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Children's health

Neurology consultant has phoned to request DD come in for an urgent MRI - worried!

63 replies

YoScience · 29/02/2016 20:28

DD (15) has been having pretty severe migraines over the past year or so. Last week we had an appointment with a neurology consultant at the children's hospital she seemed satisfied that DD was on the correct course of treatment now (with a minor tweak) and gave a formal diagnosis of severe migraine with aura and also tension headaches.

Today I got a phone call at work from the consultant we saw last week to say she had been discussing DDs case with a more senior colleague and they wanted to bring her in soon for an MRI as there was 'something in her auras that they are concerned about'

Was actually feeling really reassured after her appointment but now feeling really worried. Googling to try and find out which of her symptoms might be causing concern. Obviously now I've totally scared myself too.

The rational part of me is trying to be sensible and that it's better for everything to be checked thoroughly. The other part of me is panicked.

Realise there's nothing I can actually do, but just feeling really worried now Sad

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ArielBelleElsa · 17/03/2016 22:23

Who cares about exams, the main thing is your dd is well. Thank goodness, what a relief for you x💐

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YoScience · 17/03/2016 22:19

Oops posted too soon.

I have been looking into the exam thing. We are in Scotland and DD is sitting Nat 5s and it seems unless you actually miss an exam on the day through illness there's nothing else that can be done/taken into account for exams in regards to illness/circumstances.

Hopefully she won't have to miss any exams due to migraines as her prelims were pretty disastrous due to them, so she doesn't really have much to fall back on. I think really this year will be a bit of a write off and hopefully next year will be better! Shamrock

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YoScience · 17/03/2016 22:14

Thanks all! Smile

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LilRedWG · 17/03/2016 21:20

:D

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Kriek · 17/03/2016 21:13

Fab news.

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BlackSwan · 17/03/2016 20:59

Huge relief - that's wonderful news.

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StillNoFuckingEyeDeer · 17/03/2016 20:27

Fantastic news. Good luck to your DD in her exams. Not sure if it's been mentioned, but it might be worth getting a letter from her consultant or GP about her migraines and the side effects of the medications for the exam boards?

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YoScience · 17/03/2016 20:16

Thank you everyone so relieved! And the others at the meeting were really nice too!

I don't really want to change her meds just now while it seems to be working, due to the timing of her exams. 2 class based ones tomorrow then 8 formal exams in May but after those I would like to see if cutting the current dosage would still keep the migraines at bay.

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Oldmum55 · 17/03/2016 19:27

Fantastic news Yo ! I bet you shared the good news with all the attendees! now relax ... Wine

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TondelayaDellaVentamiglia · 17/03/2016 18:45

great news for the scan

depending how laissez faire you are about meds....I have the same stuff, been on them about eight months now... but was just permanently out of breath, flat out exhausted on one a day so I take one on alternate days

feeling much brighter, and fitter and still no migraines.

I also grew out of mine for a bit, they caught up with me when pg with dd, no issues with either of the boys and they started to flare up again about four or five years ago, increasing in frequency to one or two a month which is why i went off to see the quack.

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Haggisfish · 17/03/2016 18:32

Oh thank goodness. I'm quite sure colleagues understood!

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FancyPuffin · 17/03/2016 17:00

WooHoo!! Great news am very pleased for you.

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lucjam2105 · 17/03/2016 16:57

Am so pleased for you. Phew.

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littlenicky61 · 17/03/2016 16:39

So happy for you - that must have seemed like an eternal wait . Good luck to your DD in her exams

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LadyWithLapdog · 17/03/2016 15:53

What a relief. Enjoy the Spring :)

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YoScience · 17/03/2016 15:41

Finally hear back today! Grin

Brain and blood vessels and everything all normal! I am so relieved!! I got the call in the middle of a meeting at work and then informed the whole room of practical strangers that my daughters brain scan was clear! (I was on a bit of a high, but also felt like it would explain why I interrupted the meeting for a call! Wink)

We discussed the side effects of her tablets, but have decided to keep with them until her review in a few months as that will see her through her exams.

It has been the longest 3 weeks ever! Thank you everyone Flowers

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Oldmum55 · 17/03/2016 09:40

Been following this as I recently had similar problems with one of my children. Hoping all be sorted and put your mind at rest.

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SofiaAmes · 17/03/2016 04:14

TheFairyCaravan your ds1 has the symptoms of mitochondrial disease (combo of migraine and cyclical vomiting is how we got ds' mito disease diagnosed). Please google Dr. Richard Boles and his research on mitochondrial disease and treatment (cocktail of supplements with little to no side effects and much more effective and less toxic than the traditional migraine medications). Websites with great information about mitochondrial disease are //www.mitoaction.org and //www.umdf.org
For everyone else including the OP, this may be relevant to your child too!

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StillNoFuckingEyeDeer · 17/03/2016 03:48

Hope you get some (good) news today.

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Haggisfish · 16/03/2016 20:28

How frustrating for you. I also hope it's good news.

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YoScience · 16/03/2016 20:25

I'm really not patient at all. I nearly lost it with the secretary yesterday, she was quite rude. But said she had emailed the consultant with my number to call me. Today all calls were going straight to voicemail (I did wonder if they were screening my calls! Paranoia setting in) Wink

Might ask XP to try tomorrow just in case!!

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lucjam2105 · 16/03/2016 17:05

Oh that is crazy! Can you be very firm with the secretary and insist he calls you. I always assume that no news is good news in these types of situation. You're more patient than me!

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YoScience · 16/03/2016 16:51

Thanks both.

Still no news! Tried to phone yesterday and today, but the consultant is unavailable and he is the only person who can tell me the results. getting really annoyed now!

A 2 min phone call really would just put our minds at rest!

Maybe tomorrow! Hmm

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lucjam2105 · 16/03/2016 16:37

Any news Yo hope all ok with you.

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FancyPuffin · 15/03/2016 17:14

Hope you got some good news today Yo Flowers

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