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General health

Cause of death. Interpretation needed please.

44 replies

Maykid · 22/08/2019 12:04

My 7 week old son died 35 years ago and I have some questions about the cause of his death.

The death certificate gave the following 3 causes..

  1. Respiratory tract infection
  2. Staphylococcal enterocolitis
  3. Toxaemic shock


Am I correct in thinking that nowadays toxaemic shock would be called sepsis?

Also could the staphylococcal enterocolitis have been a secondary infection to the respiratory tract infection? I have struggled to understand how he got a bowel infection when everything was meticulously sterilised.

Thanks to any medical professional who can help me understand better.
OP posts:
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Maykid · 23/08/2019 11:52

He was beautiful.
Thanks, I know of the Sands charity.

OP posts:
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Lisette1940 · 23/08/2019 11:31

Stephen's gorgeous Maykid

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AngelaScandal · 23/08/2019 11:20

Maykid, would you mind if I put up the link to the Sands charity for you? They support parents who have lost babies shortly after birth. You deserve help to heal.

www.sands.org.uk/support-you

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AngelaScandal · 23/08/2019 11:16

What a beautiful baby boy. Stephen looks so content in your picture

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MmmBlowholes · 23/08/2019 11:03

I'm welling up reading this. I am so sorry for your loss ❤️

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BusterGonad · 23/08/2019 10:52

What a gorgeous boy, he looks truest content and happy.

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Trooperslaneagain · 23/08/2019 09:58

He was beautiful and so content in the picture.

I have one DD after many losses - I will never forget them.

Lighting a candle later for Stephen. Flowers for you xxxx

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WillaDaPeephole · 23/08/2019 09:49

@Maykid what a lovely photo, Stephen looks like he was a very contented little boy.

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Apileofballyhoo · 23/08/2019 09:45

What a beautiful baby. I'm so, so sorry for the loss of little Stephen.

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HasThisSoddingNameGoneToo · 23/08/2019 09:29

Maykid Please reread Babdoc’s beautiful post over and over until the words become part of you. You were a wonderful mum. There was nothing more you could have done.

I’m so, so sorry your time with Stephen was so short. But I’m sure he knew how loved he was every day.

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Bowerbird5 · 23/08/2019 09:19

What a beautiful boy.

We nearly lost our first at birth his heart faltered and I was rushed for an ECS. I was so poorly I didn’t see him until he was six days old. He was touch and go a few times and regarded as “ failure to thrive “ I discovered when the GP left his notes. I spent a couple of hours before I read them but it did help. His Apgar scores were 0,2,4 at birth.

I wanted to say too that you won’t ever get over it but learn to live with it. I cried for my sister this week as it was her birthday. She died at 10 days old in hospital 59 years ago. I still feel sad about her. I was three when she was born. She didn’t come out of hospital and mum never really knew what happened other than if she had been born somewhere less remote she may have survived. For some strange reason we don’t have a photograph and dad had taken photos of me. I wish we had a photo.

Counselling may help you. I am so sorry for your loss.

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stayathomegardener · 23/08/2019 09:01
Thanks
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allypally999 · 23/08/2019 08:56

So sorry for your loss.

I am another one saying counselling is a good tool. Just give it a try. If you don't like it try another counsellor. I'm guessing it would be hard to find a friend or family member you can talk as openly to as a complete stranger who is paid to listen and who won't come out with all the usual cliched and unhelpful comments. Its also ok if you just cry through the first session - in fact its quite normal.

Good luck.

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Maykid · 23/08/2019 08:35

Here he is sleeping in his cot.

Cause of death.  Interpretation needed please.
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BusterGonad · 23/08/2019 08:34

@Maykid how very sad, you did everything you could. I'm so glad that you've eventually spoken about Stephen and had a few questions answered. You sound like a fantastic mother, I'm sure Stephen knew how much you loved him.

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Maykid · 23/08/2019 08:31

What lovely people are on this forum, this has really helped.

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Lisette1940 · 22/08/2019 21:59

Maykid 💐 what a loving Mum you were to Stephen. Bless you both. X

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perdigal · 22/08/2019 21:54

I've just lit a candle for you Stephen - you are loved.
Maykid I'm so sorry you went through this and continue to. I hope this forum helps

Xx

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BEDinhalfanhour · 22/08/2019 18:14

Sending you Flowers & thoughts, I'm so sorry to hear about your beautiful son OP.

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Maykid · 22/08/2019 18:07

Willa, that’s very useful information, thanks.

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purplebutterfly90 · 22/08/2019 17:13
  • Stephen x
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purplebutterfly90 · 22/08/2019 17:13

@Maykid Sending Thanks and hugs your way. I'm so incredibly sorry for your loss. Thank you for sharing your Stephan's journey with us💙

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Maykid · 22/08/2019 17:00

Babdoc and all the others, I am grateful to have had some kind people to talk to today. I feel as if I have had a counselling session with you all. Xx

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WillaDaPeephole · 22/08/2019 16:58

OP, I look after babies like Stephen, and even with a whole team of people and all the equipment that an ITU has, we still struggle to save babies who have an overwhelming infection such as your boy seems to have had. Once these bugs take hold they can spread so quickly and I’ve seen babies go from looking a bit unwell to full cardiac arrest in under 6 hours. When an infection is overwhelming like this, you find the bacteria everywhere- brain, lungs, bowel, kidneys- and it is sometimes difficult to know where it started. Certainly sometimes these things seem to piggyback on a minor cold, possibly something that distracts the immune system and disrupts the normal barriers in the nose that stop bacteria from crossing into the bloodstream. Because the infection moves so fast, sometimes it doesn’t matter where it starts, you just have to treat it where you find it. Even then we are not always successful.

I’ve done CPR on lots of babies- sometimes it works, sometimes it doesn’t, not because it was done badly, but because some babies are too sick to respond. It sounds as if you gave Stephen every chance you could have done- the infection was just too quick and too severe. I’m so sorry you lost him.

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Babdoc · 22/08/2019 16:15

OP, I am so sorry you have carried this pain for 35 years.
In those days there was often scant regard given to psychological support for bereaved parents, and you were obviously just given the diagnosis and death certificate and left to pick up the pieces on your own.
I think it could be of benefit to you, even at this late stage, to have some counselling.
I think you need reassurance that you did all the right things, you were not negligent, you were in no way to blame for what happened. You seem to have carried this fear that you didn’t do the CPR properly, for example.
May I say as a doctor, that, in the face of overwhelming staphylococcal sepsis, CPR even performed by professionals is unlikely to be successful. You did incredibly well to give your baby what little chance he had, by preserving a shockable rhythm.
You were a good mum to your wee boy. You have nothing to blame yourself for. And it is way past time for you to be kind to yourself and lay your burden of grief down. Please seek some support to do this.
God bless.

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