Hi,
Messaging purely to get some support or advice from anyone that’s gone or going through anything similar.
Going through a very dark time atm. My mum has recently been diagnosed with MND after 2 years of deterioration and I am 25 weeks pregnant with my second baby (my first has just turned one). We are lucky in that she does not have the fast progressing ALS but this buys us, likely at the rate she’s deteriorating, a couple more years. My heart is broken.
I have already had to mourn the independent, strong, glue of the family, mum I knew and not have her practical support with my first born (emotional support in abundance so I am lucky there). But I am terrified about what lies ahead. I have my first, pregnant with my second, and live hundreds of miles away. I travel to her as often as I can but this is always so much easier said than done whilst working, having my son, being pregnant, my husband working and doing building works to our house.
I am feeling so sad and so overwhelmed and feel like I can’t be the daughter or mother I want to be right now. I find it hard and feel guilty for not being fully present with my son, because I’m so worried and upset about my mum. And I can’t be there for my mum how I would want to be because I live so far away, have my son, am getting more and more pregnant and am working.
She has my dad who is relatively fit and healthy and would do anything for her, so i am lucky that she has such a rock physically with her.
She is my best friend. I can’t imagine life without her and with MND being the horrific disease that it is, I’m terrified about what lies ahead. I cry all the time. About what I’ve already lost, about her sadness, and about what’s coming.
Not sure really what I’m looking for by writing this. But appreciate any words of wisdom or support. Hard to talk about this to people. I sometimes find friends have said stuff along the lines of, ‘well at least you have your baby coming, that’s positive’. That doesn’t make me feel better. I just want my mum.
Thanks everyone.
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Life-limiting illness
My mum’s MND diagnosed when I’m 25 weeks pregnant
14 replies
RJJM · 06/11/2023 23:29
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