Trigger warning - severe MH problems
My disability is invisible, unless you try to have a conversation with me.
This post is long, my apologies.
It is a neurological disability which was brought on by a brain injury a few years ago.
It is unlikely that I will recover fully now, I am middle aged.
Day to day my disability affects everything; my speech, my ability to move, I have accidents which result in frequently visiting A&E.
Until my illness I was well organised, capable, funny, proactive and able.
DH has always been someone who is suspicious of the motivations of others, he doesn't want outsiders interfering. DH also has always been grumpy.
When I was well I could cope with DH's grumpiness, I covered it up.
Now we both need help practical, financial, help communicating with each other, all of it. DH won't admit this, though he did (following suggestions from me) get antidepressants and 6 sessions of counselling.
We live in a hamlet, which was great when I could drive. Now it is a nightmare. I'm trapped in a house with an angry man. Most of my life, I'd guess 95% of it, waking or asleep, I spend in our bedroom.
It isn't safe for me to walk downstairs, if I go downstairs, I shuffle.
Often my limbs won't work (the brain signals are not speaking to the correct part of my body). I shuffle on the floor, on my front to the en suite.
When something like this happens you really find out who your friends are and I have recently lost the last of mine. How?
You know how toddlers have no filter? Example: you walk past an elderly man.
Toddler: (loudly) why doesn't that man wipe his nose?
My disability means that sometimes I don't have that filter either, I'm not quite as bad as the toddler in the example above, but I accidentally say stupid shit that is insensitive.
My final friend lost her Mum two years ago. Last month I asked my friend how her Mum was. Understandably, my friend has avoided me since. She has gone back to live in her home country for 8 months (she does this every year). I don't think she will communicate with me again, I don't blame her.
I'm devastated that I said that, I have tried to apologise and tried to explain. She brushed me off. As I say, I don't blame her.
I'm lonely, isolated, frightened and bruised (literally).
I want to go to sleep tonight and not wake up tomorrow. I cannot do this anymore.
I don't know how else to explain it. This is hell.
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Life-limiting illness
My Disability, my DH and me
26 replies
thisishowiam · 01/09/2023 21:03
OP posts:
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