This is particularly for ND parents of ND children (or other kind of SEND).
Like lots of ND parents I think, DH and I have struggled with the demands of parenting and losing our previous coping strategies. Our DS is absolutely awesome and also has complex health and developmental needs, including very poor sleep - we are under the sleep clinic and getting more meds for him but it is very tough. DH is very depressed at the moment - he's getting treatment but probably not enough.
We really struggle even with keeping up with paperwork and haven't managed to apply for DLA, even though DS is 5! He is also very loud and full-on which can be very fun if you have the energy or can be pretty challenging.
We love the very bones of him, and feel terrible that we send him to respite to get a break (only about once a month and he loves it). We have no family nearby who could help.
What do others do? Would really appreciate any suggestions or strategies. I am waiting for a formal assessment for ADHD and ASD and already see a counsellor.
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How do your balance your needs with your DC's?
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AshGirl · 28/06/2022 10:57
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