Skip to main content
Skip to main navigation
Skip to talk navigation

Active discussions

Please or to access all these features

Add post

Watch this thread

Save thread

Start a new thread

Unflip thread

Hide thread

My feed

Saved Active Unanswered threads

Getting started FAQ's

Unanswered threads Acronyms Talk guidelines

Hide shortcut buttons

Talk

Unflip

Find bereavement help and support from other Mumsnetters.

1 2 3 4 5 6 7

Find bereavement help and support from other Mumsnetters.

Bereavement

JBADGIRL (from Postnatal oct 04 thread) son had died xxxxx

156 replies

Biglips · 02/08/2007 09:08

he had a long illness from birth but sadly yesterday her son died yesterday as his heart had stopped

R.I.P. Toby xxx

OP posts:

Report

jbadgirl · 11/09/2007 18:45

Hi everyone, yesterday went really well, the service was lovely and made everyone smile. Thanks to the minister I am now commited to doing the 5 mile walk for snowdrop next year (he said it during the service). We were ok on the way to the crem but as soonj as we pullld in there was a huge queue of people wearing something yellow. How overwhelmed were we! What a fantastic send off for Tobs! He really did touch so many people (we estimated 150 people were there). Afterwards we went to a hall where there were so many sandwiches and other bits of food it was great. Not forgetting the alcohol that I started on straight away! I have given away food to family as there was loads left and still some in our fridge (the left over alcohol came home with us though!!!)

I have put a memory page for Toby on www.gonetoosoon.co.uk.

Hope everyone is doing well and those little ones that have started pre-schools this year. x

nailpolish · 30/08/2007 11:50

im glad you have some answers
stay strong
np x

Scootergrrrl · 30/08/2007 11:40

Your bravery throughout this has been amazing and Toby looks like a gorgeous little boy. xx

jbadgirl · 30/08/2007 11:35

Hello, thought I would fill you in on our trip to southampton to see neurologist. Funnily enough our neuro knows the neuro pathologist in great ormond street and has found a diagnosis for Toby, which is also his cause of death. He had Aicardi-Goutieres syndrome which is a progrssive brain disorder. If you search it on the web there is more info on it. It is very rare (about 50 cases worldwide) everything about it relates to Toby and is so interesting. It is genetic so we will have to have genetic councilling and to find out the chances of future children having it. They think its a 1 in 4 chance each pregnancy. Our neuro has only seen one case before when she worked in great ormond street in 1990. We know this info before the coroner so still have to wait for him to get back to us about death certificate etc.

jbadgirl · 28/08/2007 12:59

No news yet, still waiting for some results. Hoping they will come back this week as we really need to lay him to rest. Its been a whole month already and we have achieved nothing. They have said that the cause is natural but which natural they are finding out.

nell12 · 27/08/2007 22:37

Just seen this thread, as a mum of an Oct 04 baby and my own Toby, my heart goes out to you and your family. I hope things are being sorted out as you would have wished xx

chocolatekimmy · 27/08/2007 22:33

poor little darling, not fair is it.

So sorry for you and your family.
x

Biglips · 24/08/2007 13:48

Hiya Jbad

How are u? and how is it getting on?...any news yet?.. xxx

OP posts:

jbadgirl · 10/08/2007 21:27

A huge thankyou to everyone who has sent their kind words and thoughts our way x
Things are taking a while with the results from pm so we are unable to make any arrangments until we hear from coroner on 20th.

Thanks again for everthing x

liliac · 07/08/2007 21:25

Jbadgirl, I am so sorry to hear that your darling boy has died, My thoughts are with you, your husband and all who new Toby. Your photos of him are lovely and he shines with happiness in them. Take care.

Clary · 06/08/2007 13:00

jbadgirl what a lovely post. You sound so strong and positive, I hope you continue to feel that way about your much loved and valued little boy.
And what lovely pictures. My thoughts are with you.

GroaningGameGirly · 06/08/2007 12:50

What a beautiful boy and what an inspirational post, Jbadgirl. My thoughts and prayers are with you and your family.

HuwEdwards · 06/08/2007 12:46

What gorgeous photos! Toby looks like he brought a lot of happiness with him

Lotstodo · 06/08/2007 12:06

Am so sad at your loss

RubySlippers · 06/08/2007 07:31

i am very sorry for your loss

WaynettaSlob · 06/08/2007 07:26

Wallace · 06/08/2007 07:25

So sad for you and your family xxxxx

Earlybird · 06/08/2007 03:24

I'm so sorry. Wishing you and your family strength.

mamama · 06/08/2007 02:41

I'm so sorry

sandcastles · 06/08/2007 02:29

How awful....

My thoughts are with you all.

janeitebus · 06/08/2007 01:56

So sorry - beautiful little boy. xxxxxx

onlyjoking9329 · 06/08/2007 01:41

oh i am so sorry, thats a huge loss
what lovely lovely photos.

forsale · 06/08/2007 01:32

sorry to hear your very sad news Jbadgirl

Aitch · 06/08/2007 01:31

oh no, you must miss him so much. so sorry to hear this.

AlistairSim · 06/08/2007 01:19

So sorry to read this.

Will be thinking of you and your family.

Unflip

1 2 3 4 5 6 7

Please create an account

To comment on this thread you need to create a Mumsnet account.