Does anyone have experience of molar pregnancy? Bit shocked here

[artifarti]

I had a miscarriage and ERPC three weeks ago. Was just starting to recover from that when I got a phone call from my EPU today saying that I had had a molar pregnancy and am being referred to the specialist unit at Charing Cross Hospital. I have read all the information and am just a bit in shock with it all now. I know that the prognosis on all fronts is good but just can't quite believe it's happening to me. I wondered if anyone else had been through this and what their experience of it all was. Thanks in advance.

[Rachie1986]

Just come across this. An early scan has indicated a small potential of a molar pregnancy but with a live embryo (so stupidly rare!). Really hoping it's not, but so useful to read information to prepare myself.

I'm so glad so many of you had positive outcomes in the end. Thanks for taking time to post your stories and help others in a similar situation x

[marmiteontoast76]

Thanks mintleaf. Yes Google is not good for me at the mo.

[mintleaf]

I had to wait 6 months because that was how long it took for my hgc to fall. It depends on whether it falls steadily or whether you have any rises that are indicative of problems. Definitely try not to worry about it till Monday, and even if it does turn out to be partial molar it will be fine. I get what you mean about the prospect of waiting at 39 - but cross that bridge if you come to it. Focus on looking after yourself and try to stay away from Google.

[marmiteontoast76]

Thanks for that info Mintleaf and sorry about your loss too.

How long did you wait to ttc?

I'm about to turn 39 so worried about time.

[mintleaf]

I'm also really sorry for your losses. Sometimes the medical side of partial molars can overshadow the psychological impact of miscarriage but they're both imporant to be mindful of.

[mintleaf]

I had a partial molar earlier this year. It was diagnosed from histology and hadn't been suspected beforehand so I didn't have to wait for the results which must be really hard. I just got referred to and followed up by Charing Cross hospital. I had to send weekly blood samples for a bit until hgc reached 0. It wasn't awful - the risks of complications with partial molars are low and the treatment for those complications is 100% effective. I think the risk is higher for full molar. The hardest bit for me was having to wait to try to conceive again. Hopefully neither of you will have one, but if you do rest assured you'll be well looked after.

[marmiteontoast76]

Bluebird. I'm waiting for results of a suspected parial molar. Delivered last Saturday and bits of placenta were sent off to histology. Been told I should get some results back next Monday. Been scaring myself by far too much googling of molar pregnancies.

Sorry to hear you've been having terrible pain. I was in agony for about an hour on Saturday with horrendous contraction like pains but thankfully nothing since.

I hope you are ok and the pains pass.

[Bluebird26]

I had to have a d&c last week due to a suspected molar pregnancy. It was awful the worst experience. A few days on s d I'm getting severe shooting pains is this normal? I was told maybe light period pains but not this? Also how long do I wait to get my results? Help please

[artifarti]

And habbibu, thanks. Definitely a line drawn, yes.

[artifarti]

livismum, so sorry to hear of your loss and suspected diagnosis. I hope the physical recovery from the ERPC goes well for you. Waiting for the diagnosis and, if confirmed, first test results is a scarey and confusing time. And you're right, it's so hard to explain to people in real life - I remember people trying to disguise their horror when I explained .

I have just seen your other thread so will keep an eye on it to see how you're doing. Did they say how long it would take to get a diagnosis?

Thinking of you. x

[livismum]

Thanks for posting arti I come on here on my phone and hadn't scrolled back far enough to come across this thread, I am in bed recovering from ERPC yesterday to remove suspected molar pregnancy,
Congratulations on your new baby that's fantastic news! This was due to be DC3 for us I am blessed to have 2DD's, trying again is a long way off for me, I just feel that 8 weeks of thinking I was carrying a healthy pregnancy was hard enough let alone the worry I will have in the future,
Anyways need to focus on recovering and the test results that will come later, so glad (wrong word really!) to find people on here that at least understand the condition, people in RL certainly don't

[habbibu]

Congratulations, arti. Delighted to hear about lovely ds2. And I am glad you've been discharged from CC. I do understand that it's not something you feel like dancing about, but it's a line drawn, iyswim? A means of moving forward from a very strange and difficult time.

[artifarti]

Final update from me to say thank you to all those who supported me on this thread last year - and in case anyone diagnosed with molar pregnancy googles and comes across this thread...

...DS2 born on 28 March 2012. He is gorgeous and sleeps very well!

My final results came back from Charing X this week and all is well and I have been discharged from them. I thought I would want to celebrate but I just felt a bit sad - after all, there was a miscarriage at the heart of all this. It's not a period of my life that I will forget quickly. For anyone diagnosed, it's not a nice time - upsetting, scarey and a bit lonely. Seek support wherever you can, in RL and online (MN (post on this thread if you like, I will have it on Watch), molarpregnancy.co.uk, Miscarriage Association). And be strong, it will pass. xx

[pink4ever]

Congratulations arti thats great news. I hope this pregnancy passes smoothly for you. I have gone on to have 3 dcs since I had the molar one.

[artifarti]

I haven't been back on here for a goodly while but I had lots of support and advice from some lovely people so I thought I would pop back for an update. Also, if anyone is in the unfortunate position I was in, having been diagnosed with a molar, and comes across this thread through the power of Google, I thought it might be reassuring for them to see that things do get better, although it doesn't at all feel like it at the time.

So, I am pg again! 17 weeks tomorrow so through the first trimester which was really quite stressful and worrying (especially as I had brown spotting for three weeks, just like with the molar!) Obviously, as with anyone who has had a miscarriage, I won't relax until - hopefully - I am holding a baby in my arms but let's just say I am in a better place than I was a few months ago.

So thank you to everyone who popped on to offer support and I hope those of you who are pregnant are still doing well - Blackkat not that long now, right?! Wish me luck. x

[artifarti]

Always good to hear from someone who came out the other side pink. Gosh, 23, that is very young to cope with all this, poor you. Hope that life is now all you want it to be.

Blackkat - a little bump, how lovely! Hopefully you will feel kicks soon which is when it all starts to become really real! Glad that all is well and thanks so much for checking in on me, you really are kind. x

[Blackkat]

Arti so pleased to hear that China was a good trip, I can imagine that it blew the cobwebs away and was totally awe inspiring too. Glad to hear that there are some good days among those that are more tough, hope the balance is tipping towards the good though. So pleased to hear all the tests are coming back clear. Will have my FX for you for the end of July.
All going well here, touch wood, I've got a little bump, but I think I just look fat! I'm due the first week in December, so a while to go yet.
Take care x

[pink4ever]

Hi ladies hope you dont mind me joining your thread again?. Like some have mentioned on here its good to find people to talk to who understand this unusual condition.
Actually because I went through it all so long ago now(1999/2000 for chemo) its almost feels like it happened to someone else. My family still dont really understand and my dh is the type to just sweep things under the carpet!.
I have been thinking about all the things that happened over that period of time quite a lot lately-I was only 23! Think I was too young to really process it all properly at the time. Had a more of a oh lets just get on with it attitude!
I am glad to hewar the positive stories on here and that things are going in the right direction. All the best.

[artifarti]

Blackkat! Lovely to hear from you! I hope your pregnancy is still progressing well and you are starting to grow a nice bump - how are things? I am okay, thanks, good days and bad but, yes, I should get the all-clear at the end of July. It's been a long few months but nearly there and all tests coming back clear. China was amazing, a really great holiday and not as bad as I thought it would be with a toddler. Helped to blow some cobwebs away too! Let me know how you get on - when is your due date? x

[Blackkat]

Arti not sure if you're still checking here, but was thinking of you earlier given that it's nearly July. Hoping you're doing ok and that you get the all clear soon xxx How was China?? x

[artifarti]

Thanks! I hear that Charing X can be sticklers and make you do a final test on the 6-month date. (Really not obsessing about this in any way )

[habbibu]

Just checked my thread - on 19th June I got my first negative, so they started the 6 mo from 9 June, apparently. And I was off the hook on 4th Dec. So I think they do let you off as soon as they can.

[habbibu]

Um - don't quite recall. Am guessing that they may go for the roam free option, given how quickly your numbers fell, but I guess your cycle may determine the rest!

[artifarti]

Thanks guys. And Blackkat, very glad you have nothing to report!

habbibu, if you're about, did they count your 6 month follow up to the exact day? It's just that from my ERPC, my six months ends on 29 July but I usually send my monthly test in around 17th of each month. Will they request an extra test or just let me roam free after a (hopefully) normal result on 17 July? not that I am obsessing about this in any way oh no.

[Blackkat]

Hi Arti great news, and the holiday sounds fantastic.
Nothing to report here, which is good news!
x