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Guest post: “Christmas is often peak season for meningitis and septicaemia - I found out the hard way”

60 replies

MumsnetGuestPosts · 19/12/2017 10:00

In three minutes on 23 December 2014, my life changed forever.

My husband John was a GP and on Monday 22nd December he walked through the door as his normal, happy and slightly over the top self. We ate tea and wrapped our boys’ Christmas presents.

We went to bed at around 11pm. At 3am he woke me and said he had a temperature and felt as if he had a virus. I gave him paracetamol and ibuprofen and he went back to sleep.

At 7am he woke with a fever and rigors (which wasn’t unusual for him due to his eczema) and said he felt sick. I phoned his Practice Manager to say he wouldn’t be in. He never missed work and he said down the phone “I’ll be in later.”

I wasn't at work that day and went out to get Christmas veg. I came back at 10am and he was sleeping. He was breathing normally and looked peaceful, but I now realise he must have been in a deep unconscious sleep.

At about midday I heard some movement upstairs so I went to check on him with my youngest, Tim. John was sat up on the bed and he just said, “call an ambulance” and then fell back. Over the phone the operator told me to get him on the floor and start CPR, which we did. We carried on with the resuscitation until the ambulance arrived but we knew after three minutes that he had died.

A week later it was found that John had died from meningococcal W septicaemia (MenW).

John, despite the long hours he worked, was a brilliant involved Dad. He was school governor, coached Richard’s rugby team and ran the line at the boys' football matches.

Ours was a sudden loss with no warning and, although he knew how much we loved him, not having that chance to tell him one last time was so hard. Phil, Rich and Tim miss him so much but I am so proud of the way they have dealt with their loss.

There’s a common misconception that only babies are affected by meningitis, and while babies, young children and teenagers are at the highest risk, all too often adults get it too.

I’m now an Ambassador for the charity Meningitis Research Foundation (MRF), helping raise awareness of this deadly disease in the hope that others don’t have to go through what we have.

The MenW strain is particularly deadly and cases have been nearly doubling each year since 2009. What’s most worrying is that MenW doesn’t always present with the normal symptoms. John didn’t get a rash. He really just seemed to have flu. The symptoms are so subtle, the only way to stop it is through vaccination.

The MenACWY vaccine helps prevent four types of meningitis and septicaemia – Men A, C, W and Y. Most 14 – 20 year olds and first year university students aged under 25 are now eligible for this free life-saving vaccine.

You may wonder why this age group is vaccinated. It’s because the bacteria that can cause meningitis are most commonly found living harmlessly in the nose and throats of teenagers and can be passed on to others. If everyone who is entitled to the vaccine free gets it, this will not only protect them but over a few years, it will also help protect everyone else too because there will be less of the bacteria around to spread.

If you’re a parent of a teenager or university student, please visit this link and book them in for the vaccine if they are eligible. You never know whose life you might be saving.

The bottom line is, meningitis and septicaemia can kill quickly, and many survivors are left with after-effects, some as serious as brain damage, amputations, blindness or hearing loss.

It’s fantastic that the Mumsnet Christmas appeal is raising funds for MRF. Your support will go directly into MRF’s work in awareness, research and supporting people; helping to defeat this heart-breaking disease and provide a better life for those living with the after-effects.

This Christmas Mumsnet raising money for the Meningitis Research Foundation to help defeat meningitis, in honour of CatThiefKeith. Mumsnet will be matchfunding donations made up to £10,000, so please, click here to donate anything you can spare.

OP posts:
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AnotherDunroamin · 20/12/2017 07:33

@Modestine "Rigors" are when your temperature is so high that you start shivering uncontrollably. It almost always indicates a serious infection requiring urgent treatment. I just think it's potentially dangerous to describe it quite casually as a normal eczema symptom on a site frequented by parents of young children, amongst whom eczema is so common.
Obviously that doesn't detract from the tragedy of the story or the importance of the message re vaccinations.

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Stickmangate · 20/12/2017 07:34

It's really good to raise awareness of this. I contracted bacterial meningitis just before Christmas a couple of years ago. Only sign was a headache

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lynmilne65 · 20/12/2017 09:36

donated

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LumpySpaceCow · 20/12/2017 11:49

So sorry for your loss.
I have donated. It's just really concerning that I could miss meningitis as symptoms are so similar to a viral infection.

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Modestine · 20/12/2017 13:37

Thank you so much for that explanation, AnotherDunroamin.
Thanks

Stickmangate - that sounds awful. How did you know it was serious? Are you OK now?

I agree with LumpySpaceCow - it's so concerning that symptoms are hard to distinguish, it would seem.

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cozietoesie · 20/12/2017 14:22

I just didn't know that adults were also at risk. Sad

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2old2beamum · 20/12/2017 14:59

As a mother of a beautiful 19 year old who contracted pneumococcal meningitis at 8 months old and was left deafblind cerebral palsy. Cruel disease has wasted his life.
Thankyou for telling your awful story.
Will donate.

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girlwhowearsglasses · 20/12/2017 15:26

Also I want to add to the knowledge about symptoms - when I was ill with this my hands and feet felt very cold - this is a symptom of meningitis when your body is starting to shut down the extremities and a fever-level temperature may only be present in the core of the body.

Also please please don’t forget that septicaemia isn’t always present - the infection can be present as ‘just’ Meningitis - no less dangerous!

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cozietoesie · 20/12/2017 16:05

Thanks both.

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Polyanthus · 20/12/2017 16:41

Thank you pp for the further info about symptoms and the info about private vaccinations at Lloyds and Superdrug. I will look into this for DH and me (children have had the vaccine at school)

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MeningitisResearchFoundation · 20/12/2017 17:03

If anyone has questions about meningitis and septicaemia or the vaccines that are available to prevent some types of the disease, please get in touch with our support team on freephone 080 8800 3344/ [email protected].

Thank you so much to everyone who has donated.

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cozietoesie · 20/12/2017 17:06

I was wondering whether people might make a small donation on behalf of youngsters, as an extra Xmas pressie. They could look at the page and see 'their' donation and also might be motivated to do some quick research on the topic? Smile

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TheDowagerCuntess · 20/12/2017 17:27

Thanks so much for raising awareness and I'm so sorry for your loss.

I have a question, which I hope it's OK to ask. The thread title says Christmas is peak time for meningitis and septicaemia, and I note quite a few others also have experience of it around this time. Why is it so prevalent at this time?

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girlwhowearsglasses · 20/12/2017 17:47

I don’t know dowager but I got it on the 27th Dec too.

Everyone I know had to take an antibiotic called Rifampicin - which targets mucous membranes (and makes all your body secretions orange - tears and all). The strain I had (B) is quite a common bug in that part of your body - it’s when it passes into internal systems that you can become ill - and when that gets triggered I don’t know - you do tend to meet lots more people you don’t see often over Christmas

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BeingATwatItsABingThing · 20/12/2017 18:07

Maybe it’s more prevalent in the way that flu and colds are more prevalent. The cold forces us all inside into close proximity with each other. Plus sneezes and coughs spread whatever germs we all have.

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Rachie1973 · 20/12/2017 21:20

My daughter contracted Meningitis just before Xmas when she was 6. She'd been fine all day, then within an hour she was vomiting, had a huge temp, aching limbs and then the rash appeared.

Thanks to amazing Doctors in A & E she's here with us 9 years later, but I warn and warn and warn people to be alert

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cozietoesie · 20/12/2017 22:16

Thanks to everyone for sharing what must be difficult experiences.

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Chickoletta · 20/12/2017 22:26

I lost a very dear friend to meningitis at this time of year 21 yrs ago - she was 17. Thank you for all you are doing to raise awareness.

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cozietoesie · 21/12/2017 17:17

Indeed. I hope that this thread will have helped also.

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ItsBeginingToLookAlotLikeChris · 21/12/2017 17:25

Well I will be buying the jab in the the new year for dh and I.
The dd had the new jab out, we paid privately. It's sooo confusing but hopefully they are covered.

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ItsBeginingToLookAlotLikeChris · 21/12/2017 17:26

Being a twat that's a brilliant price.

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Wishingandwaiting · 22/12/2017 07:58

Heartbreaking. I’m so sorry.

I hate the thread title “I found out the hard way”. Horribly flippant of mumsnet hq to title it in such a way.

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cozietoesie · 22/12/2017 17:51

I neither noticed nor took umbrage, I fear. Besides which, the OP may have either written it herself or OK'd it. It's her story - and all the other posts - which matter, I think.

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TheDowagerCuntess · 22/12/2017 18:22

I doubt it was HQ who decided on the title - more likely to be the writer of the piece herself.

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Almahart · 23/12/2017 07:08

The title doesn't bother me at all

Thank you so much for this. I had no idea and am glad to be informed

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