Sept 08 - Insert witty title 'here'

[ILikeToMoveItMoveIt]

Sorry about the crap title ladies, I was lacking inspiration and we were up to our limit on posts!

[DebiTheScot]

Oops I filled up the thread. Just one space left to post the link to the new thread

I used your title meglet, hope noone minds me starting it.

[DebiTheScot]

Blimey you've been busy today!
I don't have any experience of what you're going through ninja so I can't offer any advice but it's good to see others on here can (although that sounds bad actually as it means they've gone through bad stuff too)
Oh and great running too

Good to see you Starlight

IOM You go girl! I'm impressed by how much research you've obviously done.

[MrsArchchancellorRidcully]

We need a new thread ladies!!!!

Debs I think I would be interested in your nappies but have no idea how they work or if they would suit me. I'll pm you for a price but can you or someone else (perhaps on new thread) explain how they work - some are all in ones that have a liner i think but some don't and I'm not sure how pocket ones work too. Has anyone got an idiots guide please?

[notcitrus]

becaroo - an ounce off 5lb? That's practically average! [speaks as a 3-pounder...]

[Becaroooo]

"muffings"



Had forgotten that!

[Becaroooo]

mrsa Forgot to day, I think I understand...

Report on the BBC earlier in the week re: birth weight linked to lifelong health.

Toby was 8lbs 4oz and ds1 was 4lbs 15oz

Whenever each "new" piece of evidence comes out that ds1 is/will suffer because of his medical problems in his early life it takes me back to a very bad place I too do the "if only" conversations with myself.

I try not to as that way madness lies, but its hard.

[FannyPriceless]

Hi starlight Made any muffings lately?

Good analogy, by the way. Though I did wonder what on earth the thread was discussing when I saw the first lines on the Threads I'm on summary.

ninj I am so sorry about your situation. All I can say is keep looking to the future, and do whatever you need to do to create that future sooner rather than later. Sending you strength - god knows you need it.

carrie Five days ago I was making sure my phone was fully charged and about my person at all times. I've become a bit slack now. You'd better hurry up before I forget about it all together.

[Becaroooo]

NC I have heard stories on the SN boards that beggar belief I do hope your friends get some help for their dc.

I can really relate to what you are saying wrt hcps....

Got my referral to see the rheumatoid arthritis clinic. It was cancelled (apparently I need the early RA clinic which is a specialist one)
Heard nothing for ages so rang them....my appt was the preceeding day but no one had informed me! (Got the letter telling me about the appt 2 days later)

Cue trying to get re-referred...hospital cant do it(?), choose and book cant do it (?) so has to come from GP again. Got another letter from hospital saying no appt yet, ring up in a few days. Rang yesterday. They have cancelled that referral now (?) so had to ring hospital and GP again.

No one knows whats going on and why I cant get into the Early RA clinic.

So, despite being supposed to ring me back yesterday, they didnt (yes, what a huge shock that was) so I rang them and I am now booked into the original clinic on my original appt date and time even though I have been told its the wrong clinic



Its sort of funny isnt it? Or would be if I wasnt in so much pain

Dh has just come home and told ds1 that we are taking him to "Truckfest" in 2 weeks time. Sigh. The things I do for my kids

[notcitrus]

MrsA - good luck with it all. I find writing points down really helps me in medical appointments and seems to get me taken more seriously. And certainly glad to offer any real nappy expertise that I've built up so far!

Most useful advice I got was from SIL who gave me a bag of random nappy bits and said "it's not rocket science, it's bits of cloth to mop up wee"!

Much sympathy to ninja and to starlight, becaroo and others dealing with crap SN 'support'. Friends of mine are fighting to get their child with obvious needs the support he needs to start school, and every post they make I'm just left going 'wtf??' It's no consolation that the old special school system was even worse.

I do despair of a fair bit of the medical profession - saw two new specialists yesterday, one wasn't expected to really help. I tried to summarise my relevant musculo-skeletal history. He poked my feet a bit and said "Yes, that would mainly be because one of your legs is nearly an inch longer than the other."! Why did none of the previous zillion physios, osteos, consultants etc (over 30 in the last 20 years) notice this??
At least the next one who looked at my neck confirmed that I'm right, I've never been in a car crash or similar and don't in fact have whiplash, unlike the last two who told me I must have been in a car crash and forgotten about it - as you do...

[StarlightMcKenzie]

It's okay, - I'm sure everyone knows what you mean. The SN boards are for a very specific purpose and I would be in a much worse place without them.

[StarlightMcKenzie]

Hey Carrie, - I absolutely can't wait for your birth story!!!!!!

I'm soooo excited for you.

[Becaroooo]

...and all of you, of course!!

[CappuccinoCarrie]

Still here...
Sorry I have nothing helpful to say ninja but you're getting great advice here. Just so :( at what some people go through, my lovely friends being treated this way :(

[Becaroooo]

star I know only too well what you mean.

Xmas is off and hols next year too probably as we are going private to get ds1 the help he needs.

Shouldnt have to, but thats the reality for us.

I dont know what I would have done without the MN SN boards.

[Debs75]

MrsA I have about 20 little lamb 1st size reusable nappies, with covers and 15 Motherease small Sandys which Lucy is just growing out of. More then enough to be a complete birth to 9-12months kit. They wash really well, never leak and the sandys aren't too bulky that you need bigger clothes. If you want them I am happy to sell them on. We desperately need the room and money tbh. Let me know if you are interested.

Ninja I don't want to be harsh but you sound like an enabler with h. Why would you buy him out of the holiday when he has been living rent free in your home in your bed? Tell him as you have split up you will be going with the dd's and your sis whilst he moves out. If he moans about one last holiday remind how hard it was on the last holiday and that it isn't fair to string the dd's along. Better still get him to move out before you go so you can get the locks changed and he can't get back in.

[ninja]

starlight can't imagine how tough it us and I'm really lucky I don't have that to deal with.

[StarlightMcKenzie]

the regulatory bodies

[StarlightMcKenzie]

Hi ILTMIMI,

I wish I could spend more time with you lot, but my MN allowance is often spent in the SN section being counselled or counselling.

Some of the things that happen to families to disabled children just would not be believed on the main board or in real life, and the regulation of these barbaric practises are almost entirely responsible.

It smacks of conspiracy theories and just would not be believed anywhere else. ALthough, sadly, a number from this group can be found over there.

[StarlightMcKenzie]

Everyone knows how sensitive sexual partners must be in order to nurture the psyche, as well as the body of the male, yet such sensitivity has been conspicuously absent from the milieu of hospitalised parturient women.

[StarlightMcKenzie]

By the bed is an artificial penis, put there, as the young man is told 'just in case you can't make it. Many men can't manage it you know, it's not their fault but nature often fails'

[StarlightMcKenzie]

When he starts, a busy 'expert', who may never have personally experienced sexual relations, starts telling him how to do it and inspects his body with critical expression, prodding him and his partner in an insensitive manner.

[StarlightMcKenzie]

Ask him to set about the project in a special 'sex centre' where there are 'experts' he has never met before ready to supervise and tell him how it ought to be done. Presume that his partner is as inexperienced as himself and that he is asked if he is going to 'try and achieve an errection'.

[StarlightMcKenzie]

Imagine a young man embarking on his first attempt at sexual penetration.

[ILikeToMoveItMoveIt]

Oh, and meant to say a big hello to Starlight, lovely to see you x

[StarlightMcKenzie]

MrsA,

If you contact a bfc they can help you deal with the feelings about C, but it makes me really angry when I hear of a woman blaming themselves for not being more knowledgable than the medics who are PAID to do right by her and her baby. It happens all the time, and it suits the medics. If you think of the language:

Incompetent cervix, failure to progress, poor maternal effort etc etc etc.

In reality these things don't exist or at least are very VERY rare.

I'll find a favourite paragraph of mine from Politics of Breastfeeding (I think) that you might like.

Also, - You might have actually had high bp with C? The trouble is the doubt that is now cast upon that.