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General health

Mum probably has cancer - in chronic pain but no painkillers. What can we do?

41 replies

LordTrash · 21/07/2017 18:59

My mum has been in horrendous pain since mid-April, and it has now become clear - after months of false dawns and differing experiments - that she probably has myeloma (a form of leukaemia).

Her GP referred her to a haemotologist on Tuesday (18th). She chased the referral today and was told the 2-week wait for an appointment wouldn't even START until next Wednesday (26th) - eight days after the initial referral. She was advised that she would definitely have to wait 2 weeks from then and possibly longer.

In the meantime, she is in shocking pain and isn't getting more than 1-2 hours sleep a night because it keeps her awake at night. GP tried amitriptyline, which did nothing, and co-codamol - again, doesn't even touch the sides.

She is in absolute agony and I really doubt she can take another 3 weeks of it. When she pleaded, with tears (and this is a very stoic woman, believe me) to the GP, he said, 'Fine, fine, don't worry' and dismissed the subject.

What on earth can we do?

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stopfuckingshoutingatme · 21/07/2017 22:24

Honey I also say a and e

From my dads cancer reoccurring to it getting he progressed and ended up in a and e , then ICI then he passed

I say that as when the pain is this bad it's very serious and she needs proper palliative pain killers

They will look after her and this is an emergency

I am so so sorry for you and her Flowers

Sending strength Flowers

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stopfuckingshoutingatme · 21/07/2017 22:28

Just RTWT

Fuck that GP am so angry with them

I said that about my dad not to make it sound like she is Dying but to assure you they will take this seriously

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Slimthistime · 21/07/2017 22:33

I hope your mum gets something
I am raging at the GP. Could you cope with filing a complaint? Is there someone else at the same place you can see? Outrageous. There's one of five at my surgery who seems to delight in never prescribing. I hear patients say they want an appointment with anyone who isn't him.

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LordTrash · 21/07/2017 22:34

Thank you, everyone, they are sending somebody over right now - advised against A&E because from what she told them about her pain, it would be really difficult for her.

So the 111 guys are telling her she's too ill to even go to A&E, but the GP reckons she's fine to carry on without pain relief Hmm. I'm going to have a word with her about changing GPs (my surgery is fab) once she's feeling more human.

Thank you so much, all Smile.

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lougle · 21/07/2017 23:08

Fantastic news, well done for making that call. I hope they give her some strong pain relief and get a plan together for the weekend. Flowers

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LordTrash · 21/07/2017 23:11

She said they were bringing oromorph and would sort out a plan for the weekend.

Well done, mumsnetters - you're the literal best (as dd1 would say) Flowers.

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Veterinari · 21/07/2017 23:16

Brilliant - oromorph will definitely help. OP PLEASE teport the GP. Denying pain relief is about as shitty as it gets Flowers

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BiggerBoatNeeded · 21/07/2017 23:24

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zzzzz · 21/07/2017 23:27

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lougle · 22/07/2017 22:15

I've just seen this. Oramorph is a great first step - easy to take, you can increase the dose in very simple steps and you can normally take it up to every two hours. The thing to make sure of is that you have adequate laxatives prescribed alongside, though, because the main side effect is constipation and you don't want to wait until it's a problem to find out about it. Movicol is a good one.

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hairymuffet · 22/07/2017 22:38

Hope your mum is a wee bit more comfy Flowers

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LordTrash · 22/07/2017 23:18

Thanks for asking - doctor turned up just before midnight, gave mum enough oromorph to last at least a week, another drug for specific bone-type pain (can't remember the name) and something for 'indigestion' (guess that's the Movicol but mum didn't want to go into detail on that one...)

Result was she had her first good night's sleep in nearly 3 months and blissful release from pain. Went round to see her earlier and she was in tears of relief, and looking so much brighter.

Great to see, but I'm still mad as hell at the GP. If she hadn't had anyone to fight for her, she could have been left to suffer for another 3 weeks AngryAngryAngry.

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TheFaerieQueene · 22/07/2017 23:24

I'm so happy your DM is pain free. Your GP sounds like a nightmare. Would they let their mother suffer like that? I think not.

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lougle · 22/07/2017 23:27

That is such good news Smile Tell her not to be afraid to call back if she finds that she gets used to the painkillers and the pain breaks through - they won't mind looking at things. Similarly, if she starts to feel sick (that might have been what the 'indigestion' drug was for). Either way, if she needs to make a fuss, make sure she does Flowers

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zzzzz · 23/07/2017 05:50

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stopfuckingshoutingatme · 23/07/2017 10:24

Oh
I am
Pleased to hear OP

When you are less traumatised You could write a very firm letter to the GP practice

My advice is to word it as feedback and 'for her medical notes ' and end with a request for information as to how they can support her in this initiative and be active should this happen again .

I find that approaching it more subtly will
Mean that they nicer people there will be helpful and the feedback will get back to him anyway Flowers

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