Complete molar pregnancy

[lisalou29]

Hi all,
I found out 5 weeks ago that my 14 week prgnancy was infact a molar pregnancy. At first I had no idea of what the doctors were saying to me and what had happened to my baby??!! I had to have a D&C two days later and when I came home I was still in a daze of what had happened. I didn't sleep very well that night so decided to get up and do some reading up on the net about molar pregnancy's, I was really shocked to what I found. It's the hardest thing to lose a baby and i felt cheated by mother nature as my body was telling me that I was pregnant but there was no baby! but I grow a placenta which fed a tumour. I still find it hard to come to turms with as I bounded with something that was never there but my body told me I was pregnant. Im still having blood tests done every two weeks to make sure my levels are coming down which they are thank god, I dont know how the women that have to have chemo after having a molar pegnancy do it. I know things will get better but its going to take time.
Lisa

[Umm1991]

Hey, I had a molar pregnancy in March 2017 very confusing time as I didn’t understand or had ever heard of such a thing. However it does get better and a year later I got pregnancy with my daughter who is now a healthy normal baby 6 months old so the point of my post is don’t worry it does get better and in most cases does not affect fertility

[lisalou29]

Congratulations mummyabroad, well done. I hope I will be able to say the same soon. x x

[mummyabroad]

Hello, how are you? I got a BFP! Bit shocked and it hasnt sunk in yet but I'm very

By the way, there is a lady on this thread who has just found out she has a molar pregnancy. I thought maybe you could give her some advice.

Hope you are OK xxx

[lisalou29]

Hi mummyabroad,

Oh sweetie I know how you are feeling, its such a let down every month. Try not to worry to much its gunna happen for both of us soon. xxxxxx

[MummyAbroad]

sorry been away for a bit because I was feeling glum. AF came and I couldnt even console myself with "at least my periods are normal now" because it was very light, which could be a sign of scar tissue growing back. Bugger. It could be nothing though, will have to wait and see. Anyway, I am due to ovulate on Valentines Day, lets hope some saintly help will do the trick

[lisalou29]

Hi Mummyabroad,


I love chatting to you because you always put things in to a better light, I will have a look at those web sights and see if I can make some sence of my body!

I think that because Iv had three children I just assumed I would just fall straight away, but it's not going to be as easy as that I dont think. Todays a bit of a low day for some unknow reason I really dont know whats up with me I was fine yesterday!

How long have you lived out in costa rica? I bet its lovely and hot out there unlike our very cold -2 today. I cant believe that the doctors that you seen over there all said that you had no chance of being able to fall pregnant and when you came over here you were able to have treatment and now your ttc, its just fantastic for you both.

Im glad you said that its normal to ovulate on a 12 day to just 14 days like you always read about because I thought maybe there was something wrong and my body was just being a pain to work out. I must admit I have always done it to the 14 day with the others, Katy took me 5 months to fall with her, Amber took a whopping 22 months and Isobelle I fell the week I stopped breast feeding Amber at ten months old!! so they have all been very different so Its hard to judge a 'normal' pattern. I think I might need to do a couple of months worth of ovulation testing to work out the best timing.

Hopfully there will be good news for both of us soon. xxxx

[MummyAbroad]

Hi lisalou,

Thanks

How frustrating with your friends! I guess they are just worried about you. Lots of women (whose levels drop fast and dont need chemo) are only told to wait 3 months. You know your body and if your numbers havent risen since Sep, I dont blame you for wanting to start sooner rather than later.


I've actually learnt quite a bit about OPK's/charting/EGCM while I have been battling to get my fertility back all this time. I am using the whole lot to help get there quicker

Here is some useful info:

Amazon sells OPK's 25 for £5
Do them twice a day from day 11 (I often get a positive in the morning, gone by the afternoon, sometimes the LH surge is short and its easy to miss)
DONT STOP SWI too soon after a positive though, stress/illness/travel can delay ovulation so at least 3 days worth is good (i.e. more than the 12-36 hours as it says on packet)
Check out www.fertilityfriend.com if you want to do charting. It helps you know when to stop SWI (because you can tell AFTER you have ovulated and when to test for pregnancy/when AF is coming) Here is my chart
But "Taking Charge of Your Fertility" by Toni Weschler if you want a complete low down on all things fertility related - its brilliant.

or an easier way is the Sperm Meets Egg Plan

Drink a glass of grapefruit juice for a few days before ovulation, it drastically increases the amount of EGCM you get. Drink more water too for the same reason.

If you have a read of Toni's book or do the tutorials on FF.com you will see that ovulating on day 12 is totally normal. Its a myth that all women ovulate on Day 14, every one of us is different and it can be different month to month. I love charting because it has totally help me understand what my body is doing (and even helped me get the AS diagnosis too!)

anyway, best of luck to us both !!! xxx

[lisalou29]

Hi mummyabroad,

WELL DONE TO YOU, Im so so so so happy for you. WHOOOOOOOOHOOOO. xxxx

Im so glad that you are on the same page as me with trying ttc, my friends get all stropy with me because they think I should wait to be safe but they have no idea how im feeling and all I wnt is to have another child. Iv been doing those ovulation tests this month but and im due to come on next thursday (3feb) and I did a test to see if I was pg and it was negative! Im not sure if iv done it abit early or thats a true reading. I wont it so madly that im worried that the stress of trying to catch will end up in not be able to. I was always told that its the 14 day that you should try to catch on and around but when I was doing the testing I was the 12 day so I dont know what my bodie is doing????? Last month I came on early and this month I was late?? What a nightmear.

I did go and see a medium before crimbo as I need help to move on and she knew everything that I had been through and still going through, she also said that I will be a mummy again this year but she wouldnt tell me a date, she also said that I will have good news in the spring! but that could mean that I get the all clear iin April! Its so frustrating isnt.

Im so happy for you, I hope this year we will both be sending each other out lil pics of our miracles. xxxx

[MummyAbroad]

Hi lisalou

Glad to hear you are alright and on the home run as it were. I have been "cheating" at TTC too. After all my tests/CAT scans and other malarky I finally got a proper diagnosis for my problem - I have Ashermans Syndrome (scar tissue on the uterus/cervix) after being told in Costa Rica that I would be infertile forever by 4 different gynecologists I flew to London in November to get treated by a surgeon who specialises in AS cases, then had 6 weeks of high dose hormone therapy, more tests and finally got the all clear to TTC - yesterday!

(I think if I HAD had mp, it would have been quicker!!!)

Anyway, I have had unprotected sex this month, not much, but am in with a chance. Planning on stepping things up next month though, now that its official

I wont tell you off for starting early, I seem to remember a lot is down to individual doctors opinions and the particular case with wait times ranging from 3-12 months. So glad you are healthy though, and escaped the chemo. Lets hope this year is our year xxxxx

[lisalou29]

Hi all,
Sorry I havent been on here for quite a while! I needed a bit of time to sort my head out and try to move on. I was given a normal result in Sep 10 and im now on follow up till April 11. Charring cross have said that once a reach April we will be able to start trying again. Truth be told we havent been using any protection for the last couple of months but with no luck! I did do some reading up and they do say that once your levels are to 0 then its fine to start trying but the Doctors like you to wait for 6 months to be on the safe side.

I really hate waiting for anything!!!!

I wouls like to hear some of your thought for telling off's about me ttc!

I hope you al had a fab crimbo and a great new year, and here's hoping that we all have something to celebrate this year. xxxxxxx


Sending you all lots of hugs. xxxxx

[MummyAbroad]

Hi moominnn,

I am so sorry for your loss and that you have to go through all this. If you read above you will see that I had a suspected mp that in the end wasnt confirmed, but I did receive lots of help from the people at Charing Cross. I found this document the most useful
onlinetog.org/cgi/reprint/10/1/3

as it has lots of graphs and tables that you can compare your numbers to.

Hope you see a nice big drop quickly, the waiting is agonising. xxxxxxxxxxxx

[Hazeyjane]

moominn, so sorry to hear you are going through a mp.

My story is further down the thread, I want to write more, but am in the midst of a sickness bug (dd1, not me - with ten tons of washing).

Would it help for me to dig out my molar pregnancy diary, it showed how my levels dropped (they started over 250,000), so maybe you could have some idea o how they might go down.

[moominn]

I've been diagnosed with a CMP recently and am being monitored at Charing Cross.

I'm waiting my 2nd lot of results from them and I am really worried because they are not coming down quickly. Pre DC on the 17th September they were 12000 and the first set at Charing Cross on the 4th Oct they were 10300.

[Hazeyjane]

Glad to hear things are ok with you MummyAbroad. Hope your levels are still going down LisaLou.

I had an all clear from my bloodtest (taken after having ds, because of some wobbly results).

Before having dd1 I truly believed we would never have children, we had been trying for years, had 2 mc, including the mp, and I was so terrified of it happening again. We were very lucky to have had a surprise pregnancy with dd2, because I felt as though we had 'lucked out' having dd1, and didn't want to risk having another.

Of course 3 years down the line at 41 we had ds, and now I can't believe how lucky we have been.

[MummyAbroad]

Hi Mistlethrush, that decision seems understandable after everything you've been through. You must be an incredibly strong person to have survived it all.

I would really like another one. My DS is full on too, but making the decision to try for two took so long and was so hard I dont want to change my mind now. Sadly I'm really starting to doubt if it can happen. I havent got my period 14 weeks after the ERPC, just taken a 10 day course of progesterone to bring it on, and still nothing I'm not ready to give up though, and I'm going to start by getting a new doctor and seeing if I can get some answers/help that way, but for the first time there is a big doubt if I'll end up with what I want in the end. A cristal ball would be a good thing round about now!

[mistlethrush]

MA - I think I've given up thinking we might ever have a second. We had so much heartache getting to the stage we had mistlechick - then both mc it took AGES to get my hcg level down to 0 so had a lot of worry on top of the general crapness of a mc. I don't think that dh wants to go through that again - and we do have our hands full with mc anyway - he can be completely delightful, but he is definitely very full-on (when he's awake). So we're going to look on the bright side of having an only, as that seemed so far out of reach when the treatment for the mp was underway.

So pleased that it was good news at the appointment - what a great relief!

[MummyAbroad]

Thanks Mistlethrush,

It did go well. I found out that the lump is not a blood clot, so its not connected to the mc which is what I was most worried about. The CAT scan results showed that it has mainly benign (harmless) characteristics, the doctor is saying that it is very unlikely to be cancerous. I still have to be monitored a bit more, but overall it is a huge relief!

Right now I am feeling very lucky, twice I have come close to facing a horrible diagnosis and both times ended up in the clear. Its ridiculously nerve wracking though. I feel so stressed my shoulders are permanently scrunched up by my ear lobes!

How are you doing? Do you mind me are you TTC right now?

xxxxxxxx

Thinking of you lisalou hope you are OK xxx

[mistlethrush]

MA hope all goes well with the appointment tomorrow. I had my last dose of chemo on my edd, so I know how you feel. Hope they can get to the bottom of the spot asap because its not nice having that sort of thing hanging over you.

[MummyAbroad]

Hang in there lisalou !!!

so sorry you didnt get the news you wanted. All you can do is summon up your reserve strength and just ride it out. I really hope your bloods yield more positive info. Huge hugs to you. xxx

I've been having a rought time recently. Its my due date tomorrow Its been really hard to accept that all this has been going on for so long, when I first found out I had an mmc I thought that it would all be over in a matter of days My CAT scan results were unintelligable so I have an appointment with a lung specialist tomorrow who can hopefully decipher them. So sick of waiting and waiting. I am taking progesterone for 10 days to make me have a period (no one knows why it hasnt come) At least on that front something proactive is being done.

mistlethrush I'm so sorry for your losses. What a lot you have had to cope with. xxxx

Here is hoping that we all get some good news this week. We have all had more than our share of bad times!!!

[mistlethrush]

Its a very strange position to be in - ringing for blood tests - and the nurses saying 'I'm sorry, you're test came back negative' and you being over the moon about it - they're not expecting that reaction....

I had a mp after 4yrs of ttc - had erpc when a scan showed that it was not a viable pregnancy and I was spotting at 10wks - and hosp said they would contact my Drs if there was a problem (I was on holiday at the time). 3mo of goign to the Dr with uncontrolable bleeding - eventually got a scan and an immediate 2nd ERPC - 2 wks later went in again due to another rather heavy bleed - and was immediately admitted (again) and carted off to Sheffield for treatment. I was banned from TTC for a year after chemo. Ds was born about 2 yrs afterwards.

I've since had 2 mc - the trouble is that you end up having the spectre of chemo hanging over them - its not just the fact that the pregancy is not going to be sucessful that you need to get over, its a worry whether its all going to kick off again - particulalry as my levels have taken a long time to return to normal afterwards.

And its quite normal to think 'its not fair' and 'why them and not me' - I still feel that on occasions...

Hope all turns out OK.

[lisalou29]

Hi Hunni,
Im sorry that you are still not getting any answers, Its so frustrating isin it. Im sure that when they scan you on wednesday that all will be fine. ITs very strange that you havent had a period! 11 weeks is a long time. Did they say why this could be? Bloody Doctors Iv had enough of them!!!

I phoned Charring today and my levels have gone up to 10 (they were 5) so I have to have yet another test on the 11 Oct to see whats happening and where to go from there!! I felt a bit sorry for the lady on the phone that I spoke to because I had a melt down and started screaming at her down the phone. I think I just got so cross and got my hopes up that they would be under 4 so I could be put on to follow up, that when she said that she was sorry but they had gone upto 10 I just LOST IT!

Take care sweetie and let me know how things go on wednesday. xxxxx

[MummyAbroad]

Hello,

Glad you are OK, must be nerve-wracking waiting for results.

I am not feeling to great at the moment, have had to abandon plans to TTC because I still havent got my period 11 weeks after ERPC. I am getting really worried that there is still something wrong. After partial molar was ruled out I was just left hanging with no explanation as to why placental cells regrew or what the lump on my lung is. I am going for a CAT scan on wednesday to get the lump checked out. Have just been scareing myself silly googling things and have seen lots of horrible connections between mc and blood clotting disorders caused by pregnancy/medical procedures/long haul flights (all of which I have had!) I am probably getting myself into a state over nothing - I just really want it all to be OVER! perhaps I need to go find a field and get a dog...??

sorry for the rant,

take care, and dont forget to let us know your results xxx

[lisalou29]

Hi all,

Been to yeovil for more bloods today wont get the results from Charing till Tuesday. I havent been on here much as I think I needed time to do alot of shouting in the field with the dog!! Thought I would let you know how I was doing. Hope you are all well. xxxx

[MummyAbroad]

Congratulations on DC3 Hazey, I do hope everything turns out all right with your bloods xxx

[Hazeyjane]

Glad they're going down. The last bit is so frustrating, like watching a snail crawling over the finish line!

I have just had to do a blood test for Charing Cross today, as I had dc3 10 weeks ago, I did a standard urine test after 6 weeks, but they contacted me and asked for a blood test. I'm sure everything is ok, but it does suddenly make it hit home that it is something that could affect me for the rest of my life.