I never ever write on here but thought my story may benefit someone.
Had same problem as most. RVI hospital didn't even check baby feeding, no HV came until I called them after two weeks as my notes were 'on the fax machine', they missed the tongue tie as didn't even check his mouth. I got mastitis and had a near hole on one nipple. When I asked about it at the 12 week check, HV said she'd checked last time and it was fine and definitely no tie. Eventually through my own suspicions I went to doc who said yes it was tied and referred me to specialist. By time of specialist visit he was exactly 8 months old. They wouldn't cut at that age without GA and said it wasn't necessary for speech but I kept pushing and got agreement to not need any more referral but just to phone back at 12 months for an appointment. He is now 15 months (waited on waiting list since 12 months) and got it done yesterday. Went in at 7.45, in operating room at 9 under GA. In recovery room 5 mins later. Dr said it is barely an operation as it is such a quick snip. By 9.20 he was awake again, had a feed, then by 9.45 running round and eating quavers and banana! Not bothered at all! His breast feeding now is a little more with tongue, no idea yet how it has affected language and oral hygiene and I may never know!
Things I have learnt for next time via the Internet!
- not proven but anecdotally TT is hereditary
- TT can be spotted by bobbing on breast, squirting milk out of sides of mouth, very sore nipples (one of the many ways for this however!), heart shaped tongue and not sticking it out to copy mummy.
- it probably won't effect speech, but it can. I thought the relatively minor risk of 20 mins under GA at his age was better than a big speech problem or issues with oral hygiene, ice creams etc later in life when the skin is thicker and the op is much more painful. NHS and NICE don't see it like this, they like to take the wait and see approach. That's ok if you don't mind the speech therapy involved. No one could tell me how our Italian child would cope with rolling his R's.
- kissing seems to be a big deal to a lot of people who have TT and many people seem to wish their parents had just done it for them when they were little.
- the NHS tend to under diagnose it. Bearing in mind something like 1 in 10 have this condition.
- your max deadline without GA is 8 months but I really encourage you to push push push to have this done as soon as you spot it. Otherwise you have to wait until after 12 months and have it done under GA
- if you have trouble and it is taking too long, there are lots of midwives and places who offer this privately for about 120 quid. Worth it to not have to put your child under GA later!
IMHO everyone should have the right to stick out their tongue!