Hello,
We’re delighted to announce a webchat with Dr Mohammad Al-Ubaydli, CEO of Patients Know Best. Mohammad trained as a physician at the University of Cambridge; worked as a staff scientist at the National Institutes of Health; and was a management consultant to US hospitals at The Advisory Board Company.
Patients Know Best is a personal health record company, founded and underpinned by the belief that patient access and ownership of health records can unlock the potential for greater health outcomes and experiences. The company's aim is for every person to have the ability to access their personal health record, control who can see it and use this information to manage their health and care.
The company and its mission was born out of Mohammad’s own experiences. As a child with a rare disease, Mohammad saw his mother often repeating his story and explaining his condition to the healthcare experts he routinely saw. These healthcare professionals relied on her, and eventually on him, to provide accurate information about his condition. So, like many patients, he therefore, became the ‘expert’ on his own health. From this experience, Mohammad understood that patients not only have the power to change their own health destinies but they also hold the key to a more sustainable and responsive healthcare system which better meets the needs and expectations of citizens.
With a bold aspiration to empower patients to ultimately ‘know best’ and backed with independent research to demonstrate the benefits of this approach, in 2008, Mohammad founded Patients Know Best. Today, Mohammad’s company supports patients in accessing 4 million lab results and 250,0000 appointments every week, as well as interacting with their healthcare services digitally.
Mohammad will be answering questions live on Friday 14th April at 11-1pm and on Monday 17th April at 11-12:30pm.
If you can’t join on either of those days, please leave your question here in advance.
WEBCHAT GUIDELINES: 1. One question per member plus one follow-up. 2. Keep your question brief. 3. Don't moan if your question doesn't get answered. 4. Do be civil/polite. 5. If one topic or question threatens to overwhelm the webchat, MNHQ will usually ask for people to stop repeating the same question or point.
MNHQ have commented on this thread
Mumsnet webchats
Webchat with Dr Mohammad Al-Ubaydli, CEO of Patients Know Best, on Friday 14th and Monday 17th of April
NicolaDMumsnet · 11/04/2023 12:32
Dammitthisisshit · 13/04/2023 07:17
Is the date right? March is in the past yet this post is 2 days old? @NicolaDMumsnet is the webchat tomorrow and Monday 17 April?
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Mischance · 13/04/2023 09:42
I have looked at your website and confess I do not quite get it. Does my local practice/hospital have to agree and cooperate in all this? I frankly can't see my hopeless local rural GP practice dealing with this!
For instance, at the moment I am on a 6 monthly injection for osteoporosis and they cannot cope with it at all - it is me who has to remember it is due; me who has to book for the blood test needed beforehand; me who has to tell the nurse which boxes to tick on the lab forms; me who has to ring the pharmacy to make sure they order in the injection; me who has to make an appointment for the actual injection; me who has no idea at all whether a GP has looked at the blood results and OK'd the injection - the nurse giving it certainly does not know!
Would registering with your organisation have a useful impact on all this?
The NHS is in chaos - how can your organisation help patients in the midst of this?
CherryReds · 13/04/2023 10:36
Hi Mohammad, I would be interest to know if any of the independent research referenced in the post shows this is something that particularly affects women? - there have been loads of stories on MN over the years of doctors minimising women’s experiences or symptoms and I think giving women the info they need to seek diagnoses is really important. Do you think that’s something that your company does?
chaffinch77 · 13/04/2023 16:22
How much of the NHS does this cover? As @Mischance says above, it doesn't sound like the kind of thing my local surgery would be able to manage... How do you persuade them to sign up?
Nugg · 13/04/2023 16:29
I signed up a long time ago and initially it was very useful, however over recent months I am notified of a result and it is it available for another month for me to view - pointless. Any "episodes" such as attending clinic or being admitted also seem pointless as it occurs as the event is taking place - no idea why this is relevant. The results are most irritating especially when it worked so well iniitally.
Bornafreak · 13/04/2023 20:07
I have the app PatientView due to CKD, will I be changed over to this new app automatically or do I need to sign up. I’m in Scotland if that makes a difference.
DawnAttwood · 14/04/2023 10:08
Its always seemed to me that information sharing is something that the NHS is particularly bad at - do you have any sense of how we compare internationally? And are there organisations like yours in other health services across the developed world?
MohammadPatientsKnowBest · 14/04/2023 11:08
Currently 30% of NHS Orgs have a contract that allows them to use PKB. However the roll outs have historically taken a while, and there are really strong pockets/particular organisations, but these tend to be hospitals, not GP. This is PKB’s job, on behalf of/with patients to get more NHS organisations using the contracts available to them.
chaffinch77 · 13/04/2023 16:22
How much of the NHS does this cover? As @Mischance says above, it doesn't sound like the kind of thing my local surgery would be able to manage... How do you persuade them to sign up?
DawnAttwood · 14/04/2023 10:08
Its always seemed to me that information sharing is something that the NHS is particularly bad at - do you have any sense of how we compare internationally? And are there organisations like yours in other health services across the developed world?
limebasilandmandarin · 14/04/2023 11:34
This is really interesting - may I ask are there particular geographic concentrations? Does it tend to be more rural/urban pockets? And do you have any insight into what makes NHS orgs sign up?
MohammadPatientsKnowBest · 14/04/2023 11:08
Currently 30% of NHS Orgs have a contract that allows them to use PKB. However the roll outs have historically taken a while, and there are really strong pockets/particular organisations, but these tend to be hospitals, not GP. This is PKB’s job, on behalf of/with patients to get more NHS organisations using the contracts available to them.
chaffinch77 · 13/04/2023 16:22
How much of the NHS does this cover? As @Mischance says above, it doesn't sound like the kind of thing my local surgery would be able to manage... How do you persuade them to sign up?
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ArmchairAnarchist2 · 14/04/2023 11:52
Why are some hospital test results published but many not? Also I've recently found out that my GP surgery has no access to blood test results and vice versa, surely this is dangerous. In my own case I have blood tests in my GP surgery every three months for an ongoing life long condition. I was still having blood tests at these intervals but unbeknownst to me someone changed what was being tested for.
The hospital assumed my Haemoglobin was being tested every three months. (this had been requested in 2016) and the GP's surgery had changed this to yearly. I almost died as a result. My Hb was at 3 and I needed several units of blood. This was only picked up in a routine pre-op blood test.
TeaTurtle · 14/04/2023 11:57
If this is taken up more widely by the NHS, what happens to patients who are too unwell to manage their own data? Will there be more NHS resources freed up to help those who need it most, or as with so many things will this move actually result in less NHS infrastructure and less help for those most in need.
I also wonder about the security/privacy risks of placing these records in the hands of a private organisation. Is PKB non-profit?
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