Hi all, my grandad was diagnosed with Alzheimer's disease some years ago. Him and my late nan brought me up, so he's not just my grandad. I've always regarded him as my dad.
I initially thought the diagnosis was wrong and that he had Lewy Bodies because of his mobility and hallucinations.
Anyway, a couple of months ago he had a fall and ended up being checked over in hospital. At this point he was still walking and had a carer twice a day. He was found to be ok and sent home. Over the following week he started to decline rapidly. The GP suspected a bleed on the brain and he was admitted to hospital. There was no bleed.
He's still in hospital and has deteriorated very rapidly. It has now been decided that it is Lewy Bodies. Just over a week ago he was still managing to walk to the toilet with the assistance of a nurse and was still continent. Now, he is unable to walk, stand, feed himself, drink for himself, and last night was doubly incontinent. I can hardly understand a word he speaks now.
I hate seeing him like this. The worse thing is, he's still aware of what's happening to him. He's completely tormented by this horrific disease.
The hospital he is in is absolutely outstanding and the staff are fantastic. They are an absolute credit to our NHS. I go every day to feed him his food. Sometimes he even forgets how to swallow.
I just wish he didn't have to suffer like this. I just hope that if I ever get dementia, that by that time there will be something I can take to take me out of it. I wouldn't want to be kept alive like that. He's fed up, petrified and doesn't even know where he is. It's so cruel.
It's been a steady, slow decline for about 5 or 6 years and now over the last two months he's just gone downhill so fast.
I don't even know why I'm writing this. I just feel like I have to write it down. Thanks if anyone reads this.
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Dementia and Alzheimer's
Lewy Bodies - extremely fast decline, and just need somewhere safe to release.
11 replies
RedOnHerHedd · 29/04/2016 18:47
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