycallmestacy]

Her report is very comprehensive, not only has it been accepted but its depth has been commented on.

[PearlyWhites]

The consultant will have the reports sent to her internally I would have thought

[PearlyWhites]

Posted too soon, I would keep the NHs app also, how rude that they are disputing what you have told them about your own son.

[PearlyWhites]

Hi I wouldn't cancel the DK app you are very lucky to get one I believe she can give a dx on her own but I wanted a SALT as well in case the NHS wouldn't accept her dx which is prob anabel me being over cautious as DK given DK's reputation.
I worry about my dd's NHs assessment as they are only going to do the ados which isn't great for hfa girls also the waiting time is ridiculous.

[hoxtonbabe]

Hmmm, this thread has me a bit worried now. (im not trying to hijack BTW) I have an appointment with DK in the winter, i was told I should send in a multitude of paperwork such as SLT. EP, etc reports she will also contact the school.

My LA CAMHS was initially saying they would do a multi, then changed their mind and said only the consultant would do it at the end of August, however she is not asking me for any additional papers which is very bizarre. Although i have DK I do not want to cancel the NHS appointment as I want to remain on the list so to speak as I already know they are going to say nothing is wrong as they are practically saying that already without seeing my son

Im confused

[PearlyWhites]

Will look up London children practice centre though thank you

[PearlyWhites]

Zumb thanks for your post the team at belle vue use all four professionals you mentioned and do both Disco and Ados over the two days. The consultant paediatrician is my dd nhs dr although she has only met members of his team. The thing with London is although I was planning to travel to see DK I live a 30 min drive from belle vue so would save travel/ accommodation costs. I have provisional booked with them now unfortunately not till November.

[zumbaleena]

Pearly......now a days only a clinical psychologist alone cannot diagnose. Similarly, an Ed psych also cannot diagnose. 1 person diagnosing maybe thrown out unless there is a standardized test involved. The best test is ados. To make sure NHs accepts your diagnosis, MULTI disciplinary assessment is best involving salt, Ed psych/clinical psych and community ped. Having said that, belle cue sounds humongously expensive. I would suggest London children,s practice centre. They are MULTI and half the cost and impeccable reputation.

[nostoppingme]

4 different experts diagnosed ASD in my son....

I think Belle Vue sounds very good!