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Bereavement

Life after stillborn - will this ever get better?

128 replies

Impatientwino · 21/03/2016 19:39

I've been trying to post this for days but couldn't muster the strength.

DS2 was stillborn at 39 weeks last weekend. My placenta detached 24 hours before my ELCS. I did 5 days of induction but eventually he was born naturally and peacefully.

Please can someone tell me this horrific heartache will get better? It just feels so endless. Like nothing will ever be any good ever again.

The mornings are hardest when DS1 (3.5) is in nursery school, the house is so quiet and we have nothing to do but the awful practical things that need to be done.

Today has been one of the saddest days - we saw the vicar to discuss his funeral service, dropped his little outfit off to the funeral director for them to dress him in, had to go shopping for something for me to wear for his service and emptied his nursery into boxes that are now in the loft.

It's now just an stark, empty bedroom - we're going to turn it into a playroom for his big brother but it just is so horrid having a room I'm so scared of in a place we're supposed to feel safe, our own home.

Every day my stomach gets flatter and my lochia is lighter and it feels like I'm still slowly losing him.

When the sadness hits it's terrifying, the emotion is so strong I feel like I'm going to vomit and my chest is going to cave in with the pain. It feels like my brain is having to remind me ever ten minutes or so that he's gone and I just want to wake up from this horrible nightmare.

The midwifery team at our local hospital have been utterly amazing and are supporting us so well, as are our families and friends so we are lucky in that respect but despite it all I feel lost and alone and scared and angry, so very angry all at the same time.

Please, anyone, does this pain get better?

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1234hello · 11/09/2016 21:47

Flowers OP

You write beautifully, thank you for sharing. I have not lost a child but have and continue to deal with loss and grief and your words are helpful/insightful.

Your story and others' are heartbreaking. Life is so cruelly unfair.

I am glad you are finding strength to carry on carrying on. Xx

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Impatientwino · 11/09/2016 10:23

I'm sorry I've missed the last few posts. I've found it too hard and too sad to look back on my thread but I'm feeling stronger now. I'm so sorry for the loss of your darling babies I truly am, such loss is horrific.

So now we are 6 months on from losing our beautiful boy I posted this on my Facebook and wanted to share it here.

6 months ago today we found out our  beautiful William had died. With no warning, no sign, no fault or incident our baby sons heart had just simply stopped. We went to the hospital that day for a c section to bring our son into the world and instead left a week later with broken hearts. The day before he was due to be born he was taken in some unimaginable cruel tragedy.  In some ways it feels like yesterday and in others I cannot remember my life before. When I look at the photo of me taken just days before, I don't know where that woman has gone, she doesn't exist anymore.

So what have the last six months been like? Honestly? Horrific, emotionally exhausting, terrifying and devastatingly sad. Some days the darkness doesn't lift, it's like trying to walk through tar and some days feel easier with work to distract me, things in my diary to do and people to spend time with. Some days I can settle into my 'new normal' and forget about things for a while.

What have the last six months taught me? That no matter how dark life gets there will be people to pull you forward, keep you going and to remind you how powerful love is. That in spite of everything when you don't think it's possible you will still be breathing at the end of the most horrific day and that you will find something albeit small to smile about during it. That family and their kindness are to be appreciated and cherished. That real true lifelong friends are rare and to be treasured. That generally people will shy away from what frightens them, what reminds them of fragility and they will act with their own interests at heart. That words are incredibly powerful and not forgotten easily, whether they are well thought out, a declaration of affection or love, words of wisdom, hope, condolence, a quick off the cuff remark or a judgement on others, words have bolstered me, lifted me up, filled me with hope and torn me down, our words carry a lasting impression so we should use them wisely or keep quiet. 

I've had the most amazing friendships with phenomenal women blossom out of this tragedy, I've had lots of friendships strengthen, I've been shown such kindness and support, I've gained a greater understanding of my friends lives and I've had friendships destroyed. Sadly I've had friends ignore my son and our loss, almost like they thought behaving like he never existed would make me more comfortable when actually it's because it makes them more comfortable. I've had people judge the depth of my grief, minimise my feelings or tell me what I should or shouldn't be feeling which is nice. I've had people look at the floor when I mention William. I've had total strangers tell me it's ok because I have another son. 

I've met some incredibly strong people who know heartache, grief or both and I'm full of admiration for them as they continue with their lives through the pain and just get on with things fighting for or without the ones they love.

I've lost my perspective of the world, my sense of reason and pretty much all my self confidence. I've learned what anxiety is and how debilitating it can be. I've learned that Sebastian is my beginning and my end and that my husband is the most amazing partner and father. I've learned that life is precious, fragile and nothing should be taken for granted. 

I should have a six month old baby son tipping yoghurt and carrot on my carpet and in my hair, keeping me up at night and on my toes. Instead I have endless time, peace and quiet, anger and resentment. 

I'm working on it every day and most days I can say it's getting slightly easier to breathe, to carry on, to learn to live in a world without William and to focus on making the happiest life I can for our little family so to everyone who has been there for us, who has supported us, been kind or even just present, asked after us, put up with me when I'm angry and grumpy, unreasonable, confused and sad, a massive thank you for your part however big or small in helping us find our new way, you give us strength to just keep carrying on, you're incredible and we love you 💙

Life after stillborn - will this ever get better?
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Kayals · 11/07/2016 02:38

Impatientvino I lost my little boy on the 30th May 2016, Joseph Timothy.
We are still awaiting the results from the post mortem - most likely reason is placental abruption I was 39 weeks.

Are you coping any better? I'm spending most days in a daze.

So sorry for your loss x

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Annaelisabeth · 10/06/2016 21:38

Impatient, my alerts aren't working either but I'm checking in a lot. Does anyone know how to turn them on?

A friend of mine told me these deaths aren't fair and that life isn't made fairly. It's random and cruel to some and easy and glorious on others. It's random and it makes no sense. It was helpful to me to hear. My two babies are part of the same sadness. Actually they're part of a three-part sadness as we won't be trying for any more children now. My head is spinning too and I'm confused about everything. I know from loosing our baby boy E that it will be like this for a long time, only this time everything feels so much darker.

Xa

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AFingerofFudge · 10/06/2016 21:35

I didn't see this thread first time round but wanted to say how sorry I am for your loss of William. I know you must be still feeling so raw and angry, but hope you still have friends and support around you to hold you up x

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Impatientwino · 10/06/2016 21:12

Anna I am so so very sorry that this awful thing has happened to you. Not even once but twice. Reading your post made my heart lurch.

You poor poor thing, you must so very very angry, I am so sad and angry for you. You do not deserve any of this heartache and if you want to talk I'm here. Can't offer much wisdom I'm afraid, I'm totally lost myself but I will always listen Flowers

My alerts on here aren't working so I just have to keep checking to see if any new posts are on here so forgive me if it takes a while for me to reply.

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Annaelisabeth · 10/06/2016 15:47

Hi everyone,

My name is Anna and I'm new to this board. I lost my son E at 40 weeks during labor in August of 2014. Two weeks ago my baby daughter died 7 days after an emergency c section at 37,5 weeks. I have a daughter, she's 4. I'm lost and desperate with grief. I feel so much anger and pain, both physically and mentally.

Xa

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Impatientwino · 31/05/2016 22:31

I just wanted to say thank you for the recent posts, it means so much that you have all taken the time to share your experiences with me.

I just can't quite find any more words at the moment to respond properly but I wanted to say I'm here and I'm so very grateful to you all.

Badgers, I'm so sorry you lost your daughter and I really would like to reply to you properly when I feel able.

I'm just so very tired and each time I try to write things down it overwhelms me. Williams ashes were buried on Thursday and seeing him again and putting his tiny white box in the ground has utterly destroyed me once again.

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3littlebadgers · 26/05/2016 23:06

I am so very sorry that little William isn't here with you now Sad My daughter Azra was stillborn last March and my stomach still lurches at the thought of where I was mentally at that time. It is consuming in every sense of the word. It doesn't just change your present but your future and also your past. I used to look back at my pregnancy photos and even photos of DH and I when we first met, and sob because I knew what lay in store.
I'm 14 months down the line, I'm coping much better now. It does get easier, that new normal is very true. Some days I cry more than others, but I see the pain I have for my little angel as beautiful now. It is my connection to her, part of a relationship and bond that is much much stronger than death. If the only thing I can do for her is grieve then that is what I am going to do.
I too feel baffled when seeing babies that got to survive, while she died. There is a little boy born a few days before her, that is now toddling up and down the street where I live, I can't help but stare despite the pain.

Keep talking about him my lovely he is your son and you need to celebrate him as much as any other new mother. Flowers

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Smokedkipper · 26/05/2016 22:52

My brother died at 3 months old when I was nearly 3.

I remember him , your ds1 may well remember the excitement of looking forward to his new brother.

I remember the funeral but not in any way that was upsetting only that it was important. I vividly recall a huge ring of people surrounding our family at the grave side and the love we were all shown.

I truly hope your ds1 can carry similar memories , I'm nearly 50 now and they are so,so precious to me

My thoughts are with you, such a little thing to offer you,but you are here in my mind and i wish you peace

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BuntyCollocks · 26/05/2016 22:33

I am so very sorry for your loss. Thinking of you, DS1, DH and beautiful William.

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TheDisillusionedAnarchist · 26/05/2016 20:30

How are you is indeed a stupid question but people just dont know what to say. My experience is that grief fades and then returns but never as bad as that initial time. Thinking of you all. Do feel free to PM anytime if you want to talk.

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QOD · 26/05/2016 20:28

Flowers
so so.sorry for the loss of your beautiful big boy

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mumonarocket · 26/05/2016 20:13

I just wanted to say how desperately sorry I am for your loss. My DS was born just before your darling William. I am so sorry - life can be so incredibly cruel.

You and your family are in my thoughts Flowers

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regularbutpanickingabit · 26/05/2016 11:39

There are no words to comfort or reassure you but there are so many people on here and beyond who have you, your family and little William in our thoughts and hearts. I can't begin to imagine how you face each day and night. Your sons both sound so precious.
I'm sorry, just so sorry.

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Impatientwino · 20/05/2016 22:41

Flambola and Disillusioned, thank you so much for your recent messages. Im so utterly sorry for both your losses, I've seen your posts on here and my heart breaks for the loss of James and Rumer. You both seem like extraordinary women.

I'm sorry to BelleEtoile and Augustrose that I haven't replied to you. I've not been able to write down how I've been feeling for a while, please don't think is didn't appreciate you sharing your stories, I'm sorry I didn't reply at the time, we were reaching the week of Williams funeral and it all got too much.

I'm finding my way through this new life. We have good, bad, horrific and ok days, Some days are better than others, some are like walking through tar and others I feel like I can breathe, function without the constant pain in my chest for short periods.

There are two mums from my first sons class who had babies the week before I had William and having to see them twice a day at the classroom door is killing me, seeing their sons wrapped in blue blankets when mine should be next to them makes me want to vomit. That's my hardest part currently, watching them live the life I should be living. It consumes me. It makes me so angry, I'm so fed up of being angry with everyone.

I'm finding ways of coping, getting back to running in the last week or so I've found really helpful. Just exerting some force, feeling the wind in my face and music blaring in my ears makes me feel something...

My husband has gone back to work and I feel very jealous that at least he gets to go back to something, I work from home and certainly am not ready to return to work so I drop DS1 at school and then try and fill my time until it's time to fetch him again. My husband on the other hand wishes he was at home with me so I know that being at work makes him feel no better, it's just a distraction from the sad for a while each day...

Williams ashes are being interred next week and I'm dreading it but am looking forward to having somewhere to visit, to sit with him, talk, tell him off for leaving us, to have him finally at rest.

I'm finding the fact that the world just keeps on turning so hard, I know my friends are sad for us but they keep living their lives and that just seems so wrong, how can everyone's lives still be going on like before when our entire universe has imploded inwards. I look at strangers at places we go laughing or moaning about the mundane and think 'don't you know, don't you know what happened' How can you possibly be ok. I know this makes no sense it's just how I feel.

I don't hear from many people now, the first few weeks I got 20 messages a day which was lovely but a bit overwhelming but now somedays it feels like everyone has forgotten William. I guess no one really knows what to say so they just don't pick up the phone. I get it, I wouldn't know what to say to me either. People ask me how I am and I think how the fuck do you think I am? My son is still dead, everything is ruined. I guess it's one of those questions we always ask isn't it? How are you? We don't even want the answer we just ask it like a routine question.

On a positive note (if there is such a thing) I have said to my close friends that although I don't feel any better I do feel stronger, more in control of my emotions. I feel a glimmer of hope every now and then that we will be able to survive this, that we can function and make lovely memories for our first son. I don't want his life to be consumed by our sadness. He asked me only today if we would see the baby again now that we've said goodbye - he's only 3.5 yet he remembers Williams funeral. I know he won't remember for long but it feels so special to hear him talk in a simplistic way about his brother. I will be able to tell him when he's older that he said things and I know that will mean such a lot to him.

We've had all of Williams placenta tests back now and no official cause has been found aside from the fact I had a fetal maternal haemorrhage. My placenta showed no obvious signs of abruption but they said it could have just been a small shear that isn't visible and the genetic tests have come back clear. William was perfect and it makes no sense that he is not here with us. I cannot believe that I will not get to speak his name freely every day, to hold him the way I do his brother, do all of the things I wanted to do with him, to tell him how much I love him, to be his mother. The only way I can do all of this is in my mind and that has to be enough and it all feels so desperately unfair and cruel.

I'm sorry this has been a bit of a brain dump, I just sort of started typing and this has all come out. The utter exhaustion and grief of the early days has faded a little and I am doing ok but I'm scared about the future. Thank you to all who have thought of our little family and know that our hearts go out to others in pain no matter what form Flowers

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TheDisillusionedAnarchist · 20/05/2016 11:26

I'm so sorry. I haven't had the same experience but I lost my daughter at three months in January and for us it did get better, is now getting worse again but never as bad as those first days. Just take care of yourselves. I wanted someone to tell me one day it would get better and I still have hope that it will do. Thinking of you all.

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Flambola · 20/05/2016 01:32

How are you getting on? I am so sorry for the loss of your beautiful boy, William.

My first baby was stillborn in Dec 2014. The next few months were a blur and I felt like I couldn't breathe. I now have a beautiful rainbow baby and she takes up most of my time now but there are still days when the grief is so heavy that it takes all of my energy just to get out of bed. You'll never get over what happened, but you'll learn to live with it.

I am thinking of you and your family xx

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BelleEtoile · 23/03/2016 23:27

Hi OP,
I'm a little bit further down the road than you. My first baby, a little girl, was born at 33 weeks in November. There's not much more I can add to the words of wisdom of previous posters. In my short experience grief definitely changes from the sheer awfulness, the first few days I was convinced that it was all a bad dream to a general sadness interspersed with whys, what ifs, should haves and overwhelming breathlessness. Life is never going to be the same again but I'm ok with that. I felt so so alone the first few weeks, I found reading blogs and forums helped. I actually joined here shortly after. I've realised I am not alone. You OP are not alone. 🌟

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AugustRose · 23/03/2016 18:18

I'm so sorry for the loss of your precious baby boy OP

We lost our DS2 at 37 weeks 6.5 years ago, yet I can remember your pain so clearly. He died on a Friday night and was born the following Monday and I think about him every single day.

I'm sure you have had some good advice so far (sorry I haven't read the whole thread) and can also recommend Sands, their forum has been a lifeline to me on so many occasions when I felt I was going out of my mind with grief. Talking to others, even online, can be so good just to get through each day in the very early days and I hope you are finding some comfort in others.

Each journey is different and hopefully the pain will ease with time for you, sadly there is no time limit and you have to take each day as it comes, some will be better than others until the better days outweigh the bad ones.

Writing about my son in a diary or on his online remembrance page helped me too, I made his memory box which I still add to, and talking about him as often as possible.

My DD2 was only 2.5 at the time and she seemed so wise and understood so much for her age, she is 9 now and still has a caring instinct. There were days when I thought I couldn''t do anything but having the routine of other children made me have to get up and go outside.

It's good that you have been to see William today, I know seeing my DS again was so important for met.

Take care Flowers

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ilovehotsauce · 23/03/2016 17:51
Flowers
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DawnMumsnet · 23/03/2016 17:43

Good afternoon,

The OP's asked if we can move this thread over to our Bereavement topic so that all of your kind words of support don't disappear. We're moving it over now.

Impatientwino, we're so very sorry for the loss of your lovely boy.
Flowers for you, and for everyone else who's been through this.

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toofarfromcivilisation · 23/03/2016 11:54

My DD was stillborn in 1992. I was told at the time, & have since found it very true, that loss is like a knot. As time goes by it loosens but never goes away completely. The loose knot doesn't hurt so much now.

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HazelBite · 23/03/2016 11:09

Please don't hide your grief from your Mother allow her to grieve with you. My DS and Ddil were told their baby would not survive birth and were advised by several doctors not to continue with the pregnancy. Their first child, DDil in her 40's this was their "miracle" pregnancy.
Because they had to have what was in fact a termination at 21weeks they hardly told anyone and because they felt guilty for making that decision.
It has been so hard for them both and I can see them holding it all in, and they would not anyone to come to the funeral.
I am grieving for that grandchild that I will never know, and would love to tell them how much we would have loved him. If I mention anything I'm told we don't want to cause any upset!.

OP I'm sitting here at work with tears in my eyes after reading yours and all the other people who have written their experiences here. My heart goes out to you all.

Please let your family and friends grieve with you.

Flowers

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Msrichardofyork · 23/03/2016 09:09

impatient I sent you a PM but know you have problems accessing so for now just wanted to direct you (and maybe others looking for support) to the Glow in the Woods discussion forum, which is a really supportive place for baby loss (someone here directed me to it after I lost my daughter)
//www.glowinthewoods.com/discussion/

There is also a beautifully written book by Elizabeth McCracken (with a very long title I can never remember) that details her journey through loss - it was of comfort to me

To get an idea of what survival after losing a baby looks like, I really recommend Brooke's blog- she's several years on and captures life after loss in a very hopeful (but honest) way
bythebrooke.blogspot.co.uk

Keeping William in my thoughts

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